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My name is John Mullin and I am facing a life-threatening challenge. In 2011 I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF), a degenerative lung disease that gives patients an average 3-5 year life expectancy. There are no medical cures for this condition and only have a few drug therapies that may slow the disease progression. Hope to live is to receive a lung transplant.

I am married to Carole Mullin for 39+ years; together we raised four wonderful children, all grown with families of their own. Now with 10 grand-children to love and spoil, we always look forward to family times together. At 62 years of age, I look back on my life and clearly have five highlights that are memories above all. My wedding day with Carole is first; followed by “walking down the matrimony isle” with my daughters Lisa, Christy, and Sandy; and finally witnessing the birth of my son Daniel. These are vivid and clear along many other happy events. With a transplant, I will have the opportunity to make many more great memories with my family while being an advocate for others with IPF.

My IPF has progressed to the point where I recently was added to the transplant list at Temple University Hospital in Philadelphia. I fight for life each passing day as I wait for my blessing of donor lungs. This process is extremely tough. Even with insurance, there are many out-of-pocket expenses including travel and copays for pre-transplant doctor appointments, and numerous tests/procedures that need to be repeated periodically. Post-transplant, patients are required to complete rigorous rehabilitation therapy for many weeks along with life-long anti-rejection / immune suppressant medications that are very expensive. Given the high cost of the co pays, medications pre/post-transplant, and travel expenses for testing and follow-up, transplants are life-saving but financially draining.

Updates (5)

June 28, 2015

One week to go before the Breathe Easy Music Festival. Thanks to everyone who have already purchased tickets. Please be aware that we will some special raffle gifts from local businesses and three special "silent auction" items at the show. Something for everyone!!!!!

May 31, 2015

Last week we supported the Wescoe Foundation in their IPF fundraiser event. We also had our own table at the Health and Wellness area to promote our upcoming Breathe Easy Music Festival. So very proud of my son-in-law Griff and granddaughter Shannon who ran in the 5K.

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Guestbook

August 25, 2015

The struggle you're in today is developing the strength you need for tomorrow. Don't Give Up Muffin Man!

Hugs and Kisses - Amy Rinkevich

July 7, 2015

Hang in there John

Frank Nyce

July 1, 2015

Hi John!! A blast from the past: Tim Lyons here! I am so very sorry that you are ill, am hoping and praying for your recovery!

Tim