Karen Needs Your Support!
In 2014, Karen began experiencing shortness of breath and wheezing and was diagnosed with ILD (interstitial lung disease) from a condition known as Scleroderma. Scleroderma is a chronic disease that causes the skin to become thick and hard, a buildup of scar tissue and damage to internal organs. There is no known cure. As this condition advances, her lungs will become more damaged and shortness of breath will become worse. She is on oxygen 24 hours a day and told a lung transplant will be her best option. She has been accepted and placed on placed on a transplant wait list at UPMC and Penn Hospital.
January 26, 2016
Update: I am officially listed for lung transplant at UPMC. Now the stress of waiting while I manage how to take care of myself so that I can be at my best when I get “The Call”. However long it may be, I’m grateful to be on the road to transplant. There is no time frame on the wait time.
Thanks to everyone for their prayers and support!
September 19, 2015
Just completed my 6 months evaluation follow-up from my March visit. Good vist with Transplant Team. Now we wait on the board decision for our next steps toward transplantation. Thank you for your support, thoughts and prayers.