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Sandye is a 47-year-old woman who is in need of a double-lung transplant. For more than half her life, she has been living with Pulmonary Hypertension (PH), a rare progressive and incurable lung disease that is caused by the narrowing of the blood vessels and arteries leading into the lungs. This will worsen and eventually lead to heart failure. By the time Sandye was officially diagnosed (February 2, 1996), she was well past the point of early diagnosis already. The heart failure was already clearly apparent, and the PH was to the point where she immediately was put on Oxygen therapy 24/7/365, which she still remains on today. While there are drug therapies out there to help prolong and slightly improve her quality of life, a double-lung transplant is her only hope.

Updates (30)

January 9, 2021

January 9, 2021 - I turn 46 today! I am so Blessed to have made it this far. I thank each and every person in my life who has helped me get to this point. I promise to keep fighting this disease, to take care of myself as best I can, and to not be too proud to ask for help when it's needed. Every single one of us has good days and bad days. It doesn't matter if you have some life-threatening illness or not. I remain as positive as I possibly can as always. I try to not let hard times, and bad days keep me down for very long. Prayers are always welcomed and appreciated. I pray for a lot of things every day. Stay strong. Stay well. Breathe easy.

October 27, 2020

I am a person that's in the high risk group. I have a compromised immune system. A simple cold could turn into pneumonia overnight. Because of how dangerous it would be if I were to get sick, I always go into a self-induced hibernation from October to May each year. I stay home as much as I can. I avoid people whenever possible. When I do HAVE to go out, I have always worn a mask to protect myself. In the past, I've continued to celebrate and enjoy the holidays with friends & family. In 2019, starting on October 1st as usual, my self-induced hibernation began. I have plenty to do to keep me sane, busy, and happy. Just because I'm constantly battling PAH, doesn't mean everyday life stops for me. There's still bills to pay, dirty dishes to wash, groceries to buy...all the things everybody has to do. I had no idea that my October 1, 2019 hibernation wouldn't be over until May 1, 2021. I have gone to a few stores this year in July & September. I still had to get my bloodwork drawn at least once every month no matter what. I tried home draws and the bloodwork results were always inaccurate, and then my blood thinner dosage would be adjusted according to those inaccurate results. I found this out purely by accident. Thank God I did! So I have been out, and have been as careful as possible. I am happy to say that I have been and still remain cold, flu, virus free. I never get the flu shot because I found that when I did, I got sick more often and much worse during those winters compared to when I didn't get the flu shot and was more vigilant about avoiding people. I do what's comfortable for me, and it's been working so far. So, what have I been up to in 2020? Reading, 106 books so far this year, mostly cozy mysteries! Napping almost every day. Battling PH is exhausting. Enjoying TV shows & movies, my latest favorite is After Life, a Netflix original series created by, written by, and starring Ricky Gervais (rough language, great show though). Cross stitching small designs for charity, no reason not to give back if I'm able to, right?! Finally going through drawers, closets, etc. leaving me with a pile of items to be donated somewhere at some point. Venturing into the world of online grocery shopping and curbside pickups, and contactless food delivery when ordering in. Word puzzles. Board games with the love of my life when we get time together. Watching the antics of the small animals outside my living room window. And most recently...watching the unbelievable spectacle(s) surrounding the 2020 Presidential election. 2020 may be an odd year, it sure hasn't been boring! That's what I've been up to. I wish everyone well. I hope you are all safe and healthy. Please be respectful, try to stay positive, and always remember...You're stronger than most, better than none.

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October 21, 2022

Wishing you a speedy recovery.. we're thinking about you❤️

Corey Cassidy

September 26, 2022

I remember you fondly from many years ago. Sixth Street most likely. Keeping you in my heart along your brave journey. Mike Dallara

Mike Dallara

August 16, 2022

I pray that God completely heals you with the healing blood of Jesus and breathes his breath into you and works a miracle like only he can do!

Melissa Boyce