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Sandye is a 42-year-old woman who is in need of a double-lung transplant. For half her life, she has been living with Pulmonary Hypertension (PH), a rare progressive and incurable lung disease that is caused by the narrowing of the blood vessels and arteries leading into the lungs. This will worsen and eventually lead to heart failure. By the time Sandye was officially diagnosed (February 2, 1996), she was well past the point of early diagnosis already. The heart failure was already clearly apparent, and the PH was to the point where she immediately was put on Oxygen therapy 24/7/365, which she still remains on today. While there are drug therapies out there to help prolong and slightly improve her quality of life, a double-lung transplant is her only hope.

Updates (27)

July 19, 2017

I know that I haven’t posted many updates here. Frankly, the emotional roller coaster, and overwhelming fatigue that accompanies most chronic illnesses is taking its toll on me. I just haven’t been doing nearly as much online as I used to.
I did have a great short vacation over the 4th of July holiday. I got to celebrate in the quiet peaceful albeit low elevation mountains! It was nice to hear birds chirping instead of cars and sirens. I forgot how calming that can be!
Today, I received notification that my monthly premium for my Medicare supplemental insurance will be going up starting in August of this year. It is now going to be $262.89 a month for the supplemental insurance. I have been trying to cover my monthly rent, my supplemental insurance, and my electric bill all on my own. I just can’t anymore. Your donations to my fundraising campaign here at Help Hope Live will help me to pay for part of these expenses. I obviously need my supplemental insurance in order to continue with my monthly bloodwork and regularly scheduled doctor’s visits and medication co-pays when I have them. So, as you can see the donations made to my fundraising campaign do help me a lot, and for that I am beyond grateful. To those who have donated in my honor, as well as those who lend encouragement and emotional support, I thank you with all my heart as “broken” as it may be.

February 8, 2017

I know that I have not posted an update in a very long time. I apologize for that. Life got the better of me, and this time the outside stress was a little tougher to bounce back from. In true Sandye-style though, I have gone through all of the stages of emotional healing that I needed to go through. My process is complete and I’m back to being me!!

I have just celebrated the 21st Anniversary of my PH diagnosis. Why do I celebrate such an awful diagnosis? I celebrate not the diagnosis itself. I celebrate my strength, my ability to overcome the constant obstacles that PH throws at me. I celebrate my courage. I celebrate the friends, family, and the PHriends (other people dealing with the same horrible disease) that have either stuck by me, or have joined my journey along the way. I celebrate the simple fact that..I…AM…STILL…HERE. That last reason is reason enough all on its own. I’m here. I’m here to laugh and talk with friends. I’m here to love family and friends who have become family. I’m here to experience the best, the worst, the good, the bad, the funny, the tragic, and well just….life. I wasn’t supposed to be here. I am though, and I am thankful for that every single day.

My word of advice to everyone out there; the healthy, the sick, the poor, the rich, the angry, the happy, whoever you are, whatever you feel, whatever you believe….listen up because this is important; Life is NOT a privilege or entitlement. Life is NOT guaranteed to last to a ripe old age. Life will give you back what you put into it. No matter what your situation is now, or what it becomes in the future…make the most of every single second as best you can. Have no regrets. Do what’s right no matter how hard “right” might be. Until next time…..Live Well and Breathe Easy. <3

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February 7, 2017

Love you bunches, Girlfriend!!! Keep kicking this thing's butt! I fully expect to see you in the group nursing home (raising all kinds of hell) when we are in our 90s!

Amy Bourne Joy

June 11, 2015

Big Hugs with Love and lots of Smiles and Sunshine all around for you Sandye!!

Dorey (Stabile) McCarron

October 8, 2013

Hi Sandye. I hope you''re doing well. I just made a contribution to help you out. I hope you raise alot.

Missi Thomas, North Huntingdon, PA