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Sandye is a 45-year-old woman who is in need of a double-lung transplant. For half her life, she has been living with Pulmonary Hypertension (PH), a rare progressive and incurable lung disease that is caused by the narrowing of the blood vessels and arteries leading into the lungs. This will worsen and eventually lead to heart failure. By the time Sandye was officially diagnosed (February 2, 1996), she was well past the point of early diagnosis already. The heart failure was already clearly apparent, and the PH was to the point where she immediately was put on Oxygen therapy 24/7/365, which she still remains on today. While there are drug therapies out there to help prolong and slightly improve her quality of life, a double-lung transplant is her only hope.

Updates (29)

October 27, 2020

I am a person that’s in the high risk group. I have a compromised immune system. A simple cold could turn into pneumonia overnight. Because of how dangerous it would be if I were to get sick, I always go into a self-induced hibernation from October to May each year. I stay home as much as I can. I avoid people whenever possible. When I do HAVE to go out, I have always worn a mask to protect myself. In the past, I’ve continued to celebrate and enjoy the holidays with friends & family. In 2019, starting on October 1st as usual, my self-induced hibernation began. I have plenty to do to keep me sane, busy, and happy. Just because I’m constantly battling PAH, doesn’t mean everyday life stops for me. There’s still bills to pay, dirty dishes to wash, groceries to buy…all the things everybody has to do. I had no idea that my October 1, 2019 hibernation wouldn’t be over until May 1, 2021. I have gone to a few stores this year in July & September. I still had to get my bloodwork drawn at least once every month no matter what. I tried home draws and the bloodwork results were always inaccurate, and then my blood thinner dosage would be adjusted according to those inaccurate results. I found this out purely by accident. Thank God I did! So I have been out, and have been as careful as possible. I am happy to say that I have been and still remain cold, flu, virus free. I never get the flu shot because I found that when I did, I got sick more often and much worse during those winters compared to when I didn’t get the flu shot and was more vigilant about avoiding people. I do what’s comfortable for me, and it’s been working so far. So, what have I been up to in 2020? Reading, 106 books so far this year, mostly cozy mysteries! Napping almost every day. Battling PH is exhausting. Enjoying TV shows & movies, my latest favorite is After Life, a Netflix original series created by, written by, and starring Ricky Gervais (rough language, great show though). Cross stitching small designs for charity, no reason not to give back if I’m able to, right?! Finally going through drawers, closets, etc. leaving me with a pile of items to be donated somewhere at some point. Venturing into the world of online grocery shopping and curbside pickups, and contactless food delivery when ordering in. Word puzzles. Board games with the love of my life when we get time together. Watching the antics of the small animals outside my living room window. And most recently…watching the unbelievable spectacle(s) surrounding the 2020 Presidential election. 2020 may be an odd year, it sure hasn’t been boring! That’s what I’ve been up to. I wish everyone well. I hope you are all safe and healthy. Please be respectful, try to stay positive, and always remember…You’re stronger than most, better than none.

January 7, 2020

January 7, 2020 ~~ I can’t tell you how exhausting and frustrating it is dealing with PH every single day. I don’t get a day off from it. I don’t get a break of any kind. Every single moment of every single day, I’m PHighting to survive. The little daily things everyone has to deal with; i.e. refilling prescriptions, paying regular bills such as electricity and phone…none of that ends. You have to deal with your PH symptoms and all of that as well. PH doesn’t rest. I don’t sleep and have constant headaches every day. The PH meds I have to take (2 separate meds a total of 3 times a day) cause fatigue and headaches. PH causes insomnia and headaches. It never ends. And I’ve been doing this for almost 24 years now. What keeps me going? Unconditional love and support from my very dear friends and family. Without them, I seriously don’t think I’d be here. They are the reason I PHight as hard as I do. Every single day I struggle, and every single day when it’s quiet at night and I’m laying awake in the wee hours of the morning, I thank God that I am still able to PHight and to be here to spend time and share my life with those people. They know who they are because I make sure to tell them as often as I can how I feel about them. Just in case any of them read this (which they probably will) I love you all and I’m so beyond Blessed and grateful to have you in my life! Thank you all. And for those of you who I haven’t met personally who may be thinking of donating to my page, thank you as well. It means a lot to me that you took the time to read what’s on my campaign page, and even thought of donating to my fund! Hugs and Happy New Year! Let’s hope 2020 is the start of a wonderful new decade for us all!

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February 4, 2017

Love you bunches, Girlfriend!!! Keep kicking this thing's butt! I fully expect to see you in the group nursing home (raising all kinds of hell) when we are in our 90s!

Amy Bourne Joy

June 10, 2015

Big Hugs with Love and lots of Smiles and Sunshine all around for you Sandye!!

Dorey (Stabile) McCarron

October 17, 2008

Hi Sandye. I hope you''re doing well. I just made a contribution to help you out. I hope you raise alot.

Missi Thomas, North Huntingdon, PA