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I am writing to ask for your help. In December 2009 my life with my husband Sam and 8-month-old daughter Ruby was changed forever. After an E-Coli infection, I developed a life-threatening blood disorder called TTP-HUS. Thinking I had a routine infection, imagine my surprise when I remained in the ICU for over three weeks. TTP-HUS is triggered by the body’s immune response to the infection, and causes the platelets in blood to shred and spread clots throughout the body. Often these clots travel to the brain and kidneys. In my case, these clots caused my kidneys to fail.
Two treatments are available for kidney failure: dialysis or an organ transplant. Dialysis cleans the blood of toxins and removes excess fluid that is normal function of healthy kidneys. I have dialysis three times a week, about four hours per session. Although life-saving, dialysis is not without risk. In 2010, I developed endocarditis from a blood infection that originated in my chest catheter, which was used to provide dialysis. I was in congestive heart failure and too weak to climb stairs, pick up Ruby or change her diaper. In October of 2010, I traveled to the Mayo Clinic for successful open-heart surgery to repair two weakened heart valves.
I am happy to report that I had a successful kidney transplant on February 1st, 2012 from a living donor! I returned home to my family about a month after transplant. In order to keep a transplanted kidney functioning, I will require a lifetime of medicine and follow-up care. Even with health insurance, our family has substantial expenses including co-pays, deductibles, COBRA, travel for the transplant and lodging at the transplant center for my family and myself. We simply cannot meet the financial burden of a kidney transplant without your help.
A fundraising campaign has been established for me with Help Hope Live. Help Hope Live is a nonprofit organization that has provided assistance to transplant patients for 35 years. Donations received by Help Hope Live are administered to the designated individual exclusively for transplant related expenses not covered by insurance. All contributions are tax deductible to the full extent allowed by law. Please consider making a contribution.Thank you for your continued prayers and support.
Emily Cross
I am very lucky to have received an amazing kidney on 2/1/2012! My transplant has given me the ability to be a mama to Ruby, to hike with my family, cook with my friends, have days out thrifting with my mom, be an OT, and snuggle with my sweet dogs. However, Immunosuppression and all the extra medicines to keep my kidney healthy have their own side-effects. The past couple of years I have been frequently side-lined with viral illnesses, fractures, surgery, delayed healing, and a bit of diva AV fistula. Despite working my dream job, I discovered that traveling with FT hours was not the best fit for me. It took a few trips to the hospital and many missed days of work and quality time with family to sink in. With much encouragement from my loved ones, I reduced my work hours and turned my attention to getting and staying well. I am definitely not there, YET. But I am counting all the small victories. Most weeks, I am able to work with a few clients and keep myself well-ish. The many post-transplant expenses have been increasingly more difficult to cover. This is why I am reaching out for help with HelpHopeLive. We will be posting some fun fundraisers soon! Thank you for your support!
It has been a long time since I've posted. Thankfully, I have been busy since my transplant on 2/1/2012. I finally started my dream career as an Occupational Therapist a year ago, celebrated many birthdays with Ruby, Sam, family, and friends. I am forever grateful for all the people that made my transplant possible. These past few months have been full of health challenges. I have temporarily stopped working to focus on my wellness and spending time with my friends and family. I am currently being seen at the Mayo Clinic this week in hopes of discovering some answers and a game plan to get back to living. We appreciate any prayers, kind thoughts, and loving support. Thank you!
Fall Yardsale Fundraiser
A Yardsale Fundraiser will be held on Saturday, October, 27th in Louisville, KY.
Where: Greensprings Neighborhood
Wolf Pen Branch off of US 42
When: 8 am, 10/27/2012
Why: To raise funds for post-transplant expenses
Info: Katherine Weckman, 502.599.5623
A new routine
I was released from the hospital on Monday and returned to the Gift of Life Transplant House with my mom. I have many new changes in my daily routine, most noticeably, no more dialysis (HOORAY). I am seen on an outpatient basis for lab work,education classes, meetings with a social worker, pharmacist, financial advisor, and Mayo transplant clinical staff. I now take two immunosuppressants, an antibiotic, an anti-viral, a steroid and some vitamin supplements. The immunosuppressants must be taken 8 hours apart to maintain a steady level in the bloodstream-cue alarms! I also have an exercise program to increase strength and speed my recovery. Mayo staff shared with us a study that related survival rates with activity levels of transplant patients. I'm not losing this sucker because of laziness, darn it!
So my recovery is going well. The next few weeks are critical for complications, but so far, so good. I do confess that I have been a little too active. I'm afraid of going stir crazy, so I have been out and walking quite a bit. I am finding a better balance now but know that keeping up my spirit is as important to recovery as taking my meds and exercise.
After talking to Ruby on Skype last night, I felt heart broken that I couldn't hold her. I decided that I wanted to fly to Louisville this weekend. This idea was quickly poo-pooed by the PA-C, as well as an alternate suggestion of going sledding. Apparently, the whole riding on a plane/blood clot or sledding/running into a wall is not allowed for a few more weeks. BOO!
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Hooray,it's a kidney!
I will be participating in a paired-donor exchange at the Mayo Clinic in Rochester,MN. I will be receiving a kidney from an unrelated living donor on 2/01/2012. My mother will be donating her kidney at a later date. We are very blessed to participate in this exchange. Thank you for your continued support and prayers. I can't wait to start this next adventure!
Yard Sale Fundraiser
We are having a yardsale on October 29th in Prospect, KY. For directions or to donate items, email me at [email protected].
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Make checks payable to:
Help Hope Live
Note in memo:
In honor of Emily Cross
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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