Lil ray is now scheduled to come home tuesday. Bc he will have clinic visits every tues and fri they didnt want to send him home just to turn around and come back tues. To be honest I am nervous for him to come home. There is so much to do for him. Meds, shots, blood pressure checks, gtube feeding and keeping him out of mischief. Its just been so long since he has been home. We are getting our room together bc he will be with us bc his feedings overnight will cause his machine to alarm overnight. And its not fair for the other kids to wake them up. I know this will get easier, its just scarier bc there is not a nurse outside the door. And all that he has been through this past year.
Sep 02, 2015
Ray is doing well with his dialysis. He is trying to regain ground with learning to walk talk and tryin relearn how to eat. All. The skills he lost since he was down so long and being tube feed. Ray will receive his mother's kidney on September 29th if all goes as planned. Katie Ray's mom thanks everyone for the and prayers.
Jul 04, 2015
Lil Ray and Katie lil Rays mommy got the results of their crossmatch it was negative which means that their are a blood match and he should not reject the kidney. CT scan is monday and psych test...
Jun 30, 2015
They have now decided that we are ready to proceed with the transplant procedure. They are contacting my living donor coordinator with the orders to go ahead with all of my testing, they said he...
Jun 19, 2015
The peritoneal dialysis catheter is still not working. They attempted the first round of peritoneal dialysis yesterday with a failed attempt, the dialysis catheter had a hole in it so they cut it...
Jun 09, 2015
Today Ray ray's blood pressure is awesome! And the doctor said it's becoming a regular occurrence!!! Small steps, big blessings!
Jun 08, 2015
Today lil Ray was supposed to have his follow up ENT scope done. But like everything else it didn't go as planned. His PD catheter isn't flushing. It will allow fluid in but not out. So they fear...
May 26, 2015
Ray is doing well after the surgery that took his 2nd kidney he is now in a regular room. he will spend at least another month in the hospital before he can come home on Dialysis which he will have...