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Dear Friends, Family and Community,

On Feb. 27, 2012, Amy Clabaugh suffered a severe traumatic brain injury when she fell from a ladder, hitting her head on a concrete floor. Amy has been receiving intense therapies since that time.

Updates (15)

November 10, 2023

"I can feel the warmth and see the bright yellow sun coming out after the darkness." Amy Clabaugh

Another wonderful year of healing, progress and hard work. Amy is blowing away her therapists and doctors as she continues to make progress so long after the injury!

Amy has had the privilege of working with Dr Crawford, a leading functional neurologist, and his team at Neurosolution in Cedar Park this year. She receives 12 hours of therapy a month. They work from a pyramid method of implementing skills. When we met with Dr Crawford last week he said Amy has made terrific progress in the foundation of the pyramid or the primitive reflexes. She is at the point where she is integrating the postural reflexes with the primitives. The other 3 tiers of the pyramid are core, vestibular and finally cognitive. She is making good progress in these skills as well. We haven't seen any plateauing since beginning our journey with Neurosolutions.

Here's a link to their website so you can see some of the things they do there. www.neurosolutionatx.com.

Amy has also been able to receive a few more laser directed prp/stem cell treatments this year through Dr Madera's office. With each one we see continued healing that builds on the last treatment. Gains we have seen from this last procedure have been reduced ataxia, better balance, and her sense of smell seems to be coming back after 11 years! Amy has tried walking with me on one side and a single point cane on the other side but the ataxia made it nearly impossible for her to place the cane and steady it. Last week we walked out into the yard and back with her using the single point cane instead of the quad cane! (with me on the one side)

As I write about the gains I'm reminded about a couple of setbacks we had this year. We lost our Lucy unexpectedly in Feb. Amy and Lucy rested in the recliner every day. This was a big emotional loss. Then in May, Amy fell backwards and hit her head on the wall as she landed on the floor. And 2 weeks later she fractured a few ribs. We used what we have learned over the years and most recently, which allowed her to recover very quickly. I guess I mention these because Amy has come so far but then we are reminded of the work that still needs to be done.

Amy would like you to know:

*her standing balance is so much better and she is now able to stand, unassisted, while looking around without losing her balance

*she has increased her time on the treadmill

*she is working on standing in tandem while looking around

*she is working on taking steps on her own

*she KNOWS and BELIEVES she WILL walk again!

*one of the mantras Amy came up with is: Neuroplasticity is never ending!!

*she is rebuilding brain pathways that were lost from the injury

Recently we were at a social gathering where we needed to go up several steps to gain entrance. Amy and I walked up the steps together and I heard the words "miraculous". This is something we continue to hear from others including her doctors and therapists. It truly is a miracle to see how far Amy has come. Her determination and hard work are paying off.

Please know that Amy would not be receiving these cutting edge treatments and making the gains she is without all of your prayers, positive thoughts and donations. These treatments are all out of pocket and very expensive.

This year Giving Tuesday will be on November 28th. Between midnight on Tuesday, November 28th and 3 a.m. ET on Wednesday, November 29th, Help Hope Live will cover the credit card fee for all online donations made in honor of Amy. Tax deductible donations can be made through www.helphopelive.org/campaign/8899 or a facebook fundraiser will be posted on Amy and Ginger's facebook pages. Please consider sharing the fundraiser with your friends and family. There is a chance donations made on facebook will be matched in whole or in part. Help Hope Live is a 4 star non profit with 38 years experience helping people raise funds to pay for expenses not covered by insurance for those with a catastrophic illness or injury. There is also an option to make a monthly donation. If you send a check please be sure to write Amy's name on the check. We had a few donations that went to the general fund last year instead of to Amy. Also, if your donation is not made anonymously you will receive a thank you from Amy and myself. If you do not receive one, please let me know so I can try to track down your donation.

Make checks payable to:

Help Hope Live

Note in memo:

In honor of Amy Clabaugh

Mail to:

Help Hope Live

2 Radnor Corporate Center

Suite 100

100 Matsonford Road

Radnor, PA 19087

November 14, 2022

Dear Family and Friends,

What a year of amazing progress for Amy! I believe this has been one of her best years, if not THE best. Once again your donations make it possible for Amy to continue on her journey. One of her intentions reads "I celebrate all of the love and support I've received in my life and in the last 10 years, and honor myself in that journey."

Amy has received several stem cell treatments during the last year. Dr Madera and her team do amazing work. Prior to each procedure Amy has a QEEG (brain mapping) called the WAVi. The last one she had in September was her best to date. The results show that her brain waves are within normal range with the exception of 2 areas, but those 2 areas have shown remarkable progress. The neurosurgeon giving the WAVi told us to keep doing what we're doing because Amy's brain is healing and he is excited to see these amazing results especially since it is so far out from the injury. I've told Dr Madera on more than one occasion, with tears in my eyes, "I'm getting my Amy back"!

So, what do we and her doctors think is making such a big difference? Everyone has agreed it is a combination of treatments and therapies. The current recipe for success includes stem cell procedures, working with a new functional neurologist in Cedar Park, Neufit and continued traditional therapies.

Amy was fortunate to work with one of the leading functional neurologists in May. He is in Cedar Park and sees patients from all over the world. After working with his team for 2 weeks we were sent home with an extensive home program. We were diligent about working through as much as we could 4-5 days a week, spending about 2+ hours a day. We returned in August for a 3 month reassessment and were told she was "killing it"! They were so pleased with all the progress Amy had made. Back in May and again in August we talked to Dr Crawford about Amy's ability to walk again independently. Both times he told us she has all the mechanics to walk again. He said that ideally he would like to work with her several hours a week. After the August appt we decided to take the steps to make that happen. Amy returned to see them in October and again they were so pleased with her progress. Amy is scheduled to begin working with Dr Crawford and his team of doctors in January on a weekly basis.

As you can imagine we are so excited to start working with Dr Crawford and continue with the stem cell procedures. We are also cautious and a bit nervous as neither of these treatments are covered by insurance. We are relying completely on your generosity in supporting Amy financially.

This year Giving Tuesday will be on November 29th. Between midnight on Tuesday, November 29th and 3 a.m. ET on Wednesday, November 30th, Help Hope Live will cover the credit card fee for all online donations made in honor of Amy. Tax deductible donations can be made through www.helphopelive.org/campaign/8899 or a facebook fundraiser will be posted on Amy and Ginger's facebook pages. Please consider sharing the fundraiser with your friends and family. There is a chance donations made on facebook will be matched in whole or in part. Help Hope Live is a 4 star non profit with 37 years experience helping people raise funds to pay for expenses not covered by insurance for those with a catastrophic illness or injury.

Amy would like you to know that she is seeing progress in:

>standing balance, she has improved from 3 min to over 15 min

>standing on the vibration plate

>standing with her feet in tandem

>core strength

>her attention to detail and precision in her movements

And she took a step unassisted while walking along the parallel bars at PT surprising her therapist!

Another of Amy's goals reads, "I fully believe I can walk again and independently. I will walk in the yard by the end of the year 2023. I am getting the bird feeders and filling them up independently." We invite you to support Amy in meeting her goals. From Amy, "This is an uphill battle. Taking one step at a time, sometimes the steps are huge and other times they are small. But I am always taking steps forward!"

Photo Galleries (1)

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Guestbook

November 29, 2023

Keep up the great work, Amy & Ginger!

Deb Groom

November 29, 2023

We love you both and the brave and tireless effort! Never give up!! Love y’all- Sally and Peter

Sally Gladden

November 29, 2023

I am so happy to see that Amy is standing, smiling and making progress!! Sending the best to you both from Japan.

Susumu

Susumu Ikeda