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Stephen John Nootens is a 34 year old man who is very ill. Stephen was born with a defect in his heart and has had more than 12 surgeries, the first the day after he was born. A heart transplant is now his only hope of survival and he is on the list to receive a heart within the next year.
Stephen is a very caring individual. He spent countless hours with his Grandmother during her lifetime and considered her among his best friends. Together they laughed over books and movies. He is an avid reader and quite the expert about films old and new, and the actors, directors and trivia regarding those films. He keeps up on current events and enjoys a healthy political debate. As a volunteer for 11 years at the local library, he has participated in writers groups and clubs. Although his vocal cords are paralyzed from past surgeries, he manages to speak softly and enjoys social interaction and laughter. When he’s not at the library, he visits his disabled Dad or spends time on the computer. He is a kind and friendly man who is committed to living a full life once he completes this transplant. His families’ goal is to see him enjoy a lifetime without further surgery or pain.
Transplants are life saving but financially draining. Even with insurance, Stephen is facing very high expenses including post-transplant medications of up to $1200 per month, cardiac rehab and 24 hour in home care during recovery. These costs are not covered under Stephen’s insurance plan.
To help with the financial burden of Stephen’s uninsured expenses, a fundraising campaign in his honor has been established with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and families for more than 30 years. All donations are tax deductible, and held by HelpHOPELive in the North-Central Heart Transplant Fund, and are administered by HelpHOPELive for transplant related expenses only. Please consider a contribution. Click the Donate Now button.
Thank you for your prayers, your support and generosity.
Gratefully,
Stephen’s Mom, Mary Nootens
mlnootens@yahoo.com
Stephen is doing fair at this time. new year new round of tests January 12th full day at northwestern memorial 715am til 3pm long day for Stephen then the 19th we are going back for echo and to meet with dr anderson
Steven, sending prayers for you and your mama. God Bless
Suzi Kelly
wishing you all the best! Praying for your full recovery!
Auntie Dar
I will be hoping and praying for the best for you Stephen.
Donna Rausch
Love you bro.
Nicole
I know you are a fighter and I am happy to join your fight.
Katie Freund
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Stephen Nootens
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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