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Hi, I’m raising money for a kidney transplant, I have polycystic kidney disease. I am on a waiting list, and once a kidney is available that matches my blood and markers, I’ll be able to get a transplant. I live in Colorado, and the transplant center is in Salt Lake City, Utah.
When I get the transplant I have to stay in Utah for one to two months, my insurance covers the operation, but it does not cover my immunosuppressive medication to prevent organ rejection, which costs 20,000.00-30,000.00 annually, or my stay in Utah at a hotel for 1-2 months. I am required to have two support people with me during that time, I chose my wife Shay, and my sister Kathi who lives in Idaho. I so much want to be able to do normal things, eat normal foods, and play, run, and have fun with my daughter. She is the light of my life, and is my inspiration every day. Anything you could do to help would be wonderful, if you cannot donate, please share my page on your social media, any help at all I would be deeply grateful.
Family and friends of William (Bill) Frost are raising money to pay for uninsured medical expenses associated with transplantation.
Bill has chosen to fundraise with Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Thankyou to all, who have responded to my post, please do not feel bad if you cannot donate, I understand. We are all at different points in life, know that your thoughts, prayers, and shares, are a blessing that I truly appreciate. This kidney disease journey has changed my life in so many ways, and for all the negatives, there have been so many blessings. Life is a blessing, to wake up each day and do dialysis let's me choose life, I do not take it for granted. This disease has opened my eyes to the joy of each day, to take advantage of the opportunities to make a difference in the lives of those whose paths I cross. My daughter shows me and reminds me through her enthusiastic zeal for life, her unquenchable thirst to learn, and her love for me, how truly remarkable my own journey in life has been, from north elementary, to west elementary, on to knoxville jr. high, and finally knoxville high. And all the friends I made, all those years of trying to be someone cool, or important, trying to fit in, being completely dumb at times, sometimes I was mean, times I truly regret, times that built me and made me, and it is all that time that brought me to this point , thankful for my journey, and making me who I am today. My motto in life has become for several years now, "things will work out exactly like it supposed to." To me it doesn't mean things will work like I want or expect, it doesn't mean that things are pre-written either, I think to me it means that we have control over our thoughts and actions, and beyond that we just don't have any control. So for those who believe in a higher power, then things work out according to God's will. To those who believe in karma, then things will balance and our actions and thoughts are a causal factor in the outcome. And for those who believe it is all left to chance, we only have control over our own thoughts and actions. Either way, don't worry over things you have no control over, it won't change anything except your ability to enjoy the blessings around you! Sorry for the long winded my 2 cents thing, we are all special, and we are all necessary. Please, share my page, donate if you can, hug your kids or anyone if you cannot, but please share my page, and thankyou for your time!
I'm back! I wasn't really gone, but I have a few updates. I'm still not very good at blogging me, but I am going to try. The last time I was on here the year was 2015, my daughter was 7, and I was 49. Since that time I moved from in center dialysis, to home hemo dialysis. So while dialysis in all respects is not great, home dialysis is many orders of magnitude better. My sister, got a kidney transplant 3 yrs ago, and is doing fantastic. This in part has helped me decide to actually get a transplant. I just recently had surgery for a double nephrectomy ( removing my kidneys), my kidneys were very large due to the cysts that grow on them from polycystic kidney disease (pkd). New information shows that pkd has a much greater chance of developing into kidney cancer. Because my kidneys were so large I did not have room for a transplant, also they caused a lot of pain, and damaged my gall bladder, so they removed that and my appendix too. Now we're just waiting for a donor, Marysa my daughter is excited, and keeps talking about all the things we will be able to do, like camping, she really wants to camp. Also going somewhere on vacation, longer than a weekend. I'm looking forward to having enough energy to play, hike, and work. I'm also looking forward to eating chili with beans, or tacos, basically everything that I cannot have on a renal diet, milk, cheese, nuts, beans, kool-aid, cola, chocolate, etc. While end stage renal disease is horrible, I feel very blessed for having my family, and friends, for being able to spend most of my time with my beautiful daughter, she is truly the light of my life! My prayers go out to those with, what I consider worse afflictions, and while I will not attempt to name them all, a few come to mind. Depression, cancer, alzheimers, diabetes, and so many more, my heart goes out to all those suffering, and all those who have loved ones suffering. I suppose, I will end my diatribe for today, but never fear tomorrow is a new day, and I'm sure I'll have new updates, like Marysa and her martial arts, or her beautiful mind, 99th percentile in science and... I digress, I'm obviously a super proud dad! Bill
So had a few mix-ups, I thought I was set for launch, but had some setbacks that I am working to resolve. By the time this is seen the problem will be past tense. I am excited and somewhat nervous about a kidney transplant. It will greatly improve my life and Marysa's, nervous well I guess the whole major surgery thing and anti-rejection drug part kinda is stressful. Funny how we get used to our inconveniences, and come to find a measure of comfort in routine, however unpleasant! Love you all
Bill
I am just getting started, I'm excited to begin this journey. I want to thank all those kind and beautiful individuals, helping me on this road to a new kidney, and a new life!
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Bill Frost God Bless you and your family. Thank you Jesus for another day!
Kevin Houser
Meant to say that, unfortunately my prayers, etc, is all that I can offer at this time.
Theda Ford
Hoping for the best, Bill. If I were working right now, I would definitely help you out! Unfortunately, my prayers, positive energy, and all that stuff are directed towards you and your daughter having a happy, fun-filled, active, long, and healthy life! Good luck with your surgery.
Theda Ford
Theda Ford
Praying this is just the start of a new beginning for you cuz!
Paula Kreiss
Hope this gets many signatures
william frost
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Bill Frost
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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