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Chandler’s Future Hope – A Double Lung Transplant

Chandler Brown is a 24-year old living with cystic fibrosis, a life-threatening genetic disease that primarily affects the lungs and digestive system. Over the last two years Chandler has been hospitalized three times, he’s had to go on oxygen, and his lung function dropped to 13%. In January, Chandler was informed that he was in need of a double lung transplant.

Updates (15)

November 16, 2017

Nov 15 – Today Chandler had a Heart Cath done to determine the pressures in his heart. They pressures were elevated as they expected due to the heart working over time because of the poor health of the lungs. There was some fluid in the lungs which they said could take care of without any difficulty. Chandler was starved again due to being NPO since midnight last night. So he was excited to get lunch and enjoy it since he could not have his Mc Donald’s this morning. He is resting well. Please continue to pray. We have a lot to be Thankful for this Thanksgiving.

November 13, 2017

9 weeks ago today we received a call while we were driving up to Cleveland Clinic that Chandler’s heart had stopped. A few minutes later we received a call that they had gotten it restarted but there were complications. When we arrived they told us that Chandler needed a procedure to measure the brain swelling in his head and that he might no make it through the procedure. The next morning they told us that Chandler would not make it so we started to make funeral arrangements. Chandler had always said that if he could not have the a transplant then he wanted to be a donor and give someone else life. We met with the donation team that evening around 11 and filed out papers online, when we got to the bottom to sign the computer internet connection was lost and everything that should have been saved was gone. The coordinator tried 5 more times to put it in and every time it went blank. 1st sign God was involved in this decision. The next morning the head of the Nero ICU said some things did not add up with some of the test and he wanted to do another CT Scan of the brain. (2nd sign God was there) The other doctors did not see any need in doing this. My mom and brother and oldest son had flown up to say their goodbyes. I told the doctor that all God says we have to have is a mustard seed of Faith, and that we needed to do this CT Scan if there was any Hope he might come out of this. Well again we did not get the news we had hope for and as my mom and brother got ready to fly back home they said their last goodbyes to Chandler before leaving. As we again prepared funeral arrangements and met with the donor time I just had this feeling had we done everything we could for Chandler. The donor team worked all night to organize the organ donations to other hospitals and people. During this time we had people from all over the country praying for Chandler, and a sense of peace with us because of this prayer. Thursday morning was a hard one as we left Ronald McDonald House to say our goodbyes to Chandler. They had stopped all the sedatives and paralytic medicines the night before and the pain medicine that morning. As we got the hospital we saw the donor team and they told us that surgery was scheduled for 6:00 pm that evening to harvest Chandler’s organs, we said okay and proceeded to his room. When we walked into his room he opened his eyes as we walked in. God is GOOD. The doctors told us they were being causes because they did not know with the brain swelling what damage Chandler may have to the brain. As the day progressed Chandler became more responsive, but still not enough for what the doctors were looking for. So David and Shadoe took a break and went for a drive, while they were gone I just prayed a simple prayer. That prayer was – Father this is your child not mine, you have given him to me for a short time on this earth. I know I have not right to ask for more after what you have already done but the doctors need proof that Chandler is going to be okay. I will except what every you bring forth. Thank you for what you have already done in him life. In Jesus name I prayed Amen. I then sat down and began to work on my computer. Within the hour Chandler raised his arm. (3rd sign from God) I was not sure I saw what I had seen until he did it again to get my attention. I went and got the nurse and he asked Chandler some commands and he did what was asked. The nurse and I high five each other and shouted. All the nurse looked at us like we were crazy. He went and got the team of doctors. The entire team of doctors, nurses and therapist all came to Chandler’s room. Three doctors asked Chandler to preform some task and he did them all with flying colors. What a party there was at his bedside during this time. The doctors said that this does not happen. People do not come out of this, that it was a miracle. I say it is our Father in Heaven, and his timing, the true Healer. Never give up, a mustard seed of faith is all it takes to move a mountain or bring someone back from the brink of death. Chandler has been approved for double lung transplant, they have expedited the last little bit of testing for him to be listed. Once listed he could be transplanted within 30 days. So now we must raise the funds for transplant and living expense for while I am out of work with transplant. Thank you for all the support, God bless each of you. Please share this story.