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Nicole Needed New Lungs

Nicole “Nikki” Seefeldt, a lifelong advocate, native South Dakotan and east coast transplant needs your help. Nicole has Lymphangioleiomyomatosis (LAM), a progressive lung disease that results in cystic destruction of the lung where the airway is blocked limiting the delivery of oxygen to the rest of the body. In August 2015, the seriousness of her 12 year battle with LAM escalated to such a point that her doctors wanted to evaluate her to determine if she would be a good candidate for a double lung transplant! underwent evaluation testing in August of 2015. She listed on March 1, 2016. She also has Tuberous Sclerosis Complex (TSC), a genetic disease that causes benign tumors to grow in many of her organs.

Updates (36)

January 11, 2018

I’m at a little over 13 months now. Had a few scares & blips my first year but not bad all considering. Having a few TSC related issues pop up, will keep abreast if they turn into anything but hoping not. It was hard for me to write last month because although I celebrated my anniversary, my dad who has been there for everything in my life died on Christmas Eve from pancreatic cancer. He started home hospice shortly after my anniversary. While his death was hard emotionally (I was not medically cleared to fly to be with him) and physically (I was still recovering from losing some function prior and getting back on my feet after anemia) I was very happy he saw me through my first year and was able to be with me when I had my transplant. My support system continues to be strong, so while I will always miss him. I’m still not alone. I finally qualified for Medicare, so that means no more COBRA payments. Things are ok for now, but if drug costs become unmanageable or something unforseen happens I am at least strong enough that I can manage a fundraiser now if need be. That said donations are welcome at any time in any amount. Thank you everyone for your support in getting me through this far. Your help has sustained me for my medical needs and care for about 2 years now which has alleviated a lot of stress and worry.

May 6, 2017

5 months out. Insurance paid for the year. Had a bit of rejection about a month or two ago, but it resolved on its own. Honestly, 40 is a number that I had a hard time seeing in my future, but I will now later this month thanks to friends, family, & my donor.

Guestbook

January 20, 2017

So happy to hear you are recovering successfully! Thinking of you!

Kat Aldrich

January 21, 2017

Dear Nicole, I pray for your continued improvement and your recovery by leaps and bounds! I love you and am so happy for you. God bless you and you're our Christmas Miracle! Love you, Lisa

Lisa Ann

January 21, 2017

I'm glad you finally were able to get your new lungs. I will keep you in my prayers for a full recovery. But we all know you got this.

Tana Gisi

January 21, 2017

I am so happy for you. I got the update today and cried. Yes, serious me crying, you read that right. Take is slow, you have fought to hard to get to this point. Arianna said she is praying for you and maybe one day you can make iy to Fl to visit.

Bridget Stull and your lil TS buddy