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Please allow me just a moment of your time. My name is Gina Massingill and I was diagnosed with MS 24 years ago. I have had slow but steady progression of disability primarily in my legs and walking ability. The disease modifying drugs have not worked for me. However, there is a treatment that is being done with positive results that stops the progression of this disease. It is called HSCT (hematopoietic stem cell transplant). It basically reboots my faulty immune system. Unfortunately, the US is still in trials so it is not available for me here but I do not have the luxury of time for an FDA approval because this disease is taking away my ability to walk little by little every day. While this treatment is the first bit of hope I’ve had in a very long time, it is expensive and insurance does not cover the cost.
Please understand this cruel disease comes with many varied problems that I have not had to endure, but my legs don’t think we have been all that fortunate. This treatment will at least stop it where it is and give me the chance to regain some of my lost function. I am fine with being my own advocate but I cannot do this alone. I really need your help. The cost is more than my sweet family can handle. I recently suffered the tragic loss of my precious 23-year-old son, Dylan, this May. I share this with you because, during that terrible time, I reconnected with a dear old friend who knew about this treatment. I choose to believe it is Dylan’s way of helping me from above. Please join me in any way that you can to help me keep walking.
To help with the financial burden of my uninsured expenses, a fundraising campaign in my honor has been established with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible, are held by HelpHOPELive in the South-Central Stem Cell Transplant Fund, and are administered by HelpHOPELive for illness-related expenses only. Please, consider a contribution.
For credit card contributions, please click the yellow Donate Now button.
Your support is critical to the overall success of my struggle. Please know your contribution counts and makes my prospects for the future much brighter. Thank you in advance for your kind consideration.
With sincere gratitude,
Gina Massingill
512-217-8397
January 23, 2016
Thanks to all of you I am in Makati Medical right now in The Philippines with the hope to stop this MS from progressing and work on regaining lost function. The chemo is happening and so far so good. Not much in the way of side effects:)
Just an update to say thanks again for all of the help to get my life-changing transplant.
My friend Bettye and I leave on January 1st for The Philippines. Bettye will stay the first month, then Randy will be there the last 2+ weeks to get me home!!
I would not be going without this help from my family and friends far and wide.Grateful is just not a big enough word. We got part of the way to the fundraising goal. We will be having a crawfish boil in the spring. There is still time for a 2015 write off also.
Bless you all!!
AUSTIN UPDATE!
Keep Gina Walking Fundraiser-- NEW date and time!
Check it out below!
I am in awe and completely humbled by the blessings happening on a daily basis.
www.ginaspeaceandlovejourney.org
is my website I will be blogging on.
I received my acceptance to the Makati Medical Center in The Philippines. I will arrive January 15th, 2016 with an approx treatment time of 6-8 weeks.
There is so much hope in this treatment for me and all of those dealing with MS and other Auto immune diseases.
It will be my life mission to spread the word so others can have the possibility of halting these life changing illnesses.
A great story of someone that has had this treatment.
Please paste the link in your browser.
More to come.
If you are able to copy and paste this link into your browser it will help you understand my mission.
The stem cell therapy delivering incredible results to severe MS sufferers
Just sent a donation for your new journey :) Sending good energy your way Gina. Keep our family posted. Love you, The Gilder's (Adam and family)
Adam Gilder
Hi Gina,
I'm a friend of Bettye and am keeping you in my daily prayers. You've inspired me with your strength and hope, and I know you will power through the successful treatment. Please count me amongst your posse of cheerleaders and prayer warriors! xoxo to you.
Julia Humphreys
So looking forward to seeing you in Houston! 30+ years is way too long but I'm so thankful we have connected again. Praying for you and this journey of hope and healing.
Shonna Vaughan
We love and support you Gina. We are wishing you every possible success from this exciting new treatment option.
Jamie & Garey Carter-Coffman
Our prayers are that you will be blessed beyond measure. Much love
Tom and Rhonda
It's going to happen, love you soo much Gina !!!
Your sis Kelly ..
Kelly Johnson
I hope you have complete recovery from this new stem cell infusion! It has such great clinical results and promise! Go Gina Gilder- Massingill. I look forward to this being common on curing many diseases. I donated to your fund! Good luck!
Sherry Summers-Ball
I look at what MS has given you as you journey thru this incredible life. What you have learned emotionally, spiritually and physically from this dis-ease is pretty incredible to say the least. I should actually add, your entire life has been pretty remarkable! I am grateful for you and happy to support you Gina. Keep on truck-in!!!
Marcie Summers-Newman
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Gina Massingill
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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