Hello family and friends,
As many of you know, I have been fighting a battle with Multiple Sclerosis (MS). MS is an unpredictable, and often disabling, disease of the central nervous system which disrupts the flow of information within the brain and between the brain and body.
I was diagnosed in 2009 at age 23 and have been taking medication after medication to reduce disease activity and all of which have failed. I’ve been on 1000mg of daily steroids to treat my relapses for more than a year and a half without a break in the medication. I am blessed with two wonderful boys, Marko, age 2 and Jovanny, age 1. I suffer to see how little-by-little MS is taking over my life. Every MRI = new lesions, new lesion = more disability. More disability = fewer activities with my kids.
Recently, I learned of a promising treatment for MS — a Hematopoietic Stem Cell Transplant. The transplant is being conducted in Chicago at Northwestern Memorial Hospital in Chicago, and could be the first MS therapy to reverse my disability. Treatment is chemotherapy followed by the stem cell transplant — a basic rebooting of my immune system.
Even with insurance, I will have many out-of-pocket expenses such as: co-pays and deductibles, doctor and hospital fees and travel and temporary housing relocation to be close to the transplant center just to name a few. I am here asking for help, help to get my MS treated and to stop MS from taking more from me. I have two boys that need me and I would like to provide, be there and care for them. Please help make a change — help me get to Chicago.
To help offset such expenses, a fundraising campaign in my honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Southwest Stem Cell Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. If you would like to make a contribution, please click the DONATE NOW bar.
Thank you in advance for your generous support
August 23, 2016
Finally, after 8 long months I’ve been approved…
-por fin despues de 8 largish meses la aseguranza me aprovo
February 20, 2016
Desafortunadamente la aseguransa está negando la cobertura del tratamiento, ahora ay que estamos apelando la decisión.
Update: So I got word in from the insurance. Unfortunately they are denying coverage, I’m currently appealing their decision.
February 4, 2016
** Good morning so I meant to post yesterday but with two sick children I didn’t get to it…
So yesterday I had a visit with my neurologist, I explained to him about doing HSCT over in Chicago… He looked at me, stood up, took my hand and said “how exciting, stem cells eh, you are very brave on doing this.” I told him how excited yet scared I was. He said to me “scared about what? In the long run it’s going to help you out and your going to get better.” He said he hopes this gets approved for everyone’s benefit… As I was leaving he caught up to me and said, “is there a contact number or someone we can talk to? I want to learn more about this and be in contact with someone in regards to your health.” I gave them the info and left. As I was leaving I wanted to jump and dance of excitement, but then realized that I couldn’t because of my MS…
**Buenos días , así que quería publicar ayer, pero con dos niños enfermos no llegué a hacerlo…
Ayer tuve una visita con mi neurólogo, le expliqué acerca de hacer el tratamiento en Chicago … Me miró , se levantó , tomó mi mano y dijo ” Que emocionante , las células madre eh , eres muy valiente en hacer esto.” Le dije lo emocionada y miedo que tenia. Me pregunto: ” miedo de qué?” y dijo “A la larga esto te va a ayudar y vas a mejorar”. Me dijo que espera que esto pronto sea aprobado para beneficio de todos … Ya que me estaba alejando me alcanzó y me pregunto, ” ¿hay un número de contacto o alguien quien podemos hablar? Quiero aprender más acerca de esto y estar en contacto con alguien en lo de tu salud ” . Les di la información y me retire. Quería saltar y bailar de emoción , pero luego se di cuenta que no podia acausa de mi EM…
January 15, 2016
I received a letter from insurance they are requiring additional test to make a final decision…
I will be traveling to Chicago soon…
Recibi una carta de la aseguransa requeriendo mas estudios para poder hacer su decision…
Pronto ire de nuevo a Chicago..
Mail a Check
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Lissette Cortez
Help Hope Live
2 Radnor Corporate Center
100 Matsonford Road
Radnor, PA 19087