MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
In November 2014, I was admitted for a routine kidney biopsy. After a week in the hospital, my doctors discovered that the damage to my kidneys was severe and that the latest round of medications was no longer working. Subsequently, my health spiraled out of control. I had so many toxins in my body that I couldn’t eat and I slept almost the whole entire day. I was admitted for emergency dialysis and after four treatments, I felt like me again. With improved kidney function and major diet changes, I thankfully do not have to be on dialysis at this point. However, my doctors have told me that a kidney transplant is in my future and is the only cure for my condition.
I am in the process of searching for a kidney donor and once a match is found, I can move forward with transplant. This transplant will save my life, but will also be extremely expensive. Even with insurance, I will have several out-of-pocket costs, including travel to and from the transplant center, co-pays and deductibles, and the anti-rejection medications I will have to take for the rest of my life.
To help offset such expenses, a fundraising campaign in my honor has been established with HelpHOPELive. To make a tax-deductible donation, click Donate Now.
For more information, please contact HelpHOPELive at 800.642.8399.
Thank you for your support!
I haven't updated in a while. I know I should. It's hard to update when your body is behaving as normal as it possibly can. However, as of Thursday, June 4, 2016, a visit with my kidney doctor has revealed that my kidneys are once again declining as I am now at only 13% function. When I first did dialysis back in December 2014, I was admitted through the emergency room with 6-7% kidney function.
I am faced with the tough decision of implanting a fistula in my arm or a tube through my abdomen for dialysis; one will require three day visits to a dialysis center while the latter will give me the independence I desire but I feel will be even more difficult on me physically, mentally, and emotionally. I will be getting two IV infusions for iron because my levels have fallen below normal. The doctors and I have decided to do chemo one more time in October before committing to dialysis entirely. My hopes of a kidney transplant from either a live donor or deceased is showing little to no progress at all.
I'm exhausted today. I am tired of what's happening to my body and still not fully comprehending why this is happening. Of course, I understand what's happening but lately, I've been pondering how such a invisible disease can be so cruel.
Praying that I get better and I find the strength to keep smiling and laughing.
Hello everyone!
Thank you to everyone who has donated so far! I am so appreciative of each and every donation that comes through. I recently just had my first fundraiser, hosted by Robert World II of Semper Home Loans and Common Grounds Gaming. We had two video game tournaments: Ultra Street Fighter 4 and Super Smash Bros. Wii U. We also had an intense JENGA tournament and the winner is still to be determined between Ryan and Tommy!
There was a ton of participation in the raffle and everyone went home with their stomach's full! At the start of the fundraiser, I thought I would only walk away with about $500. However, my friends, family, and the most awesome community of gamers helped me raise $1434.00! I can't wait until the meter reflects what I have accumulated so far! Pictures will be up soon!
Wishing you all the health in the world Cindy! Hope this helps!
Lindsay W
Sending you love and positive vibes.
The Sumilangs
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Cindy Mit
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment