My son Aaron, 11, suffered a stroke in-utero and as a result was diagnosed with Cerebral Palsy at birth. The stroke was caused by a rare disease called twin-to-twin transfusion syndrome. I gave birth to Aaron and his twin brother Amir on January 14, 2004 and four days later, Amir took his last breath and we had to say goodbye. Since that day, I have dedicated my life to taking care of Aaron, who despite all he has been through keeps a smile on his face.
Aaron is trach- and vent-dependent, and with that comes many responsibilities and constant care. We are often left home-bound because wheelchair accessible transportation is difficult to secure. Riding in the car is one of Aaron’s favorite activities – you should see his face light up! Currently, we are reliant upon our local accessible transport service, which due to budget cuts will only schedule pick-ups for Mondays, Wednesdays, and Fridays. Aaron’s doctors in Pittsburgh only see patients on Tuesdays and Thursdays, so it has become nearly impossible for me to get him to the doctor. It is my hope that we’ll be able to purchase our own wheelchair accessible van so that Aaron and can leave the house more.
December 21, 2015
So as you all know Aaron had major back surgery and it was a success. But we are still in need of donations towards a van. So please everyone donate,donate,donate every little bit counts.