OUR ADVENTURE CONTINUES…..

July 28, 2020

Well the adventures of Molly, Billie Jo and Mom continues with today supposed to being a half day to Syracuse, which ended up totally different.

We got up here by 8:30 am, not knowing insurance gave the go ahead for another med and not the med she needed today, grrr!

So yeah us, but our doctor and her staff argued with insurance for hours to get an ER approval and Insurance refused. So doctor said well med is needed today so give us permission to do as outpatient or you’re forcing us to admit her......we’re on 11G again so you see how that went.

Meds had to be slowed because of reactions she’s had before so thinking it’ll be really late before done with meds, still at 11:15 getting them. We get to sleep here, get up, and wait to be discharged and hopefully Molly will be allowed to go to work, which means go home to change her clothes and go to work.

Prayers for things to go smoothly overnight and no issues with discharge. We she how feels and what docs say before we know what we do with our Tuesday.

We come back again in few weeks for another follow up.

#DonateLife #CheckthatBox

July 16, 2020

Well, we went to Syracuse today and met with Molly’s doctor. She met with entire team (all kidney/transplant docs) to review cases (not just Molly’s)! Molly & Billie Jo’s numbers are doing odd things. Plan of action, in approximately 2 weeks we’ll repeat meds given while in hospital minus the heavy steroids.

Then we go back approximately every 2/3 weeks for God willing a day, to either get meds or do bloodwork and see doctor.

She’s still working in between and getting her hours required for college and taking all safety precautions her work says and Doctor says. Her college is to restart for Fall on August 31st so asking for prayers they can go back for as many hands on classes as they can and that they can do the make ups from last semester too!

We stopped at Jo-Ann’s in Cortland (thank you Molly for noticing sign!) and we scored some nice material for many projects I’m hoping to complete by Christmas! Molly even picked out a plaid that both of us were drawn too because it’s Donate Life colors and her colors!

Went out to eat, since she had to fast for BW this morning and then back on home turf to run errands while out. We got call from doctor about some testing run today and she’s very happy with the numbers and actually was forwarding one to Molly’s other doctor, saying Wahoo those med combo working like we’d hoped!

So we ask for continued prayers because juggling work/college job, college reporting and things and doing anything around house (and with dogs) it can be a struggle.

The rest of us, doing well just busy with everyone’s schedules and taking extra precautions with germs for Molly and Billie Jo!

We truly appreciate the good thoughts, prayers, support of all kinds and I’m going to ask again:

-please talk to your family, tell them of your wants when that day comes,

-check that box , become an organ donor

#DonateLife #GiftOfLife #Molly

#BillieJo #PrayersWork

July 2, 2020

Praise God we’re home!! Dogs are overexcited to see Molly and I!! Mocha is telling us stories!! Reese’s just trying to get close but Mocha making herself known, as normal!

Long day, more tests and still no results on testing done yesterday so now it’s waiting for results.

Making dinner and trying to get back into routines.

Tomorrow it’s back to “normal” for all which means everyone’s everywhere lol, but that’s how we do. I’ll have my mom taxi hat back on, Bill, Molly and Margo all work and tomorrow is Meg’s birthday, ever so thankful we can be home to celebrate together!

Thank you from bottom of all our hearts for the love, support and prayers, means more then words can say!

We’ll post an update once we know more, have appts follow ups and such in coming weeks/months.

All our love, enjoy a safe, Happy, Healthy Independence Day weekend!

July 2, 2020

We’ve had long wait today but this afternoon she finally got in for her testing and then back into room where was knocked out for hours. I was awake a bit but I also had allergic reaction to lunch I was brought (should’ve listened to my gut) but this trip I’ve got Benadryl in like 6 places so no ER call to Dianne for delivery of Benadryl! So I also slept some!

She finally got to eat dinner around 6 (first food or drink since midnight) so she was very happy! We’ve spent the day playing cards, watching the clouds and resting. Tonight we’ve played cards again and she’s enjoying the huge art set they brought her along with things to journal, at watching Food Network!

She’s allowed to do laps out in hallway now but I’m not. So I’m doing laps around room which is better then nothing.

God willing, one more dose of meds in morning and we’re outta here. She’s upset she’s missing work tomorrow, but not allowed per doc!

Once we know results we’ll update, but can be awhile we’re told for full report, praying for nothing big!

June 30, 2020

Hi all, wanted to give an update on Molly and Billy Jo!

Molly has finished (as much as allowed with covid) her 2nd semester at Broome and got a great GPA even with the classes she needs to finish labs when life gets back to “normal”. She working in the bakery Dept at a local Weis and totally enjoying it.

I guess Billy Jo decided we needed a little excitement and is making some of Molly’s #s wonkie again. So we’re at Upstate and she’s having some IV meds and testing tomorrow. God willing we’ll be home tomorrow evening or Thursday morning.

So this is whole new experience with covid and so thankful back with our friends on 11G!

We appreciate all your positive thoughts and prayers! They want Molly to rest as much as she can and she’s back with her pole accessory! We’ll post more updates when we know more!

September 28, 2019

We are on 81 heading home! New experiences and floor since Molly now an adult but hard because still followed by team she’s known.

Some numbers and levels resolved and few changes to Meds and follow ups closer in then originally scheduled.

Thank you for all the thoughts and prayers, and for everyone who helped with home front!

Love to all, hug your family and treasure them!

September 27, 2019

Please Pray for Molly and Billie Jo! Numbers are being Wonkie, so we’re headed to Syracuse for them to check her. Praying for Molly, all traveling and doctors and staff.

May 30, 2019

Molly and Billie Jo update, oh my where has the time gone? Molly is a senior and has 2 graduations in the next week.....deep breaths Mom, yes it’s truly happening in one week, on the 6th Molly graduates from SCCTC and then on Saturday the 8th she graduates from Montrose.

We went up to Syracuse on the evening of Memorial Day so we could be there early for her appointment and she’d be well rested.....she sleeps good there and I don’t, too much city noises for this country girl.

Anyway, get up and go to hospital and lab area so jammed packed but I visited with a lady from Whitney Point who was there for blood-work following her transplant and talked about WP friendship tree and the force behind it....Aunt Eloise. Passed time until Molly got called and then over to Office to wait again. Poor Dr. Huang has Office appointments and clinic appointments and both messed up because lab backed up. Molly’s been fighting sinus things with change of seasons and truly hit her badly Monday into Tuesday so after her exam new meds to pick up and waiting for results on others and she tells them she’s officially made her decision for college and the exciting news I can share now!! Congratulations to Molly as she won a scholarship from the Upstate transplant Golf Tournament and they now know where to send her scholarship she won!! Molly is going to Broome for Culinary. So happy and excited for her!

After that appointment, back to Ronald McDonald House for breakfast and wait until next appointment, onto next specialist and talked with him about Molly’s numbers and med changes. Then on to see another person before going back to Ronald McDonald House to make late lunch and hit the road and praying travel in between storms.

Thank God we missed near accident on way, didn’t have too many horrible down pours! We stopped in WP at the Scoop and at Aldi’s on way home (at least one stop was healthy), to stock up on strawberries and blueberries (thank Jo-Ann for telling me they were good!) and came home to very excited puppies! I’m sad I missed seeing Ben’s graduation from Story Hour, but thankful Bill was there and got photos!

Evening, prep for next trip to Syracuse with Margo up and back on Wednesday and Molly literally counting days of school left....

#MomInDenial

#OneWeekUntilGraduation

#NotEnoughTissues

#ProudParents

#DonateLife

#CheckTheBox

March 13, 2019

New update (3-12-2019) on Molly and Billy Joe.....long read....

I think I could write a horror novel about the travels on 81 to Syracuse and the return trips, parking ramps and elevators!! Let me just say I’m glad our guardian angels helped me duck and weave!

We left yesterday to a sunny 46 degrees, literally almost walked out the door without my winter coat, but Margo was like truly you’re heading to Syracuse! So thankful she pushed me to take it, Cortland is was down to 35 degrees, when we pulled into Ronald McDonald House it was a chilly brisk 33 with snow falling like what the heck! New procedures and things there but we got settled and enjoyed our Boy Scout chicken we’d brought. Upstairs to watch the Good Doctor to which we all decided it wasn’t the cliffhanger we thought it would be.

Awoke to snow and yeah I had an awful experience with elevator (those that know me know my total fear of elevators and lets just say it wasn’t nice). To get over to parking garage where everyone thought it was Grand Prix in there so not enjoyable. Got over to lab checked in and waited, Molly’s doctor comes in on her way back to her office as we’ve waited past our scheduled time, but she’s great and comes back thru the maze of 2 hospitals and an office building to come back! Talked about Molly being a senior, future plans, and Meg, I didn’t go into ugly cry at mention of Molly being senior!

Not all labs back but tells us she’ll call hopefully before next appt at 1 with other specialist and we set next appt and Thank you Dr Huang for willing to see us when we’ve got an already scheduled appt for margo so one combined trip instead of two.....re-enter Grand Prix to be able to go get my much needed coffee before going back to Ronald McDonald for breakfast. We go back up to our room to chill out (ok I admit it I got a nap because this country girl doesn’t sleep well in the city!)

Check out and again slight elevator issues (but only for me, Molly had taken load down while I did sweep of room) new procedures not fully working, but we got in van and on way to next appt.

As we’re pulling into next doctors appt phone rings it’s Dr Huang, some lab work done, few changes and tweaks to Meds and I know you’ve gotta go into Dr I. appt so I’ll let you go. Go into other appt right on Dot of time and apologize for hold up. Check in lady is awesome and starts asking Molly the ?? Have you been out of country....oh never mind you wouldn’t have had time since you’re last appt today and her and Molly share a birthday. Get called back and Dr. I is awesome and he also had few changes and we asked few ?? and he said rather he had having Molly be stabbed again today for blood work the next time we go as Dr Huang ordered bring this order and we’ll check a few things we had ?? on. He asked when we come back to see Dr Huang and he pulls out his calendar and says then I’ll see you that day at this time (when I explained about Margo’s appt he made it earlier) and said he’d send a note to front desk telling them to MAKE the appt as he directed no matter what. We go to check out and lady laughs and says hmmm I’ll have to try and override computer to make this appt but if that’s what he wants!

Molly and I had drove home to eat a very late lunch or early lupper lol and home in enough time to unload car, snuggle pups, Margo to return a call about a job (WooHoo she starts Thursday) and head to dance.

We’re all home, settled for School, mom wide awake and busy day again tomorrow. Huge thank you to Bill for taking morning to take Dad to his first wound care appt while I took care of Molly.

Prayers appreciated for new Meds/doses and for future blood work! Thank you for always keeping us in thoughts and prayers.

#DonateLife

August 29, 2018

Its been awhile for an update on Molly. We last went up on as School was getting out and then we’ve had the summer which was just busy with Molly working at Bible Conference, Megan moving out, running with appts for our family and dad and then Harford Fair project push to get books and posters ready to bam, yesterday was first day of Molly’s Senior year at vo-tech (Which she couldn’t miss) to today follow up appt in Syracuse, which meant she missed her first official day of Montrose High School as a senior. Molly shrugged, it’s ok I made it to vo-tech!!

We hope everyone had a great safe summer!

Molly and I went up last night, much later then we intended and my poor hubby for a SOS Call not once but twice from me, we finally get on road and had normal butt wads encounters on our drive (I swear the van attracts them)

Got to our home away from home, the Ronald McDonald House and

Ordered GF pizza because we both forgot to get our dinner around and as our day went we had more issues, let’s just say I was ready to scream and cry (which I did once we got up to our room) and I’ve still got to fight that battle tomorrow.

Molly and I watched Food Network watching of course....Kids Baking Championship with our favorite Duff!!!

I stayed up and just couldn’t sleep finally fell asleep to be woke up to the sound of siren after siren so I started praying for all involved.

Up this morning over to hospital after wake up call from Bill and after having a very long slow short trip thanks to guy who pulled out in front of me to turn his flashers on and go 5 miles an hour literally, grr! Finally get into parking garage and again literally pulling nose of van into a parking spot when Mr. Dark haired guy in purple scrubs decided he couldn’t wait and walked RIGHT in my path and seriously lucky I didn’t hit him, have heart attack of both!

We get in, lady at registration was rude about my photo on file (from 3 years ago when hair was still dark and much shorter) to ask me if that’s really me...um yes....onto next desk and provide them with new Insurance card which conveniently came in mail Monday! To wait and wait and wait (Yasmine, we missed you today, the lab doesn’t run right without you!)

Mollys doctor sees us still waiting for labs and says she might have to run between the two bldgs as she’s got appts in her regular office starting at 9....well she was late because we didn’t get called into transplant room until almost 9:20 or maybe she ran back and forth.

Talked allot about labs and Meds, waiting for current BW before making decisions. BW locally in one month and back in October.

Biggest relief for us, as long as Molly is a student whether high school or College, she can remain with her doctor and not have to change at age of 18 (which, gulp is only a few short weeks away)!

Go back to Ronald McDonald House eat breakfast, go back upstairs and wait for afternoon appt. I know there’s stuff I’m supposed to be doing but feeling like brain not processing all, so just laid back down. Molly not feeling good, she’s cold, yes cold, almost has heat on in room and is bundled up under all bedding from bed!

Head to next doctor, again discuss things we need to wait for BW, but let’s make this change to Meds and if readings off go back on, see you in 6 month’s but know, Call if need in between

Head back to Ronald McDonald to reheat our lunch (leftovers from last night) and then clear out room and wait for original doctor to call with ya or nay to go home. While waiting remembered one call I needed to make and left message.

Literally Molly and I decide by 3:30-3:45 we’re done going home no matter what, and just as ready to go check out doctor calls she likes how things look, we’re good to go. So we got on road to drive home with shift change/rush hour traffic.

Stopped at the Scoop in WP on way home, after all the stress of night before we deserved a treat!

Got home to Reese’s kissing her and trying to kiss me and Marshy jumping and wanting his attention too, hearing all about Margo’s first day back at Montrose (where guidance didn’t put her in any of her classes as on her schedule as far as teachers side) and her second day at vo-tech, which she loves just like Molly!

Praise God for good travels and visit even with lots of bumps in trip.

Please lift our friend Lynn and his family in thoughts and prayers as his brother just passed away.

Thank you for continued thoughts and prayers for our family, we truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Some days I wonder how it's all going to work, juggling appointments, money, co-pays, battling with Insurance companies and pencil pushers, and so far we're staying afloat!

#DonateLife

#DuffRules

#It’llBeWhatIt’llBe

#Molly&BillieJoeStrong

April 10, 2018

Oh the struggle of country girls sleeping in the city is a real thing....our room last night was on end of Ronald that faced the bigger intersection/stop light...and let’s just say traffic never stops in Syracuse!! But girls had fun in teen room last night and Snake Creek’s chicken BBQ was perfect timing for our food!!

Had Molly’s appt first thing and then late afternoon for Margo’s appt. and so thankful the doctors working together so we didn’t have two trips in same week!!

It’s been a very very long day but we had good day and thank god for Bill driving us this trip!!

We know Billie Joe likes to have Molly drink allot so always reminding her to drink!! I told her Della is always there saying Molly drink drink drink your water!!

So no big news which is good because nothing bad lol we’ll take that!!

Thank you Velvet for meeting us today and helping Bill and I out and that much appreciated Hug!!

April is National Donate Life Month please take the time to check the box to be an Organ Donor!! Organ Donation is such an easy thing to do and you can forever change families lives!

Thank you to all the medical staff and support staff who make our visits go smooth and do all things we need!

Thank you to everyone for continuing to lift our family in thoughts and prayers and support us thru all our craziness we couldn’t do it without you all!

February 14, 2018

Praising God for good weather and safe travels yesterday and today on way home (truck traffic was awful)

Molly had another check up and we got to stay over night at the Ronald McDonald House in Syracuse and ran into Montrose School family and spent part of evening with her! Hugs and prayers for you and Miss Stella!!

If you’ve never had to stay at Ronald McDonald be thankful....but I can truly not say ENOUGH great things about Ronald McDonald Houses!!! The love, support, “normalcy” (if you can have that going thru the variety of things you do when you need to be there) and just the nice place to stay with food and company if you want it or not! The staff and volunteers who make it all happen, the people who donate, the businesses who donate, thank you from the bottom of my heart!!

Ronald McDonald House becomes your home away from home and no matter how long after we “graduate out” we will always support them for being there for us and so many others in our community!!

We went to doctors today and was shocked this morning when it was colder at home then up in Syracuse!! I literally went with only my sweater this afternoon until home, then I needed my winter coat!

Oh and went back up to our room to have beautiful Valentines slide under door!! Again thank you RMH!!

Still waiting for results of Bloodwork but unless something funky we’re good with that doctor until August so that’s good!

Next appt., to our knowledge will be with both Molly and Margo and so thankful for doctors that are willing to work together to save us repeated trips around same time!!

Thank you for continued thoughts and prayers for our family, we truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Still trying to double and triple check that Molly’s billing being redone and processed correctly....continually told not to worry it’ll work out.....um but it’s been my battle and worry for over 2 years that’s not going to go away just because they say the date is fixed....I want to still know the true balance and figure out plans for paying! But I’m trying to!! Got my girl to dance so she was happy!

#DonateLife

#It’llBeWhatIt’llBe

#Molly&BillieJoeStrong

January 10, 2018

Its been awhile for an update on Molly. We last went up on Halloween and then we’ve had the busy crazy Thanksgiving and Christmas times with all those normal germs and bugs and local doctor appts. for those things.

We hope everyone had a great safe New Year!

Molly and I went up last night, so beautiful blue skies and no snow and I took winter coat with me but didn’t need it for the drive up.

Got to our home away from home, the Ronald McDonald House and ate our dinner, gave Cindy a big chuckle when she saw how Molly had labeled the bag with GF cookie bars so no one ate them....Eat these and You WILL DIE!!!! Got to visit with her for a few minutes and then up to our room. Elevator out, so I’m so thankful we were on 2nd floor and not higher, my knees wouldn’t have liked that at all, protested enough on 2nd.

Molly and I watched Food Network watching of course....Duff and remembering our trip and time with him....then switched over for one of our favorites The Good Doctor!

Molly went to sleep and I stayed up and Molly was talking to me in her sleep again and following along with things on TV and it’s freaky when she does it and has no recollection of it!

Up this morning over to hospital after wake up call from Bill and provide April with Registration a brand spanking newly corrected Medicare card with CORRECT start date!!! Over 2 years after Transplant and in appeal process, the right department in Medicare fixed her card and information Hallelujah!!!

Molly wearing her new leggings bought because of colors are #DonateLife colors!

Get to lab, go back for blood draw and girl comments no bloodwork orders for transplant today?? Um yes, that’s why we’re here....none for that Dept., a few for another doctor so I then went over to transplant to get orders.

When saw Dr, she wondered why they didn’t check certain levels and I said nothing in computer this morning so thought they called you, nope ordered normal ones, but Miss Molly not “normal” lol so when we go to other doctor next month she’s adding that one.

She sets date, asks if already scheduled to come up in April and I said yes, gave her to dates Margo has appts up there and she’s wonderful going to see Molly in morning of one of those visits to save us a 3rd trip!!

After checking out I’m literally

Carrying MY purse with van keys clinking on strap and ask Molly where are my keys?? realized what I said....turned to her and said “omg I need coffee” her chuckles and at least I gave the two NYS corrections officers something to laugh at....get out to van and going down ramp and almost get hit by silver SUV lady who must’ve thought COFFEE was at top of parking garage and they were running out because geesh she was speeding and hogging my side.

Had a rude lady cut me off in line at DD, guess she needed her coffee quicker or something...

And of course the day Molly and I don’t bring our breakfast..no eggs at Ronald Mcd...no gf cereal so breakfast is hodgepodge and not Doc approved, shhh don’t tell doctor

Go back up and wait and wait for call about labs, finally decide if they’ve not called by now it’s gotta be good. While Molly grabbing parking pass from car the doctor calls and says I don’t know what’s up with lab, but Molly needs to make sure drinking all water and other level still not back so I told doctor, ok but we’re heading home so let’s hope it’s good!

Drove back in sleety snowy white gray skies until Castle Creek.

Note to those driving and stop at Wendy’s in Cortland...the dining room will be closed starting next week and they set tentatively scheduled until the mid/end February BUT drive thru will be open.

Got home in time for her to snuggle Reese’s and head to dance!

Praise God for good travels and visit even with few bumps in trip.

Please lift our friend Ann in thoughts and prayers as she’s been in and out of hospital and not feeling good with her Chemo treatments so they’re going to adjust things.

Thank you for continued thoughts and prayers for our family, we truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Some days I wonder how it's all going to work, juggling appointments, money, co-pays, battling with Insurance companies and pencil pushers, and so far we're staying afloat! And Praise his name they fixed her start date and now doctors and hospital have to redo all billing but it’s not on me!!!

#DonateLife

#DuffRules

#It’llBeWhatIt’llBe

#Molly&BillieJoeStrong

November 28, 2017

Two years ago tonight Molly was in PICU and having a rough time of it after her transplant. Another floor and where we got to meet another set of doctors and nurses who were amazing! Hearing the sounds in PICU was just not forgettable but praying for all families and staff and those helicopters didn't seem to stop while we were there. Nurse Dawn who was amazing and let us use peace & calming with Molly. Oh the journeys we've traveled and paths we've gone had some bumps in the road but wow what blessings we've had!

Molly's arm is bruised from an awful blood draw this morning but they finally got it and off to Jane's for post bloodwork breakfast.

Tonight we're watching Holiday Bakers on food network and waiting for the Good Doctor to come on.

And tonight Margo recorded a podcast for school and she speaks about Harry Potter and Molly's surgery time, neat we heard it on the 2 year Anniversary.

So many emotions and feelings today and always, for us, our family, our donor and his family and friends.

Thank you for continued thoughts and prayers for our family, we truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Some days I wonder how it's all going to work, juggling appointments, money, co-pays, battling with Insurance companies and pencil pushers, and so far we're staying afloat!

Oh and saved the best Praise for the End......2 years to the date of Transplant and I got a letter from Social Security that they are changing Mollys start date to November 2015!!! Now to just get the 7 places to change it, currently at 5 out of 7!!

Please register to be an organ donor and tell your family your wishes! #DonateLife

#BillieJo #2YearsStrong #StubbornMomBattles #InsuranceBattlesWillBeOvercome

November 1, 2017

I can hardly believe we're literally 26 days away from Molly & Billy Jo's 2 year anniversary!! The Journey we've had, people we've met, paths we've gone and always with our family Motto of "It'll be what it'll be!" God has blessed and continues to bless our family in so many ways!

We've got 2 freshman's in house, Margo at Montrose and Meg at Broome and working at Weis, and then Molly is junior at Montrose and 2nd year at Vo-tech and loving it!

Molly is the "Sue Heck" of our family and is out of one brace (we hope) and onto softer less bulky support for her ankle, which she managed to roll on last football game of season....yes, band is rough lol, but her flute is ok!!

Molly and I went to Syracuse Monday night for her Tuesday appt for labs and clinic, lets just say it was a cold wet trip and we're both thankful it was trip without that awful four letter S word!

Got to see Former Nurse from 11G who's now over in cancer center as Nurse Practioner, one of our favorites Brooke, who always goes all out for her kids and was dressed up for Halloween!

We're making few changes and going to retest bloodwork in a bit and if all goes well we're not going back up for few months!

Please check that box on your drivers license, talk to your family so they know your wishes. God forbid if something happens and you need to make a decision for someone else, please remember all those waiting!!

Update on our friend Devan....he was given the gift of life by getting a new kidney since our last update and he's doing great and is back to work!! Thank you God for continuing to bless him!

Thank you for continued thoughts and prayers for our family, we truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Some days I wonder how it's all going to work, juggling appointments, money, co-pays, battling with Insurance companies and pencil pushers, and so far we're staying afloat!

July 1, 2017

We've had allot going on in our family life as many know.

We've been blessed with miracle with dads recovery with his surgery on May 30th.

Megan graduated from High School in June and turns 18 in 2 days, yikes!

Next school year we will have Molly a junior, Margo a freshman and Megan again a freshman but in college!

We do ask you to pray for our cousin Jeremy and Anna's little one Junie who's had to have more surgery in Danville and next week is possibly being transferred to Hershey for extensive therapy.

Now onto the Molly update:

Molly and I went up to Syracuse on Tuesday and had good visit and took off one med and more blood work locally next week and then maybe more med changes. God willing Molly and I won't be returning for visit until just before school starts! Other then threatening to get Molly a bubble wrap suit because she falls or trips on air I swear and gets nasty looking bruises, and I pray she doesn't hurt knees bad enough to get drained again.

Best part of trip, we also got to meet up with our friend Devan and his brother Brandon for Devan's orientation to be placed on Upstate Organ Donation Listing, he's currently on Danvilles waiting list. Devan is like Molly was, he's waiting for a kidney. If anyone wants to be tested, please let us know and we can get you the contact info. I'm so glad we were able to be there with them to just be support during this long process.

Please check that box on your drivers license, talk to your family so they know your wishes. God forbid if something happens and you need to make a decision for someone else, please remember all those waiting, like Devan!

Thank you for continued thoughts and prayers, truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life.

May 25, 2017

I sit here and reflect that it's been a year and a half to the day we were being discharged from the hospital to come home to the unknown path our journey was taking. My cell phone rang with THE call that forever blessed our family....

"Lisa, it's Lavelle, how's Molly feeling? Has she been running a fever in the last 24-48 hours? And how soon can you get to Syracuse?"

My reply "No, nurses have said she's been running normal? And we're on 11G to be discharged?"

Lavelle says "You're not being discharged, we found Molly a kidney! We'll be there in under an hour!" Phone disconnects and I looked at Bill and then Molly and said (as we were all exhausted) "Did that just really happen? Did my phone really ring? Omg Molly you're getting a kidney!" Tears all around and God love Molly she fell asleep to just us in the room and awoke to no joke 15 people gathered around her bed.

Wow what a crazy few days until she actually had the surgery and our doctors, nurses, other staff that were amazing and all of our friends and family that were waiting and praying for our Molly! Then (and still) praying for Molly and Billie Joe! We had a rough few days after surgery, but Molly is a fighter and stronger then so many give her credit for!

We have had lots of ups and downs and bumps but we've had more good or great days and are so beyond thankful for that!

But even as I'm so thankful and celebrating my momma heart still just breaks for our donors family! Thank God they made the decision to donate that helped many, not just our family! We as we celebrate our milestones, still heartbreak for their painful milestones.

Our last visit they tweaked meds again and we had long day, but blessing we came home. Molly goes back after schools out for her next check up.

Our whole family has had lots of ups and downs and ask for continued prayers for Margo with her continued headaches from PCS, from the accident we were in. I'm learning to deal with my wrist not having full strength like it did, but I'm thankful because could've been so much worse for us both! Thanks to Bill for always being there and keeps working like crazy to do for our family! He deserves an award for all he does for us all! Megan is a senior this year and it's all wrapping up too quickly! Yikes.....next year we'll have two freshman (one in high school and one in college) and a junior, wow! Molly is Loving her adventures at vo-tech and the food service / culinary path she's on.

Please make the decision to become an organ donor and talk openly and honestly to your family, about your wishes, because YOU might be that person saving another Molly, our friend Devan, or the many many others waiting for the gift of life.

Thank you and God bless you all for being here for us as we've travelled our journey, our path and we ask you continue to support, love, and keep us in thoughts and prayers as we keep going. I pray everyday for "Our team" (doctors, nurses, our Ronald McDonald Family, our friends and family at home and around the world, you all make up our team!) please lord let our team bless people everyday!

Please hug your family, tell them, show them you love them!! Love to all!!

February 6, 2017

Molly is doing good at home and she's had a quiet weekend. Throat still hurting so drinking is an effort, but she's doing good. Sleeping allot, but her body still fighting the virus.

Everyone else doing as well as we can. We helped aunt JoJo do a few things, helped Adrian and in process, Margo got her first snuggles with Jackson. Emma and Ben wanted to play with my (Aunt Lisa's) phone on Snapchat (thinking Megs done that too much with them)! But I got JoJo on some of them lol.

Today had a great dinner thanks to Boy Scout Troop 50 and their annual Super Bowl chicken BBQ sale and made first macaroni salad of the year, tastes so good! (thanks Colleen)

Hoping everyone has a great week and stays healthy.

Thank you for continued love, support, and prayers for our family! #DonateLife

February 2, 2017

We are home with lots of doctors orders and Masked Molly will be making reappearance thru the rest of flu season. Off of school for a bit and no crowds and limited comings and goings.

Molly needs to drink, drink, drink we'll be back in Syracuse! But as everyone knows with flu your throat is very sore, so it'll continue to be a struggle, but she'll do it. We can't go herbal teas, only decaf, they prefer water but drinking 5.5 liters a day can get very boring.

Prayers for all the doctors and nurses and staff at Upstate (and I'm sure all hospitals) as the flu bugs have hit with a vengeance, they literally had someone in ER waiting for Molly's room to be cleaned and then coming up.

Sorry I feel need to say this, please please please, don't go to work, send your kids to school, or be in public if you're sick, your little cold can put others like Molly into hospital very quickly! Please if you feel you've got the flu, go get swabbed and check within 48 hours of first symptoms and chance of getting proper meds to knock it out quicker! Please don't go places to spread it, sorry your school work / job can wait, God will understand if you're not sitting in the pew! Sorry just have to say it. And wash your hands like your parents have taught you!!

I'm so thankful for insurance but frustrated with who's supposed to pay what and when and trying to process things the computer says no it's this one, process way you know it's not right because computer tells you and it catches it, because somewhere in its little pea brain it knows it's not right but then no one pays, grrr so I told ladies at hospital, I'll continue my battles that I've been fighting for over a year and hope to God it catches up soon.

Left Syracuse with lots of sun trying to come out thru the gray clouds with snow squalls and white outs in some areas with sun shinning, very weird....near Preble the beautiful blue skies and dry pavement. Had one idiot trucker who I hope the man gets to his destination without hurting himself or anyone else, watched him merge with other trucker hitting brakes and you could see the black smoke coming off brakes and the smell was terrible. That trucker had some serious guardian angels with him! (Clarifying: Most truckers I know are very safe and cautious but with anything one idiot can make for bad experience.)

Then we get thru 81/17 split, past industrial /Cole park exit and like flick of switch in winter nasty land! Slowed to about 25-30 and inched way to Kirkwood exit and a guy in front of us had been following Maines truck almost went off exit realized and swerved back onto 81....so thankful to be getting off and he made it back on safely.

Molly and I also took a get outta hospital selfie with bed head / hospital head hair, lol.

We are home, Reese's beyond excited to see us, running between Molly and I and so happy. Can't control his licker (Reese's kisses for I guess all the days we missed!)

Praying no one else in our house gets this nasty stuff, walked in door and started diffuser going!

Thank you again for all the continuing thoughts, prayers, support and love, we can't thank you enough!

Prayers for all the doctors, nurses and staff who are wonderful, for all the EMS, Fire, Police (bad and volunteer) to our servicemen and servicewomen and their families, for all those having hard times, for those on transplant listing waiting and for those who make the decision to become living donors or to honor a loved ones wishes or to make the decision to save others, God Bless!

#DonateLife

February 2, 2017

Molly had a very restless night with temps spiking high and then going back down.

Took all her strength this morning to eat breakfast, used some magic mouthwash and was able to drink easier.

Slept allot today and played Bingo tonight from the room. Won 3 times and mom made trips to pick out her prizes.

Watching tv and vegging and praying temps stay lower and she can drink more without issue.

Praying we don't get the bad snow they are calling for up here, but glad we're here inside and not having the drive in it.

What a blessing this hospital is to us! Saw some familiar faces from our various stays. Some that were nurses are now teaching nurses, but then again aren't all nurses doing that (teaching) but you know what I mean.

We've no clue our time line, taking things moment by moment and trusting when we're to come home roads will be ok and Molly will be strong enough to do so. Might get released to home for a bit too and Masked Molly might have a come back because of all the germs that everyone spreads, some can handle without issue, but with Molly it goes from sick to hospital way to quick.

Thanks again for all the love, support, prayers, and being there for our whole family. #DonateLife

January 31, 2017

Well we were told a month we could wait between visits but Oh No, Miss Molly decided she "needed" to get the flu and with her medical history it's not great.

So now we're seeing another floor, making new sets of friends with nurses and staff on 12E. Felt at home, because guy who transported her up from ER looked and acted like a guy I graduated with, so Billy, there's another guy who looks and acts like you....hmm is that a good thing? Yes!

Prayers appreciated for her temps to come and stay down, for her hydration to come back to normal and Billie Joe and Molly to both be strong and healthy and for testing they are sending out to come back ok too!

Prayers also for Bill, Megan, Margo, Marshy and Reese's at home, that no one else gets sick and we all can be healthy under one roof soon!! Reese's was so sad when we left him and that Molly hasn't felt good. He hates when we're both gone, others better love him while we're here.

We have no idea how long we'll be here but as I firmly believe our family motto is: "It'll be what it'll be!" And it'll all work as it's supposed to.

Thank you for all the continued love, prayers, support, and just being here for our family.

#DonateLife

January 27, 2017

After a very long day Molly, Margo and I are home.

We drove up last night and got settled, ate dinner, and back up to room to try and veg and get to bed early....I was wide awake still at 1:30 but fell into a light sleep to have Margo shake me awake at 3:30, "do you hear that? WHY are they doing that now?" Wide awake again and listened to every dumpster in area be emptied and compacted. Then being kicked and karate chopped by Margo about 5ish....Bill called at 6 am with wake up call and the day officially started. Waking Molly up who sleeps soundly was a challenge but she got up and going finally.

Outside it was sunny and 45 degrees in Syracuse this morning. Over to hospital for labs, clinic, another meeting and then by time back to Ronald McDonald house it was lunch time. Wait for call from Molly's doctor and get ready for Margo's appt.

This afternoon again still 45 degrees and find the way to Margo's doctor and fill out tons of paperwork and got called in and he's adjusting her meds, see you in 3 months.

Get call Molly's meds need some more tweaking, but Praise God we don't go back to Syracuse until end of February :) we're back to 4 weeks between visits.

Go out to van, it's colder and raining. Start van it's now 39 degrees. Had a little detour getting back to head to home, the van wanted to go to Hobby Lobby I guess, when I saw names I was like um we need to turn it around, headed right direction now in the rush hour traffic, yeah NOT. By time we hit Preble it was sleet and temp was 33 degrees. We had 4 snow plows on our side on way home.

Thankful we're home and Molly and Billie Joe has a month without return visit and Margo goes back in April.

Thank you for the continued thoughts, love, prayers, and support we couldn't get thru this journey without each one of you!

Check that Box, talk to your family #DonateLife

January 3, 2017

Molly and I were blessed with clear roads and pretty good travels rain and Thank the good Lord temps stayed above freezing!!

Got to Ronald McDonald and we had good dinner of leftover scalloped potatoes and Ham from redo Christmas dinner with grandparents. For dessert there was still some of the yummiest moist chocolate cookies with walnuts! Thank you to whomever made and donated them, Molly and I truly enjoyed them again this trip!

Molly slept like a log, I tossed and turned after being awake thinking about families that have lost ones they love, those fighting illnesses and those in hospital battling, so my mind just wouldn't shut off so tired today but that too shall pass.

Got to hospital this morning and line to just register, wait for blood draw not as long today, so we got in much quicker to see the doctor. Saw new resident and the doctor, and wait for blood work results. Back to Ronald McDonald for late breakfast and waiting for phone call.

Get text other two daughters home not feeling good, and praying for them to both feel better. Molly and I laugh, her left eye bugging her and my right eye all nasty oozy so we're a great pair, let's hope daddy feeling good!

Got phone call and adjusting some meds again and see them in few weeks time and local blood work in between.

Please make the decision to become an organ donor and talk openly and honestly to your family, about your wishes, because YOU might be that person saving another Molly, our friend Devan, or the many many others waiting for the gift of life.

Thank you and God bless you all for being here for us this year, as we've travelled our journey, our path and we ask you continue to support, love, and keep us in thoughts and prayers as we keep going.

If I could ask for prayers for friends of ours that have lost their wife/mom/nana, another set of friends who've lost their daughter/sister/aunt. Please continue to lift them in thoughts and prayers as each moment, day is a new normal.

I'd also like to ask for prayers for friends hubby Keith as he's recovering from open heart surgery and also for baby Adeline and all the families and doctors, nurses, staff, and for all the others who need some extra prayers!

Please hug your family, tell them, show them you love them!! Love to all!!

December 21, 2016

Molly and I were blessed with clear roads and pretty good travels few minor idiots but more good then bad. Best part, we snuck a visit and few snuggles with our newest family member!!

Got to Ronald McDonald and we had an interesting dinner, took stuff to make our GF pizza. Started with Molly using the traditional can opener as a PC side open can opener and messed up our can of sauce....used knife to pry lid open to squeeze it out. Put lots of cheese on, put in oven, which we didn't realize wasn't heating right....took out and could carry pan without hot pads, refixed oven temps and put back in....to which oven super heated and we had burnt cheese pizza. Oh well, we had a meal, lots of giggles and memories. Had Cindy, from. RMH tell us things in freezer labeled GF and discovered some of the yummiest moist chocolate cookies with walnuts! Thank you to whomever made and donated them, Molly and I truly enjoyed them.

Got to hospital this morning and there was a line to just register that took us over 45 minutes to register, almost an hour waiting for blood draw and then over to doctors office to wait a few minutes. Saw our doctor, met new resident, and wait for blood work results. Back to Ronald McDonald for late breakfast and waiting for phone call. They were full at the Inn, and this is the bigger, doubled room capacity and still could add more, sadly that much need for the Ronald McDonald house.

Got phone call and adjusting some meds again and see them in New Year.

Please make the decision to become an organ donor and talk openly and honestly to your family, about your wishes, because YOU might be that person saving another Molly, our friend Devan, or the many many others waiting for the gift of life.

Thank you and God bless you all for being here for us this year, as we've travelled our journey, our path and we ask you continue to support, love, and keep us in thoughts and prayers as we keep going.

November 29, 2016

We've had a long day and I apologize for not updating sooner.

We've got both Molly and Margo seen today and it was hurry up and wait for Margo's part of appts.

We got over to the hospital this morning to a packed waiting room for blood draw as we expected for a Monday after a holiday. Ran into few old friends, met plenty more, one lady from Binghamton celebrating her 2 week anniversary with her new kidney.

Moved over to the clinic waiting room, to wait until we're called to see the doctor.

Molly and Billie Joe are doing good with a few adjustments again with meds. Thank God!

We have do blood work local at UHS, in between visits and are scheduled to go back around Christmas to Syracuse.

Go back to Ronald McDonald and eat breakfast, take a break and wait to be called for Margo's appt. I finally called again and asked "when are we being fit in?" Secretary had no clue, "you're not scheduled 'til April" deep breathe....."yeah I know, gave her an Update" .... "oh let me put you on hold" and came back with "Oh, she's fitting you in at...". So girls and I scramble, hurry check out, etc. and do things we need to go over to appt. Margo and I have to do paperwork and wait, (Molly got long noisy wait in that waiting area) finally got in for her appt. and we've tweaked a few things with her, plans for school, things she thinks should be certain way and do paperwork and get out in time for 4:30-5 o'clock rush traffic, but missed the turning on of the lights on the Crouse hospital tower.

Today in Syracuse, we were almost hit 3 times by idiots not in right lanes and deciding they were going anyway....good thing I'm a defensive driver, even MORE so since accident. On way home, 18 wheelers with high beams that literally I could've turned my lights off and could've seen perfect....let him go....because I was sick of his games, slowed farther below speed limit to just stay behind him and could see spots still from his lights.

Anyway, after long trip home, with a stop at Wegman's....WHAT in the world were all those people there at 7 pm on a Monday? After getting thru store, stopping and buying my "trip ticket" Margo rolls eyes and says EZ pass mom, so that Megan and I can hit the road tomorrow for one of our college trips. Our minivan "Dallas" is racking up the miles....and Travis our salesmen wondered why we didn't need the extra extended warranty....we travel way to much

So we are all home, dinner made thanks to Bill getting it started and others helping, trying to answer phone calls, again trying our best and juggling so much we can't update quickly because just too many things going.

Packing lunches, getting ready for school in am, and trying to do all things we need to do, but I'm sure something is going to get missed.

Thank you for all the continued love, support and prayers. Extra ones requested for Megan and I on our road trip tomorrow and for her playing.

#CheckTheBox #DonateLife

November 27, 2016

Happy 1 yr Anniversary to Molly and Billie Joe! Today again we celebrate, but we also remember with thanks, the family that is mourning their loss. The greatest thanks to them for giving our Molly the Gift of Life #DonateLife

A year ago today, Bill and I kept Molly preoccupied while waited for surgery and seriously anyone watching would've thought she had already been medicated.

We met two shifts worth of staff waiting for the OR to be ready. Last Thanksgiving there were 3 people that we are aware of (2 peds patients) that received the gift of life right at Upstate. So we had to wait longer for the surgery before Molly to be done and Daniel's family had to wait for Molly's to be done. Then that long 7 hour surgery wait time....

We've had an eventful, bumpy road but it's been a journey on our path of life that we have so many thank you's to keep giving....from family and friends, total strangers, church prayer chains, FB prayer chains, doctors, nurses, techs, custodial, food management staff, every part made the hamster wheel of our journey keep bouncing along our track. Some days we stayed on track and many days we jumped the track and things happened that bounced us but we somehow get back on track!

I've still got all my blue and green card stock and things waiting to make those personal thank you notes, I'm sorry Emily Post or whomever I know, I'm way late, but it just hasn't fit in yet. But truly know each thing everyone has done truly has been a Blessing in our on going Life Lesson and we love you for it! Whether you prayed, requested prayers, sent Molly or our family something, donations to HelpHOPELive, dropping food, helped Megan and Margo (or let them become part of your family) by keeping them distracted thru out everything, sending texts or messages to each of us, dinners that appeared, gift cards, jars of chocolate with notes of encouragement from others who know, anything that was done and continues to be done, we truly appreciate it.

We said our year of being able to see the "normal" things Molly's been able to do and activities has been truly a gift we treasure! Can't wait to see the continuation of her journey and where she'll go!

Celebrate Life, love those around you, check that box to become an organ donor. Or if you want to be a living donor even for a stranger, please let me know and I'll give you info on how to be tested and start the process.

Please make the decision to become an organ donor and talk openly and honestly to your family, about your wishes, because YOU might be that person saving another Molly, our friend Devan, or the many many others waiting for the gift of life.

We go back up tonight for tomorrow's check up, blood work and clinic.

God bless you all for being here for us this year, as we've travelled our journey and we ask you continue to support, love, and keep us in thoughts and prayers as we keep going.

November 8, 2016

Happy Election Day! I hope everyone takes the time and goes out and votes!

As always, monitor, monitor, monitor, tweak meds here and there. Wait for calls before we can head back towards home.

So we return to the Ronald McDonald house, our home away from home in these trips and wait.

Molly's numbers are doing good and we thankfully can come home to return again and hoping to stretch out times in between soon again.

Thank you for the continued, love, thoughts, support and prayers, means allot to us.

#DonateLife

October 27, 2016

Long wet ride up last night, awake to snow/slush on car and steady rain to head back over to get Molly's blood work done. Again today 2 tries before they get it.

We visited with others on their kidney journey.....those who are waiting, some on Diaylsis, those that are just 3 weeks past transplant to some years past and many in between. Listening to all different people, their ages vary, that have traveled this path and their families with them.

We are today at 11 months post transplant and can't begin to say right words of thanks to our donors family. We marvel at the various journeys people are walking, all similar but none the exact same. How our bodies react is uniquely individual.

We are relieved we don't have to stay here today, we get to come home! Molly's numbers back to where they'd like them.

We get to do our family things planned, walking Meg at senior night, band competition and a concert on Sunday, but always fully appreciating and thankful we can!

Thanks for continued love, support and prayers. We truly can't say enough thanks! If you see Molly and she doesn't have a water bottle, ask her where it is....

Thank you Ronald McD house again for being our home away from home!! (Bad thing for Bill, I truly see more things I'd like done at our place to be like it is here)

Thanks to all our medical teams for doing what you do best and keeping us all going.

Prayers for everyone to continue to get thru each day, moment by moment if need be, some days it's that moment by moment not looking at full day.

Molly and I will be traveling home soon, praying snow, rain and any other weather nonsense has stopped for nice drive home.

#DonateLife

October 25, 2016

We had a nice drive in last night, not near as pretty as last time as most of the leaves have fallen with all the rain we've had.

Stayed last night as normal at Ronald McDonald house ( can't say enough good things, please support them anyway you can)

#RonaldMcDonaldHouseRocks

Molly had to have 2 sticks today for blood work, as they couldn't get her on first try.

New scripts sent for meds and then we go back to Ronald McDonald house, eat breakfast and wait for the call. Always fun to see what Dora's cooking up in the kitchen and today we were entertained with hearing a bird (we hope a bird and not a bat) in the vent in kitchen, lol.

We got the call....Molly and Momma get to come back again tomorrow night, as Molly's one level is not where they want it. Going home, lots of water drinking to be done by Molly and we return for labs early Thursday morning, if numbers still wonkie then we'll be visiting 11G again.

We can't say enough for the continued love, support prayers for our family. Thank you so much!

Please keep us in thoughts and prayers and for travels. Prayers for all those waiting #DonateLife and for all those that need extra prayers today.

October 11, 2016

Molly and Billie Joe are doing good! Numbers look good, we wait for call on one medicine if dose needs to change.

We come back in few weeks and then maybe be stretched out further apart again as we have to get numbers to remain stable for doctor to feel comfortable with that.

Hard to believe a month ago we were flying to LA and seeing Pacific Ocean for first time and then anxiously awaiting meeting and decorating with Duff Goldman. Updated her picture to show her Make-A-Wish trip....Time flies!!

Thanks for the continued love, support and prayers, it means so much!! Continued prayers for our family, medical family, Ronald McDonald family, all those who are waiting for that call. #DonateLife

September 30, 2016

Molly and I are home after her bloodwork and clinic and levels are good and doctors are happy!! Few med changes again, but its all good. Now if we could only get the paperwork fixed where they have dated as proper start date!! So that the financial stuff we've been told available can start helping, maybe!

We go back in two weeks, I think lol, I'm so losing track of times with everyone's schedules, if it's not on calendar I've no clue where we're to be!

We talked on way up that it was hard to believe this week on Aunt JoJo and Ben's birthday was Molly and Billie Joe's 10 month anniversary. So much has happened in 10 months, such sadness, joy, amazing opportunities, and meeting so many amazing people, we are so blessed! At today's visit we got to see people we used to be same clinic rotation.

Oh and Happy National Coffee day, and yes Molly and Mom enjoyed the discount today....not saying how much ;)

Thanks for the continued continued thoughts and prayers for our family, our medical family, all those who are waiting.

#DonateLife

September 22, 2016

We are home!! Molly we thought would be released first thing this morning to get back to school this afternoon at least, but it wasn't meant to be.

We will know more next week, but praying results stay good of the long term tests.

Found out why Molly's ear have been hurting, she's got not just an ear infection, but a double ear infection! Guess she's an over achiever!! I joked today, do what God Rest his soul Doctor Grace would've done, a big shot of antibiotics in the butt, her doctor laughed and said, we'll just run thru her IV site, lol!!

But she's got more meds and they're saying she'll be good to go!

Thank you for all the thoughts and prayers and we ask they continue since school has started and germs running amuck, Mom is concerned, so Masked Molly might be making a return at school nurses suggestion!

Please keep our family, our medical family, our friends, the Zapolski family who've lost their their mom/grandma and for Heather and baby Skylar, please lift them all in thoughts and prayers!

#DonateLife

#SleepInOurOwnBeds!!

September 20, 2016

Well Molly and I have had an eventful day with New nurses in the infusion center to get her 2nd dose of the one med today.

Sadly, Molly again reacted to the meds and is having a sleepover with her friends on 11G.

They're slowing down dosing and will give probably more Benadryl over night and then God willing we'll be outta here after a few blood tests in morning.

We had a great Make A Wish trip and Molly had great return, so this is another little bump in our path.

Molly told the Nurse Practitioner today "slow and steady wins the race" so well do this slower and have better outcome.

We made some new friends, get to see old friends and there's a reason we're not heading out tonight.

Continued prayers for our family, all our medical family, those families we met today and all those on 11G, and to all those waiting for the Gift of Life.

#DonateLife

September 6, 2016

We are waiting on call for one more level, that might mean medicine change, but everything looking good. Her levels are stable and where they want.

Want to share this as its said best by Molly's Doctor:

"Molly got her miracle transplant which takes her out of immediate End Stage Renal Failure (ESRF) but she will always be in End Stage Renal Disease (ESRD), which will always need monitoring!"

Hydrate, hydrate, hydrate is key for Billie Joe to seem to stay happy and poor Molly I know must feel like she could float away, as they want her to drink MINIMUM of 5 Liters, but would prefer 5 1/2 Liters of water EVERYDAY!! Not healthy for rest of us to drink that much, but a must for Molly.

She can restart school tomorrow and has few restrictions for gym, and waiting for that last call to know if she can do her M.A.W. Trip that's scheduled.

Happy at least levels are good so no stays this time!! We know we'll have two more day trips (God willing up and back in same day!)

Thanks for the continued love, prayers and support of our family and we ask for continued prayers for our Medical Team, our 11G team and families!

#DonateLife

September 5, 2016

Molly and I arrived safely at Ronald McDonald (after DD stops) in Syracuse and are heating our pizza for dinner. (We eat late on purpose since she can't eat until after her appt.). We thought they had cookie sheets or pizza pans, but no, so that'll be another thing to add to list for future donations. Thank God for Aluminum Foil, we McGvyered a pan!!

Traffic is crazy but took some pictures of our view coming up today to compare to next time (God willing at end of month!)

We opened doors to all kinds of city sounds, traffic and helicopters and both agreed we are country girls at heart!

Prayers for family and everyone at home and all those in hospital or have things that need Gods blessings! Prayers for us tomorrow and for our amazing medical team and all those that are on 11G. #DonateLife

September 4, 2016

Molly and I have been settling back home and getting back into family routines.

Best comment, when we pulled in driveway and hearing birds chirping and singing Molly says "I like hearing these birds better than ones in Syracuse (meaning all the helicopters and sirens)!" I agree!

It's so nice being all under one roof. And sleeping in our own beds is wonderful!! Reese's and Marshy are too funny together!!

Today we went shopping and momma got her nails done and Molly and I both got our hair trimmed.

Stocked kitchen with lots of fruits and veggies and after we pulled in driveway I realized other then lunch meat, I got no real meat for dinners, so I'll have to make return trip, ugh.

Mom and dad are tired and needing my Cool Azul!! Molly says she's tired too, but not a bad tired.

These restrictions

Hoping to get to church in morning but can't do lots of hugging and kissing, back to high fives or fist bumps for a bit.

Having a GF pizza party here tonight praying this crust we bought is good!

We bought Reese's some new toys, one of which is a hot dog squeaky toy and Margo says he's a cannibal.

Prayers for us all for remainder of family time until we go back God Willing for just the one night and great check up and home so Molly can start school and if it's right time for her M.A.W., or its to be rescheduled.

Prayers for all our medical family, all the families on 11G, and all those waiting for the Gift of Life!

#DonateLife

August 31, 2016

Molly and I are home after a long night!! We are thankful I had got Clare singing with Molly on my phone, we snuggled and played Clare over and over!

We got out around lunch time after visiting with Will and his dad and getting some Will Power shirts to help show him and his family support!! Prayers he can come home in 2 more weeks and then when gods perfect timing the bone marrow transplant happens!

Molly and I made realization today on way home, counting today we'll have been home for 6 days (or partial days), but out of them only 4 nights in our own beds for month of August.

Puppy and doggie kisses abounded when we got home!!

Family all together under one roof it feels wonderful!!

Lots to do but don't care tonight!!

Prayers for our family to get back in swing, for Molly and Billie Joe and further tests and levels. Prayers for our hospital families and our medical team. Prayers for all those waiting for the gift of life. #DonateLife

Thank you to everyone who's showed love, care, support, brought us things, sent us or family things, we truly appreciate everything and everyone!!

Team McVaugh

"It'll be what it'll be!"

August 30, 2016

Molly and I have had a long day. Praying we both can sleep tonight (Mom was wide awake until after 3 am and wanted to nap today but stayed awake). So hopefully we both get good sleep tonight.

New med gave us few bumps or bounces in our journey today but they made it work, and as Team McVaugh - "It'll be what it'll be!"

If all goes well tonight and blood work good tomorrow they are saying we'll be home for supper!

Molly had some art therapy today and the one doctor got her to smile every time he was here!!

If discharged tomorrow, we'll make return trip next week to check levels and final determination for things upcoming.

Please continue to pray for us and our family, our medical family, our fellow patients and their families, for all those back home who need prayers and for those waiting for the gift of life and those who make and or honor the wish of their loved one. #DonateLife

August 29, 2016

Molly and I had a good day, had its moments but good far outweighed the bad for sure!

Molly had her one med around 10 this morning and slept thru most, nurse said I think she's going to fall outta bed, as she's sliding her legs out.

She ate her lunch that Sadic brought! She's VERY happy Sadic is back as he knows her order and she's gets everything she needs!!

Got second meds this afternoon and didn't sleep afternoon away, and went with Clare and Megan (who is doing a rotate with Clare to see what Music therapy is all about) and they sang a variety of songs, one of which made mom cry, words just hit me.

Back to room, worked on her coloring book and Christmas pictures, yes she's coloring winter scenes. Dinner arrived and she's enjoying that.

We're hoping for quiet night! Praying my (momma's) headache goes away! Prayers for tomorrow for this new med and no adverse reactions! Asking for prayers for all the doctors to agree on what's best for Molly for upcoming plans already in works, for school and for us to get home and be able to remain hospital free! We want whatever is best for Molly in all!

Continued prayers for everyone here (docs/nurses/staff) and of course all Molly's other floor mates.

#DonateLife

August 29, 2016

Molly and I had a good and quiet day. Got a few things organized and trying to be ready for tomorrow.

Tomorrow she's back to the two meds and they have to put in new IV as hers finally didn't work today. Molly set new record with that one lasting more then 3 days! But tomorrow before things start she'll have to get new IV, which is not an easy thing on Molly. We've had PICU nurses and swat team nurses put the others in. We've said more than once, wished Aunt Sheryl were here to help with that!!

I've got on my phone, the Molly and Clare (music therapist) remake of "Rolling in the Deep" a song about Molly's veins and how they are deep and like to roll (Like Mommas), between that, using good ole Buzzy Bee, holding moms hand, and prayers we'll get this IV in!

Thank you to all for your continued love and support and prayers, we're not done on our journey, bumps and bruises but we're laughing until we're snorting, spitting water out our noses, laughing the Aunt Noralee or Aunt Teri laugh, just gotta laugh sometimes!

#DonateLife

With all our love from Syracuse,

Molly and Momma

All our love from home,

Daddy, Megan, Margo,

Marshy and Reese's

August 27, 2016

Molly and I have had a good day!

Her original kidney doctor is on this weekend and was nice to visit with him as he checked in on Molly! I was able to get a current picture with them, for the next scrapbook!

Molly's nurse Brooke sang good good morning Sunshine to her and I didn't get it on video but did get video of her singing to her at lunch.

We had visitors today and did Molly and I both good!! Emmett, Dianne, and Jo-Ann visited and Emmett loved the games up on 12th floor and we loved spending time with them and thank you for bringing me yummy food!

We came back upstairs and meet Molly's neighbor "C" and she was with nurses and just lonely. So Molly gave her her little Reese's she won last time at Bingo, and nurse Brooke said "That's a very special toy to Molly!" More then one nurse has told me Molly has such a loving heart! She left me to go eat dinner with her new friend and settled her to sleep.

Daddy came and visiting with him.

Molly came back for vitals and cried as her new friend is alone and she is going back and sit with her "so she won't be scared if she wakes up alone."

I can't say enough how proud I am of Molly and all she's going thru that she's still so loving and caring to others.

Hoping for good day again tomorrow and then back to meds again on Monday.

Prayers for us, our new friend, our medical teams, and everyone here in hospital. Prayers for all those being brought in by helicopter and their families.

So glad to hear that because of Molly another friend upon renewing her license checked the box!!! Thank you!!

Check that box, talk to your family

#DonateLife

August 27, 2016

This might be long.....

Molly had a rough night last night and day today. The testing she had done yesterday caused discomfort in late evening hours and into today. She has had a few further tests to be sure everything ok. Painful but ok.

Today with all going on in between her meds, they took her for one of above mentioned testing and she's had, like I said a rough day but blessedly was able to sleep this afternoon and while sleeping a few docs came in to check her.

This evening she's seeming to be rallying and we're praying for good evening and night.

This weekend she's got no tests or meds to our knowledge and they are telling us freedom for possibly middle of next week. (Mom's praying to sleep at home for her birthday!)

But the good news is the original visit and issue that Billie Joe was having, originally is almost undetectable and so far this new course of meds not showing improvement, but also not damage or anymore issues so we're taking that as a good. Docs working on next step and said they're in for long haul for Molly and Billie Joe's long term health.

Continued prayers for our family and all our medical teams and that they can have wisdom on next steps and that things work as supposed to. Prayers for momma for insanity she's already having, and is afraid will only get worse with insurances. Please pray for all those waiting and for the families that make the choice for giving the gift of life.

#DonateLife

All our love from Syracuse

Molly and Momma

And from home,

Daddy, Megan, Margo,

Marshy and Reese's

August 26, 2016

Molly and Momma have had long days but Molly's slept thru allot of the days lol

Tomorrow two more tests/meds and then break for weekend

Nurses and other staffing are great here and are so very good to us. They all check on Molly and also ask if they can do anything for momma.

Hoping tomorrow to get some outside air again either before or between things.

It's weird, our lives revolving around these walls and know the fairs (both Harford and NY state fairs) are going on but so far away from it, just doesn't seem real.

Thanks for all the love, prayers and support to our family, both here and at home. (Thank you Jeremy and Anna for yummy meal for Bill and girls)

Please continue to pray for us, our family here and at home, our hospital families and all those waiting for the call about the gift of life.

Check that box and talk to your family. #DonateLife

August 24, 2016

Molly and I had a quiet and lazy day today.

Just hanging out before bed, waiting for dad to post about the Harford Fair!!!

Remember to stop by the Marching Band Booth to get your funnel cake and milkshake and tell them Molly sent you!

Congrats to all who exhibited and got ribbons.

Molly pretty excited she heard her scrapbook on her transplant journey got a Purple Grand Champion ribbon. (She's already working on photos for the next installment.)

She's excited and proud of her sisters and their ribbons and awards as well as rest of our 4H Club-Franklin Hill Community!

Rest of week: lots of meds with few tests thrown in, but we'll get thru this!

Thank you for continued thoughts and prayers for our family, our medical team/family.

Remember to check that box on your license and talk to your family about your wishes!!

All our love

Molly and Mom

August 23, 2016

Molly resumed her meds today, one right after breakfast and one right after lunch and then slept allot of afternoon away.

If she doesn't get drinking I'm afraid I'll have to start singing, lol but having been sleeping hard to drink, so she's going to be drinking before bed.

Tomorrow is her off day with no big things going on.

Tomorrow is 4H day at the fair, please go check out all the hard work on projects the kids have done. Proud of our girls and our club!

Please continue to keep us in thoughts and prayers and our amazing nurses, doctors, cafeteria people, custodial, everyone who makes this place go so great. Prayers for all our other wing mates and their families.

And for Bill and girls home this week who are on crazy schedule with the fair.

We can feel all the love and support and appreciate them more then words can say

Please check that box and talk to your family.

August 22, 2016

Molly and I have had a great weekend. No big meds just her normal routines meds with few adjustments.

On Saturday, Daddy, Megan, and Margo came up to visit and we had great time. (Even though they didn't smuggle in Reese's) Time went to fast and it was time to go. But they brought mom food supplies and things from home and Molly is not DD deprived!!

On Sunday afternoon, Miss Jo-Ann and Kassie visited, brought us things from home, mommy Wendy's potatoes for treat and then we got more DD, so Molly can't say that she's DD deprived anymore, or for a few days lol.

Then Jeremy, Anna, Evie, Junie, and Colt stopped in!! Beautiful cards from kids and lots of hugs, love and laughter. See videos in post on fb.

Called home twice today, faced time once with Megan and later talked to daddy.

Tomorrow we start back on meds and pray labs show continued good progress

Prayers for us this upcoming week and for our family, ours docs, nurses, and other staff, and other patients up here and their families.

Prayers for Pastor King and his family.

Remember, check that box on your license, and talk to your family as a part of life

Our thanks and love to all!

Molly and Mom and

Dad, Megan, Margo, Marshy and Reese's

August 20, 2016

Molly had pretty good day yesterday and has been a lazy slug today sleeping in.

Her doctor asked how she can possible rest when she sleeps so strangly lol.

Waiting for daddy and her sissies to come today and asking them to smuggle in Reese's.

She's got weekend off from big meds so hoping for great weekend!

August 18, 2016

Molly has had a good day! Started off a little dizzy but meds can do that, but after breakfast she was doing good.

We had a great visit with moms friend "Blue Dolphin Gail" (because thats where we've met for lunch) and she was awesome and brought us DD!! We had a good time, laughs and just fun visit.

We walked the halls and Aunt Sheryl she sat in upright chair today for most of day.

Clare the music therapist came and Molly always enjoys her time with Clare, and she always makes fun times.

We went up to library for a few movies for tomorrow and even remembered our library card!

Stopped down in Performance center (Molly says Bingo room) as they had brought in food again (last night was Italian) and we were able to get chips and soda as main part wasn't GF, but that's ok, it's wonderful the Community Foundation does this for the families on the Peds floors.

Back to our room and just vegging!

Please continue to pray for our family, our medical team, the families here on our floors, all those waiting on transplant lists.

Thank you for caring about our family.

Remember stop in 4H building next week to see all the awesome projects from Susquehanna County 4Hers and stop by Montrose Marching Band Booth and get a funnel cake and on Monday, flavor of the day is: Creamsicle

(Molly said oh Man this sucks missing fair, but missing the milkshakes that's just not fair!!)

August 17, 2016

Molly and I had a rough day here in Syracuse. Meds overnight and new med started today that will repeat every other day for a bit. The newest med today afterwards made her feel not so good, but they told us they've already figured on changes on Friday.

We have best medical family up here. We've had two of the nurses give Molly things to scrapbook with over the course of our most recent stays, thank you Brooke and Debbie!! We've seen a scrapbook for a wedding gift that is beautiful!

Please continue to work pray for us all as we go thru our days and we know God is the Great Physician, but the devil sure seems to be putting up road blocks to swerve around or go over!

God Bless Molly and her smiles, the nurses said they know if she gives them smiles she's doing good.

Jill K., we've got room like the locker room, that needs water every once in awhile, didn't do last stay but today was pretty nasty, but again another part of our team came and helped and now room much nicer.

Thank you again for the love thoughts and prayers.

August 17, 2016

Molly started her night last night with new meds overnight. She had a long afternoon with plenty of interruptions with nurses and other staff wanting too see her 4H scrapbook. She tweaked and put finishing touches on it. She got lots of great compliments. Her doctor checked on her tonight and looked thru it, she gave Molly big hug and said how proud she was of Molly for all her hard work and what a beautiful job!

Right now she's getting meds overnight that leave her feeling yucky in the morning to try and fight inflammation with Billie Joe.

Her docs are going to be putting her on new course of medication (that I pray gets processed thru insurance correctly) that they'll do every other day but we're not sure if starting tomorrow or Thursday. So we don't know how long we'll be here, but it'll be for a bit.

Molly and I love and miss everyone (especially Reese's, whom she would like smuggled in, lol)

Please keep our family in thoughts and prayers it's hard being away from each other, but as our motto for Team McVaugh....It'll be what it will be!

Please also keep our amazing team of docs, nurses, techs, volunteers and other staff in prayers as they are so great to work with, and that they continue to have the answers.

We are blessed to be with amazing people who truly care about not only their patients but the families on 11G, too.

Please if at Harford Fair next week, stop into the 4H building and see at the amazing projects Susquehanna County 4H'ers have done! McVaugh's have two scrapbookers this year and a crafter!!

Oh while at Fair stop at Montrose Band Booth and get a milkshake and funnel cake!

August 15, 2016

Mom and I are back at Upstate and I had more testing for Billie Joe with levels and med changes. While some are improving, some staying level, others are still Wonkie, so I'm going to have some more tweaks with my meds and need prayers that they work and find the right fit with all levels.

Prayers for our team of nurses, doctors, techs, and anyone who helps us. Prayers for daddy and my sissies and our new baby Reese's whom mom and I miss very much!

Prayers for all the ER helicopter landings and families effected too, so far today we've heard 3.

Thank you for caring about our family, means allot to us all.

Molly and Mommy

And Daddy, Megan, Margo

Marshy and Reese's

August 10, 2016

WooHoo we are home!!!

Thank you for all thoughts and prayers! Now to get used to all med changes and settle back into routine!

We've got more visits upcoming and we know more testing to check her levels next week so we've got more trips in our future.

Molly and I were excited coming home to see a Donate Life license plate!!

I need time to be home and not ton of other stuff to do and get ours ordered!

Will keep updated as we go, feels strange to be outside the hospital walls, but ohhhh sooooooo good to be home!! Praying Molly and I both get great sleep tonight!

Love to all,

The McVaugh Jr family

all together again!!

August 5, 2016

Molly had good day yesterday and then a great day today.

She worked on scrapbooking for 4H that's about her port surgery and transplant journey. (Kinda poetic to be finishing it in hospital) but Mom's taking pics and if mom and dad can get photos developed and Molly get the pages done it'll be quite a large book of her journey.

Michelle, the Art Therapist was in today and was excited to look and thrilled with how Molly was keeping busy!

We meet her last night when we went to library last night for art time and we were thinking of Molly's sisters so our drawings are of Megan and Margo (I'm sure they'll be thrilled to see them!)

Made our call to Daddy and Margo with what's needed for us at AC Moore for when they visit!

Hope everyone has had a great Friday and we're sorry we missed the Blueberry festival and will miss the family reunion tomorrow but it's how it's to be.

Remember to check that box on your license and talk to your family when it's a part of life and not at time of loss.

Thank you again for all the love, support, and prayers for our family!

The McVaugh Jr family

August 3, 2016

Molly had rough morning with headache but she's feeling much better tonight.

We are hoping to go to Bingo tonight, see if she wins like she did last time we were here. We want to see if Bingo Mike is calling again.

We will be here until Monday at least, as they want to give her IV strength meds for a few days and test levels and then go to pill form.

Check up after being discharged in a week or two with possibility of lab work in between at home.

We're getting to see familiar faces and meeting lots of new ones and always on the look out for pretty ducks, right Miss Joy?

Thank you for all the love, support and prayers they mean the world to our family.

August 2, 2016

Well doctors have just been in....Good News, Billie Joe seems to be doing well and is healthy!! Praise God!!

Molly's body is adjusting to medicine changes, but not going as expected, so they want to monitor her here in the hospital while they make some more changes and be sure Molly's body is doing the right things.

Once released, we will need to come back up in few weeks to double check that Molly's levels still doing good.

Thank you to all for the continue, love, support and prayers.

Molly, Mommy and Daddy

(And my two sisters Megan and Margo)

August 2, 2016

We've had our 8 mth anniversary with Molly and Billie Joe on the 27th of July. Time is passing so quickly!!

We had to come to Syracuse for an extra appt. due to some numbers being off and we've had changes in meds and numbers not changing to where docs want.

So, Molly and I are in Upstate for the night and she's having some testing and IV fluids and we should know by late afternoon/ early evening what the next steps are.

We appreciate all good thoughts and prayers and love we can continue to get.

We're back seeing nurses and staff we've not seen in almost 8 mths.

Will try and update tomorrow evening as soon as we know anything.

All our love, Molly and mommy

June 21, 2016

Sitting here after Molly and Billie Joe's 6 wk check up and very happy with her check up and we are good to go until August, WooHoo!!

Might need one blood work check locally and again few changes and tweaks with meds but a great visit for us.

We are asking for prayers though for our friend Patrick who's been through transplants before and got a new kidney around same time as Molly did, but he's also been on waiting list for a pancreas. We stopped to see him, as he's a volunteer at hospital, and we see him walking down hallways hooked to IV pole....caught up with him and he said at noon today he's getting his pancreas transplant and we know this morning another young person rec'd a new kidney as Molly's doc had to take a call and order some testing for him. So if you could pray for the surgeons, Patrick, and this other young man, for the families that are waiting, like our friend Devan and Mrs. Jones, and for those who gave the gift of life!

Please think of Molly and the many others waiting and check that box on your license and talk to your family about your wishes.

May 27, 2016

6 months....6 months ago Molly was in surgery getting her new kidney Billie Joe! That was I think the longest 6 hours Bill and I ever had, but to Molly she said it felt like minutes, amazing!

Our lives have been so blessed with the gift of life our donors family made, a gift we can never repay, other than by Molly doing her part and staying healthy and never forgetting him and his family! Also, continuing to spread the word for the need for donors!!

We are truly blessed with friends, family, school, and community support.

Blessed...with love and support in so many ways, whether it was a click of like on a post, an encouraging word, text, email, a card, meal, gift card, special gifts, gifts of love or prayers, we just cannot thank you enough and many more ways that my mind is blanking on.

Our family has gone thru allot and continues to, but we also know it could be so much worse and what we've been thru is nothing compared to others in our community.

Our motto has been "It'll be what it'll be." We're going somedays moment by moment or day by day, but so thankful for how Molly is doing!

Please keep her in thoughts in prayers during these warm humid days, they've always been bad for her and we are in the great unknown on how her body and meds will play with the heat and sun.

I'm praying for a cooler or at least less humid Memorial Day so she can march in the parade as she wants to, to honor all those who served and didn't come home and their families.

Again, while your family is gathering this weekend, please talk to your family and friends about organ donation, use Molly as the example as without our miracle 6 mths ago, our path would have been very different. Please do the first step, check that box on drivers license, but also talk to friends and family, as they also have to agree. Make this decision as a part of living. If healthy enough, please consider being a living donor to help one of the thousands waiting for a kidney.

All our love,

Bill, Lisa,

Megan,

Molly and Billie Joe, and Margo

May 9, 2016

Beautiful sunny day in Syracuse!! After a long wait in both registration and lab we got to see the Dr. and she gave us news that unless others we know are sick or known bugs in school she can go UNMASKED.....

She's also allowed to go on chorus trip so that makes her very very happy!!

We have to come back in 6 weeks and waiting for call about lab work and might adjust meds but we can deal with that!!

So we are having a great day and can't wait to get home and celebrate our 18th Anniversary! (Wonder what's for dinner??)

April 11, 2016

Home from a trip to Syracuse and Billie Joe is behaving, and so is Molly!

We are waiting for few results to see if meds need to be adjusted, a couple of things talked about and making few changes or adjustments to a few things, but it's all good.

WooHoo, we don't have to go back for a month, unless we feel Molly's getting sick we don't even have to have local blood draws!! We go back on Mother's Day and appt on Bill and my 18th anniversary.

My wrist/hand very swollen after driving back and forth, but this too shall pass and doing therapy at home and 2 days a week in Binghamton.

Please continue to keep Molly in thoughts and prayers as school starts again tomorrow and it'll be back to the germ fest, so Masked Molly will be headed out in the morning with her sisters.

Keep all who are on waiting lists in your thoughts and prayers. We have so many friends and family that can use some extra prayers right now, too many to name, but God knows them all

Thanks for keeping up to date with Molly and Billie Joe! Praying for warm weather to get here and stay!

March 27, 2016

It's hard to believe the journey and blessings we've received over that last 4 months. March 25th was the 4 mth anniversary of finding out Molly was getting "Billie Jo" her new kidney!! As we waited and waited, celebrated the best and first Thanksgiving not all together as a family, but other girls with best of friends who are family! The separation was for the best reason we could ever imagine!! And that the anniversary of her new life with her new kidney falls on Easter, just makes me pause.

We have such joy and celebration and yet my heart just breaks for the other family who gave us this tremendous gift...as they to are dealing with a different kind of anniversary.

Again, my thoughts all jumbled and wish I was better with trying to get what I fully mean out. Thank you God for our blessings and for all you've done and continue to do with and for our family.

I'm sitting here awake as I was 4 mths ago, trying to tell myself to sleep and rest, trusting you to get us through. Today I'm still trusting and so thankful and we will celebrate with even more joy each day and holiday we have with our healthy Molly.

She has allot to do to maintain and not sure most could do it! All the water she's to drink, all the medications, all the adjustments....she's my hero!

I was told Saturday by a dear friend, that her youngest brought up the discussion of organ donation! Made me cry happy tears, that if Molly can help bring awareness and get people to register, help save lives of the thousands and thousands waiting then even if it's only one family talking it might be the pebble in the lake to make the ripple continue!! Please as you join together and celebrate the true meaning of Easter, take the time to say a prayer for all those waiting, for their families, and for those who give the gift of life!

Thank you for continuing to keep up with how Molly is doing.

She's battling a cold and I'm thinking allergies starting early with the great weather we've been having.

Again, Easter blessings to you all and thank you for keeping us in thoughts and prayers!

February 29, 2016

We've celebrated our 3 month anniversary for Molly and Billie Joe, so very thankful for the wonderful gift given to our family.

Today had her visit with the Doctor....We're afraid numbers are going to be off (with Molly being sent home sick and fighting that off and few other things can effect it), but doc told us to go home. We're just Praising God we're not be admitted and we might have to have blood redrawn within next week.

WooHoo, great news we aren't scheduled to come back to Syracuse until April!! Yes, I said APRIL!!! We will have to do blood work mid/late March and then come to Syracuse, in April!

Due to all germs at school, we now have note for Molly to wear her mask at school!

Please continue to keep us all in your thoughts and prayers and pray for those who are still waiting.

February 12, 2016

WooHoo, sooooo unbelievably excited and I'm sure you all will think we're nuts.....we've been having to have her go to the bathroom ever 2 hours during waking hours and we get Molly up during night every 3 hours to go to the bathroom. We've asked, especially as date for school getting closer, she needs more restful uninterrupted sleep, when can we stop the at least over night waking up? Just got call today from Ellen at transplant we NO longer have to get her up at night so we all can get a full nights sleep!!!! I laughed and said now my body is on that system so I hope I can sleep and not wake Molly out of habit.

God has been so good to us and Molly!!

Please continue to keep us in thoughts and prayers and all those still waiting, and those that give that gift of life.

February 8, 2016

We had busy weekend! We celebrated "Christmas in February" withNana and PopPop and Caleb and had gf homemade gravy, gf biscuits and Margo helped make a yummy chocolate chip trifle!!

Yummy BBQ from Boy Scouts troop 50 to have for dinner (delicious as always, look for their reminders....they pre-sell for Fathers Day)

We went to doctors today and got to see Patrick again (he also rec'd transplant around same time)!

Good visit, numbers doing good. Best part, we were "scheduled" to come back on 22nd so that would delay start of school by a day, so Dr. said she's going to push back Molly's appt for 1 week. So Molly can return to school on Monday, February 22nd and we return to Syracuse on Monday, February 29th! So at that point she'll be 3 months post transplant! Yahoo!!

Praying all the bugs etc remain away from our house!

Prayers for all those that still need a transplant and thank you to all for continued love, support, and prayers!

Have a great and blessed day!

January 28, 2016

It's hard to believe it's been 2 months ago today that Molly had her kidney transplant. We've had ups and downs as expected, but am so thankful more ups!!

We want to thank everyone who's helped us with everything and continue to pray and be there for us. Whether you sent card, food, called, texted, fb, visited, donated....Thank you just doesn't seem like enough.

We've been blessed with the best team from friends and family to that of our doctors, nurses, staff...Ronald McD house and staff and friends we made there, it's amazing how each person helped our Molly!

Each day we learn more about the new healthy Molly and thank god for Billy Joe doing his job.

I still wonder about her donor and his family and how they are doing. I pray they can get some peace knowing that they've helped Molly and our family and many others.Please continue to keep them in prayers.

And I hope and pray each person waiting on that list gets their gift of life soon.

Thank you again!!

January 25, 2016

What a great way to celebrate the 2 month anniversary of getting the call about Molly's kidney being available.....getting the news Billy Joe is behaving and we are now moved to bi-weekly visits here and on the weeks we don't come here we have labs done locally.

Few changes in meds and now have date to aim for return of school, and if others will allow she can return to activities as long as small groups before that date. Depending on situations we come to, if Molly must mask now and only if those exposed to sickness do they have to mask upon entering home.

But we are going to be starting new routines and some things still track daily and some things only have up track 3-4 days a week.

Amazing weather coming up here and hoping to have uneventful trip back. We can't say enough great things about Ronald McDonald House and its staff and our team at Transplant!

Thank you so much for continued prayers, love and support as we know that's what's helping us all get thru this! Please continue to pray for each donor family and all those still waiting.

January 19, 2016

We're back at Ronald McDonald house and just got the call from Molly's Doctor that Billy Joe is doing great! Reviewing a few things and now limited outings are allowed with Masked Molly! She went to church Sunday and was very happy to be able to do that!

Still masks and germ protocol so if you see her out and about fist bumps only allowed!

So we are on way home soon! Molly eating breakfast before we hit the road. Praying for good travels home!! Some roads up here just awful, but God's been helping to keep lights green for us to keep our momentum.

Thanks again for all the prayers, love and support! Prayers for all those waiting on the transplant lists and their families!

January 11, 2016

We are very happy to be leaving Syracuse and next week adjusting for the holiday, and lab being closed.

Today, Doctor says Billy Joe still is doing great!! Molly's numbers looking good and still adjusting intake amounts and we wait to double check on med level later today.

Being told possibly in near future she can go out as "Masked Molly". But still will be limited and no big groups and hugs etc. when that time comes. Only fist bumps!

Activities can resume as she can tolerate lifting etc. so it'll be a build up but again soon in small groups and masked.

Praying I didn't break my pinkie while in cast for wrist when I whacked it off bedside table, ouch!! Only I could manage this!

Thanks again for all love, support and prayers, we appreciate them.

Prayers continue for Devan and others waiting for the gift of life!

January 4, 2016

We are very happy to be leaving Syracuse and to continue only come back once a week! Doctor says Billy Joe is doing great!! Molly's numbers looking good and still adjusting intake amounts and we wait to double check on med level later today.

Being told possibly in two-three weeks she can go out as "Masked Molly". But still will be limited and no big groups and hugs etc. when that time comes.

Thanks again for all love, support and prayers, we continue to need them!

Praying for our friends at Ronald McDonald that their discharge later in week happens and their family can be home together after 60 days in hospital and NICU.

Prayers continue for Devan and others waiting for the gift of life!

Have a great day!

December 28, 2015

WooHoo Billy Joe is for sure coming out of his "dumb" phase. Molly's kidney function is doing great, other numbers looking good and we wait to be sure if meds need to change based on numbers that'll come this afternoon!!

Best part is we are now moved to once a week trips, we can sleep in our own beds for longer periods which will be wonderful!!

We saw Daniel, who also celebrated his gift of life anniversary the same dates as Molly, and it's nice to see him and the others each week in clinic.

We thank everyone for continued love, support and prayers and please pray for our friend Devan and so many others still waiting for their gift of life.

December 25, 2015

First I want to wish everyone a blessed, Merry Christmas!! Happy Birthday Jesus!

As I sit here and look back to a month and a half ago we were, worrying and praying for Molly and how it would work with her having Diaylsis at home? how would her body react to it? Fit into routines? Keep life as normal as possible for not only Molly, but Megan and Margo too. make her late for school? where were we going to store the 60+ boxes of supplies?? When were we going to have to have clinic before or after Christmas?

All these questions, which I know would have worked out as supposed to.

Monday, Nov. 23rd go in for Port/Cathe placement surgery and we had our bumps in road to recovery, so this delayed discharge. Getting that miraculous call, right after being told we were set to be discharged on Weds. Nov. 25th, what a Pre-Thanksgiving news!! Thinking Molly would be given gift of life on Thanksgiving, but waited until Friday, December 27th.

By the date it's one month since we got the call, by the day of week, it's been a month since Molly got her new kidney, which she's named Billy Joe!

Again, bumps in road and sure will continue down our new path with a healthy Molly! (In recovery I could see improvement in color and warmth of hands and feet! )

Still my momma heart so conflicted, so joyful for my baby girl, for our family, but I know today is so hard for another family! I pray they can get thru knowing their gifts of life, to so many, have helped give them get new healthy lives, for first time ever in Molly's case.

I know Gods got a perfect plan for Molly and I can't wait to see where it takes her.

From our family to yours, maybe everyone enjoy the day with their friends and family and treasure your time and celebrate Jesus's birthday! Merry Christmas!!

And, maybe while gathered, again not a subject people like to talk about, and you think checking that box on your license makes it so, but that's not the case....your family ultimately will decide if you will be an organ donor. Have the discussion as part of life, not during a time of dying or tragedy. Because without that happening Molly and many others would be having a VERY different Christmas today.

Thank you for continued prayers, love and support for our family. Please keep Devan and his need for his gift of life in your prayers. Please pray for all those that are in hospital and needing medical care this holiday and be with their families and the doctors, nurses and other staff that are working.

December 24, 2015

Merry Christmas Eve!! Billy Joe's doing good abc Molly's numbers still moving but Doctor told us to have a great but quiet holiday weekend at home and she'll see us next week :) so relieved we can come home!!

Stopping for coffee and praying not white knuckle driving on way home, also no mattress dodging or anything else.

Thanks to all for love, support snd prayers! We're getting closer to that once a week check up!!

Love and blessings to all!!

December 21, 2015

WooHoo, Billy Joe is started to get a little smarter and heading out of his dumb phase!!! Molly's numbers for kidney function doing great and having to wait to see about one other level if meds need to be adjusted as again that's normal part of transplant.

Dr. said she thought kidneys name is Billy Joel, and "she's not a fan of his", maybe why he's been so dumb! We laughed and said "No, Billy Joe, like country or two guy Names".

"Ooh, I like that much better!" She said with grin!

Working on figuring out which way insurance wants prescriptions and as you all know dealing with insurance always such a joy, NOT!

But we are home and we head back Wednesday for a Christmas Eve visit and pray Bill Joe's numbers stay good so Molly's home for Christmas.

Trip last night a little better, we left earlier and less truck traffic and today our biggest problem was the poor person transporting a box spring and mattresses and they came off car, felt terrible for them! We missed other cars but almost drove over parts of things and thank god tractor trailer behind us was able to avoid and avoid all other cars!

Thanks again for the continued, love, support, prayers, and just being there for us thru each part of our journey.

Molly's excited, yes excited, Mr. Carpenter coming this afternoon to start her Homebound instruction! She's hoping we can get brownies made by time he gets here!

Have a great Monday!!

December 17, 2015

Molly had a good visit and we wait for call if meds need to be changed again, but this is an ongoing process.

Checked out of Ronald McD and have our reservations set for next few visits. We will be bringing our pop tabs back up next time for them.

We are going to stop at new to us DD that Claire the music therapist suggested before the rainy trip home.

Thank you again for all the love, support and prayers. We need them to continue for Billy Joe to fully get out of his "dumb" phase that he's in.

Molly says "8 days to Christmas" with big cheesy grin...coming way to quick for mom!

December 14, 2015

Molly's appt went well. Docs happy and say Billy Joe still acting kind of dumb. Molly needs to drink even more to make him "wake up" fully and get smarter, Hahahaha but glad docs are happy!

On way to DD and then heading home

December 11, 2015

We saw some amazing Snowmen for a contest and got to vote for our top 3 choices (pictures to follow)

We saw Claire, the music therapist even though she told Molly "Now I thought I told you last time, next time I want to see you is at Wegman's, DD or somewhere like that!"

Molly got to visit with Santa and Mrs. Claus who gave her a stuffed kitty and he must've used his magical powers and granted her wish to be HOME!! Got back from visiting Santa, there was her lunch and the doctor came in and said you're numbers looking much better, we're changing one med and we'll see you at your Clinic Appt. next week. And they're changing amount she's got to drink, but thinking it'll all be well on Monday! I told Molly I think we should we pack a bag for just in case we've got to stay, hopefully we won't need it!

Quick call to daddy not to leave work early or drive up after work and we are home before he is!!

We will return to Syracuse Sunday night, but so thankful to get few nights sleep in our own beds!!

Thanks for all the love, support and prayers. We certainly need them to continue as we continue our journey!

December 11, 2015

Molly got pretty good rest, mom not so much lol.

She's been getting nonstop fluids and right now her numbers heading in direction they want.

We are in holding pattern to see what or how long we do this and she's not only getting IV but being told to drink, allot!

Thanks for all the love, support, prayers and just being there for us.

Santa making stop here today, so maybe we'll go see him and there's a decorated snowman contest we get to go vote on!

Will update more later

Love to all

December 10, 2015

Molly and I came last night, slept in little later then we should have (oops). No wonder they tell you to get here when they do or you sit and wait like we did.

Went for labs and over for clinic and God is good, he kept us here longer filling out paperwork needed for Molly, long enough for labs to be processed and find her one numbers is elevated and after long long wait they admitted her.

So we're back with our nursing and staffing friends on 11G in different room, so our view of Crouse Tower is different and Mom will post a picture.

They're giving me lots of IV fluids and we wait and see what the numbers show

So prayer warriors we need your help again / still to be with Molly and "Billy Joe" and that the docs like the numbers they see in morning. Be with Daddy, Megan, and Margo at home!

Thanks so much, for all the support, love and prayers!!

We will keep updated as we can as we travel another bump or curve in the road/path we are traveling! Love to all!!

December 7, 2015

Well we've done a first clinic appt. and Molly did great. They are changing meds which we've been told is normal and hoping only for week or so.

Did an ultrasound and got to see her new kidney "Billy Joe"

They had her do her pill box until we come back again and gave her a new bigger water bottle.

We are headed home.

Thank you all for continued support, thoughts and prayers.

December 5, 2015

It's been a whirlwind 24 hours, but so glad to be home and be able to get a couple nights sleep in our own beds before the back and forth trips start for clinics for Molly.

We all slept well and was nice to be home as family under one roof.

Started our new routines this morning with Molly and craziness as normal for her sisters, as they are at Marywood today for concerts, looking for wonderful concerts this evening thinking first starts at 7 pm for evening and some of afternoon concerts have already started. So proud of both Megan (playing the Marywood wind ensemble and helping with jr high bands there) and Margo for getting 4th chair Trumpet in the Honors Band for the jr high!

Each day we'll fall into better smoother routines and where to keep medical things, but it'll fall into place.

Thank you again to our prayer warriors (family and friends) as we move forward!

Hoping everyone having a great Saturday!

December 4, 2015

WooHoo, we are outta here!! Molly has been released tonight and we are on the way home!!! Praise God for all he's blessed our family with and for the amazing doctors, nurses, staff, from the custodial crew to the kitchen staff and everyone who helped and took care of our Molly!!

We are so thankful to all our prayer warriors, friends, family, everyone who's been there for us! Our journey has had many changes to what we thought was going to happen but God knew! We've got a long road with lots more trips back and forth in the upcoming months with lots of changes as we go.

We are on doctors orders on who can come and go in house for Mollys recovery! So please don't be offended, wish everyone could come and visit but sadly we can't risk it for Molly. Lots of new rules at the house and changes but it'll get done for Molly.

Continued prayers for Molly, our donor family, for our friend Devan and all those still waiting for that amazing phone call.

Much love and thanks!

December 4, 2015

Molly had good afternoon yesterday we found the fish tank, the chapel, in floor video game, library (got more DVDs and no daddy to try and work things) and guess what we had to call for tech support as wouldn't work but they almost had to take off wall to make work so not something we did!!

Watched Over the Hedge and thought of Margo allot!! Missing my hyper lovey daughter !!

The library cart stopped by and these books are donated for kids and she could pick a book and keep it.

Oh and musical therapist was in again and they wrote a parody to Molly's new kidney Billy Joe and she taught Molly few cords on guitar (yes Megan she's learning guitar!)

I also got rehearsals and "final cut" on phone.

Not good sleep night up every 2 hours for bathroom and then of course they didn't always to vitals at that time so she'd just settle back and then she'd be woke up again.

Dr. G was in this morning with part of transplant team and he's very happy with how she's doing and giving his ok for central line to be removed today and now we wait for nephrology and see what they say.

Will post pictures to my fb wall of our yesterday adventures.

Thanks for all the love, support, prayers we can't thank everyone enough. Remember prayers for our friend Devan and the others still waiting their gift of life.

December 3, 2015

Sorry for delay, I've started and got interrupted so many times.

Molly had a pretty good night but lights out was much earlier for Molly and even for Mom and those that know me, that's not a usual thing.

Both her doctors have been in and are happy with how things are going.

Drinking game is now over! Or, I won't double her intake as today she's going to be using the bathroom herself...no more "holding her pee" as we walk!!

Today up to find the fish tank and maybe back over to performance center to take picture of the beautiful Christmas tree and decorations. And checking out windows to see different views of the city!

Hoping the line comes out today or tomorrow and then she'll be feeling much better

We've met with Heidi from the Transplant team (who's had her new kidney for 14 Yrs.) and we discussed allot of things especially precautions for first month. Lots of precautions for awhile but first month is even more then normal. Learned about precaution with animals and Praise God another reason why we NEVER can have birds!! Molly can NOT be around them. Makes mom happy, as I'm NOT a bird person.

The one resident came in today and said first time she feels she's seeing and talking to the Real true Molly as she's finally feeling better (she started with her in after first surgery when having some discomfort). Woman from cafeteria spoke the me, so glad to see her color improve and that smile keep shining.

Again thanks for love, prayers, support, encouragement we feel it and thank you so much!! Have a great rest of the day!

December 2, 2015

Molly had a restless night with her O2 sensor not keeping up with her movements and they moved her from ET finger and tried on her big toe. But she's a musician tapping even in her sleep so that didn't work well, so half way thru the night they just gave up, and unhooked as it was more disruptive to her. After that she slept much better.

Molly ate a great GF breakfast with French toast, eggs, bacon, grapes, apple juice and chocolate milk (because a girl always needs her chocolate)

Our drinking game continues and if I finish mine before she does, she owes me a cup!!

Told to be up and moving every two hours either by to chair, around room, Laps in hall, or even masking up and going farther. Hear there's a fish tank upstairs... One lap down!

Missing daddy who had to go back to work today because you know, bills gotta be paid, but Megan and Margo will be happy to see him!! Thank you Jo-Ann, Eric and Kassie and as time goes you might get visitors in and off and Thanks Uncle Brian and Aunt sue for transport to Meg's lesson and practice.

Molly and I are both ditzy this morning they unhooked her from IV as she's drinking so well, but we still took the pole for our walk....when we got back and realized I said "Geesh Molly we could have just held your pee and walked." To which she says "Mom it's not good for you to hold your pee!!" Quite the comedian this morning!

Thought she was going to snap her fingers at me when she told me she needed water and that I was behind....but now I'm ahead!!

Watching the Dizzy channel (Disney) and some spin off show of Lion King.

Her lunch has arrived which is chicken breast with potatoes, grapes, pink lemonade, chocolate milk and chocolate pudding....she made horrible face at guy this morning when he told her green beans, lol.

Will try and post some of our adventures later

December 1, 2015

Sorry about my first post it cut off part way thru.....

Continuing from the surprise visit from Pastor Sara who always brings smiles to Molly's face (even bigger then normal)

She had already sat up and attempted her liquid breakfast which frankly her heart just wasn't into.

She went for a lap around the hall with Pastor Sara and Daddy honored his promise of looping the balloons to do the walk! (Pictures to follow)

Ok Aunt Sheryl, Molly says she's been up and in her chair at least 3 times, she's walked a few with more to come, she's done her breathing thingee where she's doing great!!

Ok, wish I'd gotten a picture of her face when she realized lunch was REAL food!! Oh my, chicken breast, mashed potatoes, chocolate pudding, yogurt, and more she was so happy!!

She was getting into bed to figure out what to do next when she got surprise visit #2 from our friend Devan (prayer warriors we need to pray they find him a kidney soon)

Again she walked another lap with him and had a great visit. Devan, thank you for coming between your dialysis visits, means allot that you made the trip up!

Settled for a quick rest and then awoke to visitor #3 Aunt Dianne who came for quick visit and while here her dinner was delivered! Which she got to pick herself and even breakfast for tomorrow!!

We're a little behind on water today where they want but we'll get there! I told her we'll have a drinking game....for every glass she drinks I'll drink two (at least while she's on catheter, then I can have access to bathroom without competition!!) After that comes out, we'll have to see! Sorry if it tmi for some.

Dinner tonight, again real food and very happy...Pork tenderloin, sweet potatoes, they gave her broccoli (that daddy enjoyed) she wanted carrots, pudding with whipped cream, grapes and chocolate milk, we have one very happy camper today!!!

Thank you for all the continued love, support and prayers!! We ask they continue for us, for a good night for Molly, the doctors, nurses, staff and other patients, continued prayers for our donors family. Please add our friend Devan to your prayers and that a donor is found soon!

Our love to all!! Molly and family

December 1, 2015

I'm sorry for delay updating today but we had great night last night!!! Best we've had yet!!

So-so morning especially when she saw more liquids for breakfast, but she got up in chair and tried eating even though her heart just wasn't in it!

She got a surprise visit from Pastor Sara (who always makes Molly smile even more

December 1, 2015

We've had the best day since we've been here, hard to believe it's been a full week since her first surgery!

She had good day with walks, eating some of her trays, drinking lots, and visit with musical therapist where we created a parody of Hello for Molly's new kidney.

We got an amazing visit with her sisters, Jo-Ann, Kassie and Caleb too. Delivery of things needed from home and few extra things too

November 30, 2015

We've had a quiet restful night! Praise the Lord! Her pain was manageable and she did great.

Her labs look good and things progressing nicely

Still waiting for docs to come in but they'd told us last night, as long as good night, goal for today up and walking and the transition from liquid diet to solids will start, but we've got to get liquids in fully for few meals.

She's literally dreaming of her GF English Muffin and PB and first thing she asked about upon waking up.

We still need those prayers for each day and transitions but hopefully we're on our next step up the ladder and we're so thankful for being at this point.

Love to all!

November 29, 2015

WooHoo!! We are back down on 11G and she's sleeping right now.

Plans are to slowly get up and move more each day and hopefully switch from liquid foods to "real" food!

Back with same nurses who know us already (and still want us anyway

November 29, 2015

Molly's had a rough night, but figuring it's her bowels (with her history of Hirschsprung's). The kidney looking good and her labs are doing great.

Her kidney Doctor very happy with things. He's ordered few changes with meds and if she wants to eat it's liquids. Depending on how she does she might move downstairs tonight but he feels definitely by tomorrow.

Prayers please continue for Molly, but also all staff in PICU units and other families as they as it seems with everything can be relatively quiet (omg nurses and EMTs freaking I used that Q word) but when they get busy it's not even just one or two cases it's many multiples and then trying to do their jobs and deal with families. Hard to watch it all, sitting there thankful my child not as bad, but prayers for everyone.

November 28, 2015

Molly is following doctors orders, is on liquids right now and that first drink of water was sooo good! She's switching between ginger ale and water.

She's got cleaned up and is now sitting in recliner I told her she'll have to kick daddy out of :)

She's done the ping pong ball thingee for short series and will be doing it once an hour. Daddy told her "if they couldn't find one they could always shoot spit balls at each other since we've got access to plenty of straws" she looks up and says as dry as anything "That's disgusting!!!" Bill and I burst out laughing.

Sitting in recliner and on fb (for short burst) then resting again.

Right now she's maintain and doing just what doctors say she should be and her nurse Dawn says she's a rockstar!!

Keep those prayers coming and also prayer for young man across the PICU who also got kidney transplant and got news on Thanksgiving day. Prayers to both donor families and all they are going through and their wonderful decision to grant the gift of life to so many people.

November 28, 2015

Molly had an amazing night with pain being managed and both sets of doctors have been in and are thrilled with how she's doing. Onward and upward, today Praise the Lord Molly gets to drink again and has had her first sips of water!!! Never tasted so good

November 27, 2015

Molly out of recovery and now in PICU and settled in. She'll be here possibly 2-3 days depending on how things go and then back down to other floor where she had been.

Prayers that new kidney continue to function without complications and for Mollys strength as we proceed. Please pray for Megan and Margo at home as they want to be with us but also need to be doing "normal" if they can.

Thank you and God Bless to Eric, Jo-Ann and Kassie for being home away from home. And again prayers for donor family as they gave us and so many others the gift of life in their time of grief.

Remembering when Molly was baby we had to ask for prayers for poop and now we need prayers for pee and no complications.

Thanks and love to all that are helping, supporting and love our girls!!

November 27, 2015

Tears of joy are streaming we've had both her kidney doctor and the transplant surgeon come out and everything went well, new kidney is in and looks good. We won't be able to see her for few hours and then off to PICU for at least one night and then back to 11G and the awesome nurses and staff we already know.

Praise God and thank you for all ❤️, prayers and support it means so much. Please continue them she's still got long road but she's taken major steps up on being fully healthy!

Please also remember prayers for donors family and the loss they are dealing with but the blessings they've given to our family and countless others is so wonderful and appreciated!

Love to all and will update as we know

November 27, 2015

Well our long wait to be taken to surgery is over, called down, prepped and waited again due to an ER surgery so Molly, Bill and I sat in a very quiet and empty recovery room but we soon had filled with giggles as we distracted her, 2 different shifts of docs from anesthesia talked to us and the guy she's got now is easy on eyes and we could listen to him talk sounds like from Australia. Molly spoke and giggled with Pastor Sara on phone (thank you Pastor Sara!) and then they came to get her with happy drugs administered and she's on her way to new kidney.

And now we wait some more.....

November 26, 2015

We're on hold waiting, unknown time could be overnight, could be in morning.

I'm trusting in God's perfect timing for when it happens and that all will be as it's supposed to.

Thank you for prayers for us, doctors and staff, but please also remember prayers for Mollys donors family

November 26, 2015

About 10 o'clock yesterday morning we received a call from Transplant Team asking if Molly was running any fevers and if we could get to Syracuse? My response was "We're at University Hospital, she's had her Diaylsis port/Cathe put in and we're supposed to be discharged today." transplant nurse says "Hold tight, we'll be down and will contact kidney docs and surgeon as we've got a potential donor for Molly"

We wait and around 1:30-2 o'clock room fills with Transplant team telling us more details and transplant doc looks me in eye and says "Mom if Molly were my daughter I'd do the surgery"

So we talk, they talk with Molly, Bill comes back with our lunch and he gets all filled in and again Doctor tells him "If my 15 year old daughter, I'd sign papers!"

God has put so many things lined up perfect and so many references to ER transplants and even kidney Doctor saying after Monday's surgery we now know some steps we need to do differently When transplant happens (this was before the call) and he said it like 3 times.

We found out around 9:00 pm that transplant was a go and Jo-Ann, Eric, Kassie had brought Megan and Margo up so we knew together as a family transplant was going to happen!! Many tears and joy and yet of sadness for other family.

We've had the time of Transplant change lots today and right now we are looking at 8 pm for start of operation process.

We are overcome with emotion and happiness for our family but so sad for the other family and so grateful that they are choosing to make the wonderful giving loving decision of the gift of life and his life will continue to help others for God Willing many many years to come.

Prayers requested for Our Donors family, for our family, our teams of doctors and nurses and staff that are truly amazing, to all in hospital, for our service man/woman who gives us so many rights and freedoms, to our Police, Fire, Ambulance, EMTs, please think of them and appreciate them and the holidays they work all the time!

2015 is a Happiest of Thanksgiving for our family and hope everyone has one too!

November 25, 2015

Mollys meds readjusted and things seeming to be working. She walked the floor once, opened some cards, and feel asleep as we didn't get much sleep last night. Going to try and lap floor again around 11:30.

Thanks all for good thoughts and prayers and I pray that decisions that have to be made by Bill and I and her team are what's best for Molly! And she continues to go up and not down...still have to ask her if she remembers the 3 guys who worked with / on her last night....