Searching...

No results found. Please try modifying your search.

We are sending this letter with heavy, yet hopeful hearts. As many of you know, our sweet beautiful middle daughter, Molly is in renal failure. She was born and diagnosed with Polycystic Kidney Disease, which was later changed to Multicystic Dysplastic Kidney Disease. In the past 18 months her kidney function has been steadily decreasing. She is going to be on dialysis until she receives a life-saving kidney transplant.

Molly is a loving and smart daughter, sister, granddaughter, niece and good friend to many. She is active in the band, loves to dance, loves archery, participates in all school functions, and volunteers to help others. At times it is hard to look at her and all that she does and remember how fragile her body is becoming. At the encouragement of her doctors and transplant team we are allowing her to do everything she feels she is capable of doing as long as she is able.

Updates (99)

August 29, 2018

Its been awhile for an update on Molly. We last went up on as School was getting out and then we’ve had the summer which was just busy with Molly working at Bible Conference, Megan moving out, running with appts for our family and dad and then Harford Fair project push to get books and posters ready to bam, yesterday was first day of Molly’s Senior year at vo-tech (Which she couldn’t miss) to today follow up appt in Syracuse, which meant she missed her first official day of Montrose High School as a senior. Molly shrugged, it’s ok I made it to vo-tech!!

We hope everyone had a great safe summer!

Molly and I went up last night, much later then we intended and my poor hubby for a SOS Call not once but twice from me, we finally get on road and had normal butt wads encounters on our drive (I swear the van attracts them)

Got to our home away from home, the Ronald McDonald House and
Ordered GF pizza because we both forgot to get our dinner around and as our day went we had more issues, let’s just say I was ready to scream and cry (which I did once we got up to our room) and I’ve still got to fight that battle tomorrow.

Molly and I watched Food Network watching of course….Kids Baking Championship with our favorite Duff!!!

I stayed up and just couldn’t sleep finally fell asleep to be woke up to the sound of siren after siren so I started praying for all involved.

Up this morning over to hospital after wake up call from Bill and after having a very long slow short trip thanks to guy who pulled out in front of me to turn his flashers on and go 5 miles an hour literally, grr! Finally get into parking garage and again literally pulling nose of van into a parking spot when Mr. Dark haired guy in purple scrubs decided he couldn’t wait and walked RIGHT in my path and seriously lucky I didn’t hit him, have heart attack of both!
We get in, lady at registration was rude about my photo on file (from 3 years ago when hair was still dark and much shorter) to ask me if that’s really me…um yes….onto next desk and provide them with new Insurance card which conveniently came in mail Monday! To wait and wait and wait (Yasmine, we missed you today, the lab doesn’t run right without you!)

Mollys doctor sees us still waiting for labs and says she might have to run between the two bldgs as she’s got appts in her regular office starting at 9….well she was late because we didn’t get called into transplant room until almost 9:20 or maybe she ran back and forth.

Talked allot about labs and Meds, waiting for current BW before making decisions. BW locally in one month and back in October.
Biggest relief for us, as long as Molly is a student whether high school or College, she can remain with her doctor and not have to change at age of 18 (which, gulp is only a few short weeks away)!

Go back to Ronald McDonald House eat breakfast, go back upstairs and wait for afternoon appt. I know there’s stuff I’m supposed to be doing but feeling like brain not processing all, so just laid back down. Molly not feeling good, she’s cold, yes cold, almost has heat on in room and is bundled up under all bedding from bed!

Head to next doctor, again discuss things we need to wait for BW, but let’s make this change to Meds and if readings off go back on, see you in 6 month’s but know, Call if need in between

Head back to Ronald McDonald to reheat our lunch (leftovers from last night) and then clear out room and wait for original doctor to call with ya or nay to go home. While waiting remembered one call I needed to make and left message.
Literally Molly and I decide by 3:30-3:45 we’re done going home no matter what, and just as ready to go check out doctor calls she likes how things look, we’re good to go. So we got on road to drive home with shift change/rush hour traffic.

Stopped at the Scoop in WP on way home, after all the stress of night before we deserved a treat!

Got home to Reese’s kissing her and trying to kiss me and Marshy jumping and wanting his attention too, hearing all about Margo’s first day back at Montrose (where guidance didn’t put her in any of her classes as on her schedule as far as teachers side) and her second day at vo-tech, which she loves just like Molly!

Praise God for good travels and visit even with lots of bumps in trip.

Please lift our friend Lynn and his family in thoughts and prayers as his brother just passed away.

Thank you for continued thoughts and prayers for our family, we truly know it’s God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Some days I wonder how it’s all going to work, juggling appointments, money, co-pays, battling with Insurance companies and pencil pushers, and so far we’re staying afloat!

#DonateLife
#DuffRules
#It’llBeWhatIt’llBe
#Molly&BillieJoeStrong

June 28, 2018

Oh the struggle of country girls sleeping in the city is a real thing….our room last night was on end of Ronald that faced the bigger intersection/stop light…and let’s just say traffic never stops in Syracuse!! But girls had fun in teen room last night and Snake Creek’s chicken BBQ was perfect timing for our food!!

Had Molly’s appt first thing and then late afternoon for Margo’s appt. and so thankful the doctors working together so we didn’t have two trips in same week!!

It’s been a very very long day but we had good day and thank god for Bill driving us this trip!!

We know Billie Joe likes to have Molly drink allot so always reminding her to drink!! I told her Della is always there saying Molly drink drink drink your water!!

So no big news which is good because nothing bad lol we’ll take that!!

Thank you Velvet for meeting us today and helping Bill and I out and that much appreciated Hug!!

April is National Donate Life Month please take the time to check the box to be an Organ Donor!! Organ Donation is such an easy thing to do and you can forever change families lives!

Thank you to all the medical staff and support staff who make our visits go smooth and do all things we need!

Thank you to everyone for continuing to lift our family in thoughts and prayers and support us thru all our craziness we couldn’t do it without you all!

Guestbook

October 17, 2018

Love you Molly and always here for you

Lisa McVaugh

February 7, 2017

You and your family are in our daily prayers. We appreciate you keeping us updated on Molly's health. Thank you and God Bless.

Annette

February 4, 2017

Prayers to Molly, Lisa and the whole family. God is with you.

Karen Blaisure

February 3, 2017

Wonderful news to hear you're home. Prayers answered again.

Nana and PopPop