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OUR ADVENTURE CONTINUES…..

Molly received her transplant and we are so thankful, but the transplant was not the end of our adventures… it is just the beginning. Molly Still needs your help.

Updates (100)

August 12, 2020

Well the adventures of Molly, Billie Jo and Mom continues with Monday supposed to be a day to Syracuse, which ended up allot longer then expected!

If you know me at all, I’m NOT a morning person, have trouble sleeping and allot of time go to bed as Bill getting up. So knowing I had to be up between 5-5:30 am and be on road by 6 is just not my idea of fun. Because Molly couldn’t eat before arrival so she could have fasting bloodwork meant I didn’t even do my coffee (truly not sure who was tortured more lol). Got to Upstate and thru all covid checks and stops to arrive a few minutes early!!

I knew this med was approved because I’d had a very long complicated call with insurance on Friday! So that was one less hurdle.

Get in Molly’s room with nurse from last time filling in today’s Nurse with all Molly’s history and signs to watch for and even had a reunion with the one Nurse Practitioner who’d treated Molly back in 2016 and remembered her reactions, so both were saying they were happy our doctor was being precautious and pre-medicating for possible reactions.

Get bloodwork done, things started, Molly inhaled her breakfast we’d brought, and then they started meds for day and first meds hit and Molly was out for about a 2 hour nap. But even though nurse checking vitals per protocol, I just couldn’t fall asleep.

Things were going well when we got to Molly reacting and things stopped for a bit and then med slowed and we knew we weren’t going to be done by time clinic closed at 4:30….so started things for a finish on the floor, not an admittance.

Got to see our friend Nurse Brooke who’s been with us since 2015 and we’ve had lots of fun and she’s truly a blessing in so many ways to our family!

My phone going crazy with things from home, and more insurance calls and another Angel at Upstate is Nyellka over in Transplant who’s been helping me with insurance things! Truly they care for you in so many ways!!

After being moved over to 12E for rest of meds, saw Molly’s Doctor who wrote orders and we thought discharge papers but because on floor we had to wait for resident which was way way longer and we left way later then we planned. And we’re truly not sure if she was officially admitted but we were officially discharged.

We stopped at Brooke’s where she blessed us with lots of scrapbooking supplies (remember August of 2016 the 4H scrapbook, Brooke was a part of that!) God bless her hubby John for loading it all in van and Molly had a quick sandwich and on the road again.

We pulled into our driveway at 11:30 pm and came in and did few things before crawling into bed because Molly had to be at work today at 9:30!

Today while she was working Nyellka and I were going to battle again for upcoming meds.

Tomorrow she’s buying me coffee, 7:30 am in Vestal too early for this mom!

We come back again in few weeks for another follow up with all her specialists and then a few days later for the next med.

We appreciate all the prayers and support as we are on another journey that we don’t know what full outcome will be!

#DonateLife #CheckthatBox

July 28, 2020

Well the adventures of Molly, Billie Jo and Mom continues with today supposed to being a half day to Syracuse, which ended up totally different.

We got up here by 8:30 am, not knowing insurance gave the go ahead for another med and not the med she needed today, grrr!

So yeah us, but our doctor and her staff argued with insurance for hours to get an ER approval and Insurance refused. So doctor said well med is needed today so give us permission to do as outpatient or you’re forcing us to admit her……we’re on 11G again so you see how that went.

Meds had to be slowed because of reactions she’s had before so thinking it’ll be really late before done with meds, still at 11:15 getting them. We get to sleep here, get up, and wait to be discharged and hopefully Molly will be allowed to go to work, which means go home to change her clothes and go to work.

Prayers for things to go smoothly overnight and no issues with discharge. We she how feels and what docs say before we know what we do with our Tuesday.

We come back again in few weeks for another follow up.

#DonateLife #CheckthatBox

Guestbook

October 13, 2018

Love you Molly and always here for you

Lisa McVaugh

February 6, 2017

You and your family are in our daily prayers. We appreciate you keeping us updated on Molly's health. Thank you and God Bless.

Annette

February 3, 2017

Prayers to Molly, Lisa and the whole family. God is with you.

Karen Blaisure

February 2, 2017

Wonderful news to hear you're home. Prayers answered again.

Nana and PopPop