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We are sending this letter with heavy, yet hopeful hearts. As many of you know, our sweet beautiful middle daughter, Molly is in renal failure. She was born and diagnosed with Polycystic Kidney Disease, which was later changed to Multicystic Dysplastic Kidney Disease. In the past 18 months her kidney function has been steadily decreasing. She is going to be on dialysis until she receives a life-saving kidney transplant.

Molly is a loving and smart daughter, sister, granddaughter, niece and good friend to many. She is active in the band, loves to dance, loves archery, participates in all school functions, and volunteers to help others. At times it is hard to look at her and all that she does and remember how fragile her body is becoming. At the encouragement of her doctors and transplant team we are allowing her to do everything she feels she is capable of doing as long as she is able.

Updates (98)

April 10, 2018

Oh the struggle of country girls sleeping in the city is a real thing….our room last night was on end of Ronald that faced the bigger intersection/stop light…and let’s just say traffic never stops in Syracuse!! But girls had fun in teen room last night and Snake Creek’s chicken BBQ was perfect timing for our food!!

Had Molly’s appt first thing and then late afternoon for Margo’s appt. and so thankful the doctors working together so we didn’t have two trips in same week!!

It’s been a very very long day but we had good day and thank god for Bill driving us this trip!!

We know Billie Joe likes to have Molly drink allot so always reminding her to drink!! I told her Della is always there saying Molly drink drink drink your water!!

So no big news which is good because nothing bad lol we’ll take that!!

Thank you Velvet for meeting us today and helping Bill and I out and that much appreciated Hug!!

April is National Donate Life Month please take the time to check the box to be an Organ Donor!! Organ Donation is such an easy thing to do and you can forever change families lives!

Thank you to all the medical staff and support staff who make our visits go smooth and do all things we need!

Thank you to everyone for continuing to lift our family in thoughts and prayers and support us thru all our craziness we couldn’t do it without you all!

February 14, 2018

Praising God for good weather and safe travels yesterday and today on way home (truck traffic was awful)

Molly had another check up and we got to stay over night at the Ronald McDonald House in Syracuse and ran into Montrose School family and spent part of evening with her! Hugs and prayers for you and Miss Stella!!

If you’ve never had to stay at Ronald McDonald be thankful….but I can truly not say ENOUGH great things about Ronald McDonald Houses!!! The love, support, “normalcy” (if you can have that going thru the variety of things you do when you need to be there) and just the nice place to stay with food and company if you want it or not! The staff and volunteers who make it all happen, the people who donate, the businesses who donate, thank you from the bottom of my heart!!
Ronald McDonald House becomes your home away from home and no matter how long after we “graduate out” we will always support them for being there for us and so many others in our community!!

We went to doctors today and was shocked this morning when it was colder at home then up in Syracuse!! I literally went with only my sweater this afternoon until home, then I needed my winter coat!

Oh and went back up to our room to have beautiful Valentines slide under door!! Again thank you RMH!!

Still waiting for results of Bloodwork but unless something funky we’re good with that doctor until August so that’s good!

Next appt., to our knowledge will be with both Molly and Margo and so thankful for doctors that are willing to work together to save us repeated trips around same time!!

Thank you for continued thoughts and prayers for our family, we truly know it’s God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life. Still trying to double and triple check that Molly’s billing being redone and processed correctly….continually told not to worry it’ll work out…..um but it’s been my battle and worry for over 2 years that’s not going to go away just because they say the date is fixed….I want to still know the true balance and figure out plans for paying! But I’m trying to!! Got my girl to dance so she was happy!

#DonateLife
#It’llBeWhatIt’llBe
#Molly&BillieJoeStrong

Guestbook

February 7, 2017

You and your family are in our daily prayers. We appreciate you keeping us updated on Molly's health. Thank you and God Bless.

Annette

February 4, 2017

Prayers to Molly, Lisa and the whole family. God is with you.

Karen Blaisure

February 3, 2017

Wonderful news to hear you're home. Prayers answered again.

Nana and PopPop

February 3, 2017

Prayers for you sweet girl

Bessie