Paul Mustol

Paul is an amazing kid who demonstrates perseverance every day. He has an insatiable curiosity, a fun sense of humor, and is a loving big brother to his younger sisters.

In 2015, Paul’s family received the news that he has Duchenne muscular dystrophy. DMD is a genetic disorder that results in a progressive loss of muscle strength. Most boys with DMD must use a wheelchair full-time by age 10-14. In addition to weakening in the skeletal muscles, the heart and respiratory system are also impacted. Currently, there is no cure for DMD but there are many ongoing clinical trials focused on finding better and better treatment for the disorder.

Paul will face many challenges throughout his life. Right now he moves more slowly than other boys his age; he often falls down and tires easily. He wears braces on his legs at night to stretch his leg muscles and maintain their function. He receives care from a team of specialists including a neurologist, cardiologist, pulmonologist, physical therapist, psychologist and others. He has regular tests to monitor his heart and lungs and takes daily medications to help slow the progression of the disease. He uses a wheelchair to reduce the amount of walking he has to do during the day and soon he will need a power wheelchair full time to get around independently. This will require an adapted living environment and an accessible means of transportation.

To help with the financial burden of Paul’s uninsured expenses, a fundraising campaign in his honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the South-Central Catastrophic Illness Fund, and are administered by Help Hope Live for illness-related expenses only. Please consider a contribution.

Thank you for your generosity and support.

The Family of Paul Mustol,