Paul was born in 2009 to his proud parents, David and Anna. He is a loving big brother to two younger sisters. With his dimpled smile and bright blue eyes, he exudes happiness. He is a clever child with a big imagination and an insatiable curiosity.
In 2015, Paul’s family received the devastating news that he has Duchenne muscular dystrophy. DMD is a fatal genetic disorder that results in a progressive loss of muscle strength. Most boys with DMD lose the ability to walk by age 10-14. They also experience weakening in the arms and all other skeletal muscles.The weakening of the muscles involves the heart muscle and the muscles involved with breathing. People with DMD may live into their twenties and thirties. There is no cure for DMD.
July 16, 2018
It has been a busy summer but we have felt God’s provision throughout all of the busyness. The sale of our home in San Antonio went smoothly and we have now relocated to Houston. We were able to find a one story home close to David’s new teaching job. It is much more accessible than our last house and will be easier to modify to accommodate Paul’s future needs.
We have started the process of finding new doctors and specialists for Paul in Houston. The medical care possibilities are much greater here and we already feel like Paul is benefitting from that. His certified Duchenne care clinic appointment in Colorado will be next week and we always appreciate the good care they give Paul there. Over this next year we will investigate the medical care in Houston and we may be able to centralize everything here with a neuromuscular clinic.
As with any transition, there has been some stress associated with adjusting. Paul has handled it well. He is still moving around well but we notice he falls more often and his walking takes more effort. We have used his manual wheelchair a lot and having it has enabled us to go out and enjoy activities as a family without worrying about Paul being too tired or about him falling. It also helps us take him around to his medical appointments and he will be able to use it at school to navigate about the building.
Thank you for your continued support and we hope you are enjoying the summer.
February 20, 2018
After a bout with the flu (despite the vaccine) and strep throat, Paul is doing well. We are thankful that he did not experience any complications and is completely recovered.
We are also thankful that we have been able to move forward in several areas of Paul’s care. The sores on his heels have healed and his new leg braces will be ready next week. In addition, his wheelchair order is being processed and we are hoping it will arrive by the end of this month. This is a process we began last summer and we have learned a lot along the way, namely that these things take a long time! Unfortunately the insurance denied our request for a power wheelchair, which is essential, because Paul has weakened muscles all over his body, not just in his legs. For now we are settling for the manual wheelchair while he borrows a powerchair at school. Soon we will appeal the denial for the powerchair. We are trying not to use all of the funds people have so generously donated on one single purchase because there are so many ongoing expenses and some home and vehicle modifications close on the horizon.
Most notable of all the things that have occurred over the last several weeks was the occasion of Paul’s 9th birthday! We all celebrated as a family with a special dinner at his favorite restaurant and a Yoshi cake. (Yoshi is a character from Super Mario Brothers and a stuffed version of him is a frequent companion to Paul). HAPPY BIRTHDAY, PAUL!
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July 18, 2018
Thank you for posting Paul's journey and updates. Each of you are in our prayers.
Sandy & Lynn McLemore
November 28, 2017
Paul is so full of life and joy. Lots of love and prayers are flowing his way!
September 2, 2017
Thinking of all of you... Happy start for school year for Paul and his sisters.
Sandy & Lynn
June 3, 2017
Thanks for posting the information about the family, school, and treatment. Prayers for all of you continue.
Lynn & Sandy M.