Emily Progin, Content Manager

[email protected] / 800.642.8399

Release: Immediate

$1,000+ RAISED TO HELP MEDICALLY FRAGILE 15-YEAR-OLD

“Dayton Is Dying…He Deserves the Chance to Live.”

At just 15 years old, Dayton Premeaux has already faced more medical challenges than most people experience in a lifetime. The teen is living with multiple rare diagnoses that have created a nightmare of daily symptoms, medical obstacles, and financial challenges for his loving and devoted family.

Through the nonprofit Help Hope Live, his family is fundraising for the extensive and urgent out-of-pocket costs associated with his care. $1,000 has already been raised towards their initial $35,000 goal.

“My name is Whitney, and I am writing this as a desperate mother.” That’s how Whitney Bledsoe opens her letter to the community about her beloved son.

15-year-old Dayton’s medically fragile state leads to daily obstacles for him and his family, from relentless pain to the inability to communicate his own discomfort verbally. Facing the overwhelming costs associated with his care, which insurance doesn’t fully cover, Whitney and Dayton’s father, Austin Premeaux, turned to their community for help.

They mobilized that cause through the trusted national nonprofit Help Hope Live. In less than a month, the community has responded to their cries for help with over $1,000 donated so far at: https://helphopelive.org/campaign/26211/

Despite Dayton’s immense medical challenges, Whitney says, “he is still showing us glimpses of his beautiful spirit through music, water play, and rare moments of peace.”

Whitney has become a warrior for her son’s care and wellbeing. “We’re fighting a broken system,” she explained. “While agencies debate, we are running out of time.”

The road has been physically and financially fraught for Dayton’s family. Dad Austin was a delivery driver and offshore fisherman who was laid off after Dayton’s health required intensive care and frequent hospital visits.

The family has relocated 3 times to find qualified help for Dayton. First, to New Braunfels. Second, back to dad Austin’s hometown of Biloxi. Finally, to Jackson. “We have searched coast-to-coast for specialized treatment,” mom explained. “Every state has different policies and programs, so we have to keep moving to find the care and support he needs.”

On September 9, Whitney shared the exciting news that their efforts had paid off, connecting with a caring physician who is committing to Dayton’s future health: “He is everything I had hoped and prayed for in a physician.”

Fundraising is the key link enabling a brighter, healthier future—for Dayton and his entire family. Daily expenses insurance doesn’t cover include parking, meals, medical lodging for treatment, and caregiving on top of regular household bills.

Unlike a GoFundMe campaign, donations to Help Hope Live are tax deductible to the extent allowed by law, and all funds raised will be administered by the nonprofit to cover verified medical and related expenses. Help Hope Live verifies medical and financial need for every patient.

Help Hope Live is a national nonprofit that specializes in engaging communities in secure, tax-deductible fundraising campaigns for people who need a transplant or are affected by a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised over $193 million to pay patient expenses, assisting more than 25,000 patient families.  ###

Written by Emily Progin

Permobil logo

Permobil

The Do Gooders logo

The Do Gooders

Rosenblatt Foundation logo

The Esther & Pedro Rosenblatt Foundation 

Lindo Foundation logo

Lindo Foundation

Costco logo

Costco

Foxwynd logo

Foxwynd Foundation

SureHands Lift & Care logo

SureHands Lift & Care

Stout logo

Stout

Kennedy Krieger International Center for Spinal Cord Injury logo

Kennedy Krieger International Center for Spinal Cord Injury

Jefferson Health logo

Jefferson Health

Independence Blue Cross logo

Independence Blue Cross

DigiStream logo

DigiStream

Glenmede logo

Glenmede

Brandywine Realty Trust

United Access logo

United Access

Gift of Life Howie's House logo

Gift of Life Howie’s House

Transplant Alliance Foundation logo

Transplant Alliance Foundation

Bridge to Mobility logo

Bridge to Mobility

Christopher & Dana Reeve Foundation logo

Reeve Foundation

ADT Medical Alert logo

ADT Medical Alert

Get immediate medical assistance at a push of a button. Take $6 off with code: HHL6. Not available in Puerto Rico.

Feeldom logo

Feeldom

7% off all products excluding pre-orders, promotional discounts, or accessory items.

Smart Adaptive Clothing logo

Smart Adaptive Clothing

10% off – Contact Help Hope Live for code

Patti + Ricky logo

Patti + Ricky

10% off with code HelpHopeLive10

Reboundwear logo

Reboundwear

15% off with code HHL

BILLY Footwear

20% off applied at checkout (click on BILLY logo to apply special pricing and start shopping)

Ex N Flex logo

Ex N’ Flex

Movement for Life. 10% discount on EF-250 Leg Range of Motion Therapy Device

WheelEEZ

$200 Rebate on Sandcruiser® and Sandiper® All-Terrain Beach Chairs

Active Hands logo

Active Hands

10% off – Contact Help Hope Live for code

Ultimate Workout and Recovery logo

Ultimate Workout and Recovery

10% off Latex Free Base Edition

VitaGlide

Improve your health with a great cardio-strengthening-conditioning workout! Enjoy a $200 Rebate when you mention Help Hope Live.

Cherry Wheels logo

Cherry Wheels

Cherry Wheels creates stylish, expressive wheel covers that empower wheelchair users of all ages to showcase their personality with pride. Get 10% off with code HHL10.

inclu design logo

The LapSnap

A versatile, adaptive basket for individuals who use wheelchairs, prioritizing comfort and independence for grocery shopping, laundry, or gardening. Get $15 off with code: HHL15

Spinergy logo

Spinergy

Wheelchair wheels with PBO spoke technology
10% off products with code: HOPE10. Free shipping within the USA.

Vapor Wheels logo

Vapor Wheels

Wheelchair Wheels Built with Bike Technology. 10% off with code: HELPHOPELIVE. Free shipping within the US.

Wheelie Cool Stuff logo

Wheelie Cool Stuff

10% off with code: HELPHOPELIVE.
Free shipping within the US.

Frog Legs logo

Frog Legs

Global leader in shock absorbing forks for wheelchairs. Use code HHL10 or click the logo to auto apply a 10% discount to your cart.

Rollx Vans logo

Rollx Vans

$1,000 Instant Rebate

global

Global Genes Alliance

Born to connect, empower and inspire the rare disease community.

First Trust Bank Logo

Firstrust Bank

Philadelphia’s Hometown Bank℠

abilities

Abilities Expo

The event for the disability community

comms

Prelude Solutions

Your first step to optimized communications

KYW Newsradio 1060

All news, and all that matters to you

Walgreens Specialty Pharmacy

Consult with specially-trained pharmacists. Get your medications for pickup or delivery.

ams vans

AMS VANS

One of the largest mobility dealers in the U.S.

$500 Instant Rebate

VMI logo and tagline

Vantage Mobility International

Building leading-edge mobility products

$1,000 Instant Rebate

MobilityWorks Logo - be there

MobilityWorks

Accessibility for all: Helping people connect with who and what matters most