Spinal cord injury survivor Frank Guirlinger is pictured using a walker upright. He has light skin and gray hair. The woman next to him wears athletic gear and has light skin and blonde hair. To the left of the photo, a sunburst graphic reads Mobility Matters with a Help Hope Live logo in the corner.
Spinal cord injury survivor Frank Guirlinger is pictured using a walker upright. He has light skin and gray hair. The woman next to him wears athletic gear and has light skin and blonde hair. To the left of the photo, a sunburst graphic reads Mobility Matters with a Help Hope Live logo in the corner.

“He was dealt a hand that not many of us could handle.”

Frank Guirlinger was a construction entrepreneur working about 20 hours per day and raising a family. Frank prioritized physical fitness and caring for his body. However, with a heavy workload that included demanding physical labor, he started to feel overworked, run down, and sick.

Weeks of back pain were misdiagnosed as a temporary health issue. He was prescribed pain relievers, which masked his rising fever.

Overnight, Frank was robbed of his mobility as he experienced a life-changing medical event.

A Medical Crisis Changed Everything

“One morning, I got up and dropped to the floor.”

Frank was living with a life-threatening spinal cord abscess. The diagnosis carries a high risk of death even when it’s caught early.

While emergency medical care stabilized Frank and saved his life, he was paralyzed from the neck down. He spent 100 days in the hospital receiving intensive therapy and medical care.

Frank Guirlinger is in the hospital after his spinal cord injury. He has light skin, gray hair, a short gray beard, and a neck brace and is wearing a hospital gown.

Facing Life with Paralysis—and a Dire Prognosis

When he left the hospital, Frank could only move his right hand.

The prognosis was dire: his medical team told him he may make some limited progress over a year of intensive rehabilitation, but after that, his mobility would never improve. As he heard this news, Frank asked himself:

“Why would I settle for that?”

A physical fitness fanatic pre-injury, Frank knew what the human body was capable of. He committed to intensive recovery—and hope.

Frank is seated in his black power chair with a brace around his neck. He has light skin and gray hair. Three men stand beside his chair and smile. They are outside of a rehabilitation facility.

The Cost of Life with a Spinal Cord Injury

On top of medical care and home health equipment, Frank’s intensive rehabilitation would cost $2,700 per week to maintain.

“This type of recovery is never fully covered by insurance.”

With no way to cover backup transportation, Frank became reliant on a single accessible vehicle. At one point, he watched his 13-year-old daughter change a tire so they could make it home. An active parent and consistent provider, Frank felt helpless—limited by his mobility and unable to assist her.

Medical Fundraising and Community Support

That’s when friends stepped in to offer help at his time of need.

In August 2019, Frank’s friends helped launch a fundraising campaign in his honor with Help Hope Live. They raised $8,000 to assist with the most immediate costs associated with his paralysis recovery journey.

The assistance lifted some of the immense financial burden off of Frank’s family—providing a lifeline and a source of hope.

A screenshot of Frank's Help Hope Live Campaign Page and Guestbook. The Campaign Page features a circular photo of Frank, who has light skin, gray hair, and a short gray beard. The page reads Verified: Frank J Guirlinger. Commerce Township, MI. Great Lakes Catastrophic Injury Fund. $23,553 of $50,000 goal. The Guestbook features two messages from October 9 and October 7, 2019. The first message reads

Hitting a Wall—and Fighting Forward

While diligently pursuing conventional rehabilitation, Frank began to hit a wall. He pivoted to focus on other potential pathways, including nutrition management and holistic therapies. As COVID-19 struck the nation, he took over his own training and physical recovery at home.

“I kept fighting forward—every which way.”

After four years, Frank unlocked a future that defied his prognosis. He became fully independent. He regained personal function and enough movement to care for his immediate needs, from dressing himself to feeding himself and beyond. He can now get up and walk using a walker instead of a wheelchair. When his accessible van broke down, Frank even re-learned how to drive a standard vehicle out of necessity.

Spinal cord injury survivor Frank Guirlinger stands with assistance and gives a thumbs-up sign. He has light skin, a light gray short-cropped beard, and dark hair. He stands beside a young adult as a man helps to stabilize his legs. All are smiling.

Staying Grounded with Two Key Learnings

Two learnings helped Frank stay on course mentally, emotionally, and spiritually as he battled for mobility and independence.

First, a positive thought and a negative thought can’t occupy the same mind at the same time. “I don’t dwell on anything but solutions and education. I have a 5-minute pity party when something goes wrong because I’m a human being, but then I replace those thoughts with positive thoughts.”

“I don’t think about what I can’t do. I think about what I can do.”

Second, gratitude is everything.

“You just don’t know how lucky you are to be able to fill up a gas tank until your kids are filling a cup with pennies and nickels for gas to get to school.”

Before the injury, Frank says he knew intellectually how blessed he was. Today, gratitude has new meaning to him—amplified to a new level of appreciation.

“You don’t know how good it is to scratch your own face until you can’t.”

Life Today: Tears of Sadness to Tears of Joy

Today, Frank’s community has raised over $23,000 in his honor—and he says:

“I am loving life.”

Frank Guirlinger sits in a pool wearing a long-sleeved swim shirt and a gray flotation vest. He has light skin and gray hair. The woman in the pool to his right has brown hair, light skin, and a turquoise bikini.

Frank considers faith and community support to be the two pillars of his paralysis recovery journey. Even as his independence and mobility have evolved, friends remain ready to step in.

When Frank’s accessible van died “a rather dramatic death” and he began to experience the threat of losing his job as a result, it was their time to shine once again. They donated their time, money, and trade skills to make the repairs needed to get Frank back on the road.

“It was a desperate situation—but thanks to them, it’s been amazing.”

In a selfie, Frank is seated in his vehicle as two men in a shop setting discuss repairs.
Frank is seated in his modified adaptive truck outside with his mobility device next to him, ready for a transfer.
A forklift outdoors lifts a portion of an accessible vehicle frame for repairs.
Construction in progress on Frank's adaptive vehicle. An outdoor photo of heavy metal framework, a small forklift, and several men at work.

Hope Isn’t Just Personal

Frank’s hope for the future extends beyond meeting his immediate needs. He wants to talk to young men in his area who have survived spinal cord injuries and introduce a new vision of the future—even after they’ve received a limited medical prognosis.

“They saved my life with modern medicine, but when that hit a dead end, we pivoted. If you hit a plateau, explore a new pathway.”

Frank is realistic about the challenges he still faces—but:

“When I’m about ready to cry tears from being sad, they turn to tears of joy. A lot of beautiful people have stepped in.”

Loved ones helped Frank find the beautiful and the hopeful in the midst of hardship.

“The most beautiful thing has been all the people who have contributed to the recovery and supported my family. People have come through and assisted us in our need.”

Spinal cord injury survivor Frank Guirlinger is pictured using a walker upright. He has light skin and gray hair. The woman next to him wears athletic gear and has light skin and blonde hair.

These insights on Frank’s journey come from his interview with Jeff Sloan for the Pre W. Smith Show. His community will continue to rely on our trusted medical fundraising for a lifetime of injury-related expenses at helphopelive.org.

Photos for this post were provided by our client, a resident of Michigan where the use of cannabis is legal for residents 21 and older. Inclusion of these images does not imply endorsement. 

Written by Emily Progin

Permobil logo

Permobil

The Do Gooders logo

The Do Gooders

Rosenblatt Foundation logo

The Esther & Pedro Rosenblatt Foundation 

Lindo Foundation logo

Lindo Foundation

Costco logo

Costco

Foxwynd logo

Foxwynd Foundation

SureHands Lift & Care logo

SureHands Lift & Care

Stout logo

Stout

Kennedy Krieger International Center for Spinal Cord Injury logo

Kennedy Krieger International Center for Spinal Cord Injury

Jefferson Health logo

Jefferson Health

Independence Blue Cross logo

Independence Blue Cross

DigiStream logo

DigiStream

Glenmede logo

Glenmede

Brandywine Realty Trust

United Access logo

United Access

Gift of Life Howie's House logo

Gift of Life Howie’s House

Transplant Alliance Foundation logo

Transplant Alliance Foundation

Bridge to Mobility logo

Bridge to Mobility

Christopher & Dana Reeve Foundation logo

Reeve Foundation

ADT Medical Alert logo

ADT Medical Alert

Get immediate medical assistance at a push of a button. Take $6 off with code: HHL6. Not available in Puerto Rico.

Feeldom logo

Feeldom

7% off all products excluding pre-orders, promotional discounts, or accessory items.

Smart Adaptive Clothing logo

Smart Adaptive Clothing

10% off – Contact Help Hope Live for code

Patti + Ricky logo

Patti + Ricky

10% off with code HelpHopeLive10

Reboundwear logo

Reboundwear

15% off with code HHL

BILLY Footwear

20% off applied at checkout (click on BILLY logo to apply special pricing and start shopping)

Ex N Flex logo

Ex N’ Flex

Movement for Life. 10% discount on EF-250 Leg Range of Motion Therapy Device

WheelEEZ

$200 Rebate on Sandcruiser® and Sandiper® All-Terrain Beach Chairs

Active Hands logo

Active Hands

10% off – Contact Help Hope Live for code

Ultimate Workout and Recovery logo

Ultimate Workout and Recovery

10% off Latex Free Base Edition

VitaGlide

Improve your health with a great cardio-strengthening-conditioning workout! Enjoy a $200 Rebate when you mention Help Hope Live.

Cherry Wheels logo

Cherry Wheels

Cherry Wheels creates stylish, expressive wheel covers that empower wheelchair users of all ages to showcase their personality with pride. Get 10% off with code HHL10.

inclu design logo

The LapSnap

A versatile, adaptive basket for individuals who use wheelchairs, prioritizing comfort and independence for grocery shopping, laundry, or gardening. Get $15 off with code: HHL15

Spinergy logo

Spinergy

Wheelchair wheels with PBO spoke technology
10% off products with code: HOPE10. Free shipping within the USA.

Vapor Wheels logo

Vapor Wheels

Wheelchair Wheels Built with Bike Technology. 10% off with code: HELPHOPELIVE. Free shipping within the US.

Wheelie Cool Stuff logo

Wheelie Cool Stuff

10% off with code: HELPHOPELIVE.
Free shipping within the US.

Frog Legs logo

Frog Legs

Global leader in shock absorbing forks for wheelchairs. Use code HHL10 or click the logo to auto apply a 10% discount to your cart.

Rollx Vans logo

Rollx Vans

$1,000 Instant Rebate

global

Global Genes Alliance

Born to connect, empower and inspire the rare disease community.

First Trust Bank Logo

Firstrust Bank

Philadelphia’s Hometown Bank℠

abilities

Abilities Expo

The event for the disability community

comms

Prelude Solutions

Your first step to optimized communications

KYW Newsradio 1060

All news, and all that matters to you

Walgreens Specialty Pharmacy

Consult with specially-trained pharmacists. Get your medications for pickup or delivery.

ams vans

AMS VANS

One of the largest mobility dealers in the U.S.

$500 Instant Rebate

VMI logo and tagline

Vantage Mobility International

Building leading-edge mobility products

$1,000 Instant Rebate

MobilityWorks Logo - be there

MobilityWorks

Accessibility for all: Helping people connect with who and what matters most