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John Pilon is a 59 year old man who is very ill. After suffering multiple heart attacks, and chronic heart failure, a second heart transplant is his only hope for survival.
John is a father of two girls, and has spent years being a protector, provider, teacher and hero for them. One of his daughters is learning disabled and John has made helping her through her daily life struggles, one of his top priorities.
Transplants are life saving but very expensive.
Family and friends of John Pilon are raising money to pay for uninsured medical expenses associated with transplantation.
This fundraising page is updated by his youngest daughter, Korey Pilon.
John has chosen to fundraise with Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by law for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
John's surgery for his new impella pump went well! Unfortunately he was not able to hold his own breathing so they had to intubate him.
Also, some of you may know that John has been off Dialysis for a few weeks now. Unfortunately he had to restart Dialysis this past weekend.
John's Impella pump will be replaced tomorrow morning, his current pump keeps sending off alarms...
John is still doing well, his feet are severely swollen right now from his body retaining fluids. He has on compression socks to help it go down. Other than that he’s stable and in good spirits!
John’s RSV is officially gone, and he’s off dialysis! Over the past few weeks John was ventilated trying to get the mold and fluid out of his lungs but he’s really made a turn around! His white blood cell count is also back to normal! ❤️
John is officially on Dialysis 24/7, his kidneys have essentially stopped working. He has a new heart pump in called the Impella. It’s supposed to work harder than his first so we’re hoping for fast results. He still has a lot of fluid on his lungs and can’t breath on his own.
John was just recently diagnosed with RSV (Respiratory Syncytial Virus) brought on by his weakened immune system. He also currently has a lot of fluid on his lungs and they have inserted dialysis line to help with that. He will start dialysis once they are sure the line has been placed correctly. A few weeks ago doctors thought maybe his kidneys would be able to make it through the heart transplant and that a transplant for them may not be as urgent but after this recent update they no longer think the kidneys will be able to make it that long. Thank you all so much for your support!
Sorry I haven’t updated in a while! There’s not much to report, just a lot of waiting! In other news, on April 7th there will be a benefit held at Tin Cup Sports Bar in Huffman Texas from Noon to 6pm. There will be a raffle and a silent auction! More news to follow!
John’s heart pump ruptured the other night so they had to replace it. All is well right now, just waiting for a heart to come!
John has officially been accepted on to the transplant list for a heart and a kidney! He’s a level 1A wich means he’s considered to be one of the most critical, unfortunately this process could still take a couple of months, so he still has a long way to go! Thank you again for everyone’s support!
Today is John's 59th Birthday! We're still waiting to hear if he's been officially accepted to be a heart transplant recipient. Doctors are currently running more tests on his kidneys to see if a kidney transplant might be needed as well. Thank you to everyone for your support and donations! We'll continue to keep everyone up to date!
The doctors have deiced to remove his heart pump (that's currently in his groin) tomorrow and plan on transferring it into his chest later in the week. Doctors meet tomorrow to discuss the possibility of officially putting him on the transplant list!
After consulting with doctors, they're discussing moving his pump up to chest. It is now currently in his right leg. The decision should be made Monday.
John was seen by neurologist today to set up an order for CT Scan. We found out that during his last visit at Memorial Herman he suffered a thalamic stroke and it went unreported to us until now.
John was admitted at Methodist hospital yesterday to have a heart pump inserted and is currently in the Critical Care Unit.
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I am here to memorialize that as of today, you have been gone from us for three months. I look at your pictures and still can\'t believe it, John. You are so missed - far more than you would ever believe. I always found comfort in being able to talk with you about our daughters. You always helped ease my mind when I was worried about one or both of them, which was frequent. It still is. It is a strange feeling to be their only living parent. I play old voicemails I have from you just to hear your voice. As I listen, I find myself shaking my head in disbelief that your fight is really over. I know your battle was long and saw how difficult life became for you. I pray you did not suffer in your last moments on this earth. I am tormented at the thought that you might have. I wish I could talk with you one more time. I don\'t even know for sure what I would say. I would just cherish your presence and make sure you know how much you were loved while you were with us. I hope you are resting in peace. Your daughters and I miss you. 90 days now living with the absence of your energy, fight, stubbornness and spirit. It makes my heart hurt for our girls. Sending all our love to Heaven for you, John.
Julie Pilon
Praying for all the best to you John!
Kathryn Tardiff
Thinking of you, keeping you in my thoughts and prayers <3
Maureen Cushing Butler
I plan on attending. I love you brother.
Dennis Pilon
Keeping you in our prayers!
Meij family
John: I hope you are feeling better and get thehelp you need
Terry Cushing
I love u dad!!! ❤️
Kasey
God can do more than you can ask or imagine. Praying for you always, John.
Julie
Julie Pilon
Love you dad!
Korey
Make checks payable to:
Help Hope Live
Note in memo:
In honor of John Pilon
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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