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Jacob has a story straight from a movie. His is the story of a 30 year old man (a Marine Vet) who woke up in 2020 after 8 years of being in a coma. For the last eight years Jacob had no communication with the outside world, however, in January last year, the staff at the community where Jacob lives began to notice he was tracking with his eyes. Amazingly after eight years, Jacob was “awake”. However, even though he was awake he was unable to move and unable to speak. He has a syndrome called Locked in Syndrome (LiS). LiS is a condition in which a patient is 100% aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for eye movements. With the support of the staff at his community, they have developed a manual system of communication where Jacob spells one letter at a time and the other person recites the letters until the correct letter is reached. Slowly they formed a communication system and are able to talk through Jacob focusing on letters on a board and the other individual spelling in out, then reciting what Jacob has spelled.
The world is open to Jacob and he is 100% alert and ready to share. He has a wonderful sense of humor, a great laugh and obviously can spell great! Through further testing, we have determined that Jacob can use a specialty tablet and software tracking his eye movements. When he is ready the device speaks for Jacob and he can again interact by himself with the world, through one eye gaze at a time. Unfortunately, however, the ability for Jacob to speak with the world is not cheap and he does not have insurance with can cover the cost. Given he is unable to work, let’s find a way to help Jacob raise enough money so that he can say “Thank you” to all of you himself.”
There is hope for Jacob. He has been assessed for a Dynavox eye gaze tablet that will use his eyes to allow him to speak. The Dynavox tablet would use his eye gaze to allow him to talk and even to use the internet.
Jacob’s Dynavox computer is around $16,000.
Family and friends of Jacob Creasman are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Injury.
Jacob has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Thank you to all who have given to help Jacob! Jacob has received his control bionics eye gaze computer! The computer allows him to use a keyboard to speak. It also allows him access to Facebook, YouTube, texting and more. Jacob is working daily to master his new device. It will take time for him to use it quickly. But he is making progress. With donations Jacob has also received a cough assist machine a be a vest to help him cough.
Thanks to Hope Help Live, WBIR Channel 10 News, Control bionics and many generous people who have donated! Jacob’s eye gaze computer has been paid for. He says thank you to you all and especially thanks God for making this possible. He will be receiving it in about a week! Any extra donations will go towards a cough assist machine that Jacob needs to keep his lungs clear. Stayed tuned for a video of Jacob using the eye gaze computer!
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Just came across your story on YouTube. I believe you are one of the bravest men I’ve ever heard of! Wishing you the very best! If you ever decide to write a book, I’ll be first in line to get a copy!
Carolyne T -Cornwall Ontario
LifeWave X39 Technology
https://youtu.be/5dlb2Qz_Sqo
Eric Spence
/// recommend apps that go well with +///
/// 5megapixel-camera android phones ///
______________________________________
EVA Facial Mouse - Fundación Vodafone España (i tested)
EyeTracker - BVG Software Group (i didnt test)
Look to Speak - Google inc (i didnt test)
dancomtx(a)gmail,com - you can contact me
Thank you for your service! I wish you all the best.
Stacie Guthery
God bless this courageous Marine! Semper Fi Brother!
Joe Borrajo
Semper Fi Brother!
Anonymous
Blessing to you!!
Anonymous
I have just read of your story. Your you tube news video came up as I was scrolling.
What a miracle that you woke up after 8 years.
Now God wants to use you to speak out. You are an amazing man
Tracy
Your story has really affected me. The song I Can Only Image is now on repeat for me too. You’re in my mind and I wish to send you all of my love and hope. You’re such an inspiring fighter!
Embla Sand
God Bless. Hope you have applied for his benefits through department of veterans affairs?? If not please do so...
Angelika
Marine, always a Marine. My prayers go out to you Jacob Creasman I wish you the best.
Thank you for your service, Jacob. You are amazing. Prayers for you - Semper Fi .!
Dr Jacqueline Le Pham
Good luck, brother!
Jeremy Tuttle
Hi Jacob,
My name is David, and I am from northeast Pennsylvania. If you ever want to message you can always contact me. Thank you for your service and continuing to be the hero you were meant to be.
Your friend,
David
email: davidc993@yahoo.com
Instagram: @artistdavidncorrado
David N. Corrado
Jacob much love are hearts are with you, you can do it!
Kyler Kling
Hi Jacob, my mom had a stroke when I was 6 years old that resulted in Lock-in Syndrome. As a child I was confused and upset to see her in that condition. Your smile reminds me of hers, I wish I could have done more to help her, but hopefully I can do something to help you. People love you and you are worthy of every bit of it. I wish you all the luck to live your best life, and I know you will be able to. I admire your immense courage and perseverance Jacob, best wishes and with warmest regards. - Nader
Nader M
Hey Jacob! Thinking about you and hope you’re doing well!
Megan
God bless you Jacob
Chris Curci
I was so touched to hear Jacob's story and to see the strength he exhibits. I had an uncle who was also a Marine, and he too suffered a brain aneurysm when he was only 32 years old. Unfortunately, I lost my uncle but I pray for Jacob's recovery.
My deepest thoughts and prayers for Jacob.
God bless.
Anonymous
Admiring your bravery and sending prayers and love from Gatlinburg.
Fallon Schrandt
Praying for God's continued blessings and healing upon Jacob. I'm looking forward to hearing more about your progress.
Sabrina Ellison
Even a small gesture can make a world of difference.
Anonymous
Keep fighting. Never ever give up.
Lori Robertson
May you regain everything plus more and spread wisdom on the power and effects that faith, hope and love have on your life and those that love you.
Anonymous
GOD Bless Jacob and I hope he's able to get the device he needs to be able to communicate. GOD Bless his nurses too :)
Anonymous
From one Marine Corps Family to another. Semper Fi!
Anonymous
Praying for you and hoping for continued healing.
Kay Green
What a story. I am humbled by the beauty of this human connection in a time of such struggle. I pray that you raise enough!! Love from Georgia
Erin Straight Patterson
God bless you Jacob.
Anonymous
We hope you get well soon!! We hope your new equipment will help You communicate better:) sending hugs and prayers!!! The johnson family
Anonymous
God Bless
Anonymous
One tough Marine, Semper Fi, Brother. Continue to fight, we are pulling for you. Ken C. from Just Us Marines, Knoxville, TN
Ken Catledge
Please Watch the movie “The diving Bell and the butterfly” This exact thing happened to another man and they made a movie about it it will help others to understand !! Someone needs to make a TickTock about this fundraiser!
Bonnie Jones
Please watch the movie “ The diving bell and the butterfly“ This exact thing happened to a French man and they made a movie about it! You must watch it to understand fully what this is like.
Bonnie Jones
Proud of you Jacob!
Stan Hill
Jacob, you are a fighter beyond measure. DON'T GIVE UP! God bless and watch over you.
Kim Howenstine
Have FAITH in God.
Anonymous
Thank you for your service to our country. May the Lord bless and heal you.
Anonymous
laurelmtrd2020@gmail.com
Anonymous
My heart goes out to Jacob. His situation could happen to any one of us at any given time. Jacob I’m praying for you to recover fully one day.
Please help Jacob and his worthy cause.
Julie Hamilton
what a great thing you are doing for him. he deserves a chance at a life where he can communicate and bond with those around him. no one deserves to be alone during a time like this. For Tricia Limpus to take it upon her self to be his voice is going beyond the norm. Kudos to her and i hope enough money is raised to give Jacob the tool he needs to communicate his needs to those around him.
Janice Farmer
We are praying for you and your family. Thank you for your service.
Anonymous
God blessed this Hero for giving him the ability to be an active part of this World again.
Now I'm blessed to be able to help - if only just a little bit.
Vicki Wizard
Your smile inspires me. My heart hurts for you but your spirit warms me. God be with you. God is with you.
Mrs Christine Leitner
My son, Brian, died in 2017 from a brain aneurysm. To be able to help this young man in some small way helps with that pain. God bless.
Mary Wilson
Keep Fighting Hard!!!
Shannon Mahaffey
Semper Fi.
John Keith
Happy Easter Jacob!
Anonymous in Farragut, TN
Jacob, your smile lights up the room! God bless you and your advocates and caregivers. My mom also has locked in syndrome, she is the light of my life, and I'm sure you are that light to the many people in your life. I hope you are able to get your new communication device very, very soon.
Courtney Caswell
Prayers for continued healing, provision, peace and rest from our Lord Jesus. May you feel His presence in a mighty way.
Teresa Pettit
Contact HealthWellFoundation.org They are based in Maryland and give grants for all different types of diseases/illnesses. Worth a try!!
Deb
Sending prayers for you Jacob. God bless you and your respiratory therapist Tricia Limpus! May you get the equipment you need soon!
Dee Hallam
In honor of Jacob and his care takers, including Tricia Limpus.
J Ford Little
God Bless You
Natalie Simpson
Good luck Jason! I am rooting for you!
Anonymous
Happy Easter, Jacob. I hope that you get to read all of these words of encouragement. I just wanted to tell you that God has not brought you this far to leave you. Praying and believing you will have a complete recovery from this. You will have a wonderful testimony. Xoxo
Anonymous
This free-your-voice device will set you free for communications, but not in the ordinary way to communicate, but an unusual, or, rather, a very unorthodox way.
John Whitson
Praying for your recovery, and I look forward to hearing from you when you get your new communications device. God Bless your wonderful therapist who is your Guardian Angel.
Bryan Lamb
I've tried to out give God - but I never can. I share with you from the resources, mercy and grace He constantly provides me. You have a voice and it is my honor to contribute so that you can effectively share it. May you be reminded daily in your inner man just how deeply the Lord loves you.
Anonymous
I hope you are able to find your voice with this communication system Jacob! Don't give up!
Anonymous
Hello Jacob,
Your story touch my heart. I just want to say, thank you for your service. I hope you find a way to communicate freely very soon. Please keep everyone updated on your progress.
Cindy Hensley
I am praying for your recovery!
Jason Harris
You're an inspiration Jacob! God bless, and keep strong!
Craig and Amanda L.
Craig Livingston
Semper Fidelis
Mike Neace
May god help you during this difficult time keep your head up you will get there
Melanie Strosin
I'm so glad they found a way for you to communicate. God Bless You.
Donna Cox
Donna Cox
Thank you young man for your service to country.
I'm hoping our country now comes to provide for you.
Regina Cavanaugh
Semper Fi Brother Keep fighting never give up!! You are an inspiration to all!!
Gunnery Sergeant Cooper USMC Retired
CRAIG COOPER
Semper Fi, Marine!
Lee Haines
Thank you for your service!! We pray God comforts you and gives you the peace that only He can give through every step of your recovery.
Powell Power Equipment, Inc.
Jacob, I love and miss you so much!!! Although I’m probably not your favorite Respiratory Therapist anymore! Ha Ha! OohRah! Marine!!!
Laura Miller
Thank You Jacob , for you Are a True Soldier and The Holy Spirit is Very Evident in Your Walk with Christ Jesus .I Hear You . I am Looking Forward to meeting you someday and You Have Inspired Me Tremendously. Your Friend Randy,
Randall Bates
Thank you so much for you service!
Haley Wright
Hello Jacob- one of my favorite songs is MercyMe’s ‘I Can Only Imagine’ too! Saw your story on WBIR and I wanted to help you get the technology device you need. I’m a RN and have cared for someone with Lock Down Syndrome and I cannot imagine how frustrating it would be to not effectively communicate to others. You are a true inspiration and I will be praying for you. May this Easter Season remind us of the hope we have in Jesus! And if you haven’t watched The Chosen TV Series, get someone to get access for you. It’s a free app (The Chosen) and season 2 is getting ready to begin. I think you will really enjoy watching it. :-)
Anonymous
Jacob,
Your story is powerful. I pray for you, your parents, and Tricia.
John 3:16
Quaid Davis
I donate this in honor of my very healthy Marine Grandson ho is an active Marine!
Roseann Dinda
May God bless you!
Terry Frank
Thank you for your service to our country. Your in my prayers. Looking forward to the story that you now have the equipment you need to talk to the world
teresa west
Hi, I am the CEO of Control Bionics and just saw your news article. We have a system called the NeuroNode Trilogy which I think would be very valuable for Jacob. It would allow him to communicate both through his lip movement and eye control with speed and low fatigue. Being a Marine he may also be eligible for VA funding. Please feel free to contact me as we have people in your immediate area that could show you what is possible. robwong@contolbionics.com www.controlbionics.com
Rob Wong
My younger brother, Jacob, has been in a persistent vegetative state for 9 years this March from a car accident on his way to school his senior year.
I saw Jacob C.’s story on my local news in Knoxville and it really hit home. It gives me hope to hear this story, and I hope he gets the technology to communicate that he needs and deserves. Stay strong Jacob!!
Donna Litton
It's an honor to help you find your "voice". Prayers for continued recovery, and thank you for your service.
Nancy Reynolds
Praying for God’s blessings and healing.
Joel Farmer
I hope we can get this done! Being able to communicate with you would be amazing!
Jason Finneran
Praying for you Jacob!
Krystal McGrew
What a miracle you are Jacob! God Bless you and your recovery.
Jennifer Cole
Hoping you raise all the money you need!
Gayle Greene
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jacob Creasman
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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