Emily Progin, Content Manager
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COMMUNITY RALLYING TO FUND HOPE FOR 2-YEAR-OLD WITH DISABILITIES
$10,000 Raised So Far to Help “XC” Access Life-Changing Care
SAN DIEGO, Calif.—Two-year-old Xavier Calvert “XC” Long was born with the odds against him. Arriving early at 25 weeks, he spent 109 days in the NICU. As he finally came home, he began his journey with the developmental impacts of cerebral palsy. Today, his loving “village” is coming together to fund a critical need: intensive therapies insurance doesn’t fully cover. They’ve partnered with the nonprofit Help Hope Live for community-based fundraising.
XC’s premature arrival in December 2020 left him with a brain bleed comparable to someone who has experienced a stroke. Today, his life with cerebral palsy calls for constant support. XC cannot walk on his own. He is a frequent talker who uses sounds and some single words to communicate along with assistive communication buttons.
Along with vision therapy and home modifications for accessibility, improving mobility is a big focus for XC’s family. XC practices walking every day with help from rehabilitation tools like harnessed treadmills and gait trainers.
Over time, participating in this type of therapy could drastically improve his mobility. However, many of these therapy expenses are not covered by insurance—even when they could significantly improve his life and health. To support healthy mental, physical, and social development for XC, his family must take on a significant out-of-pocket financial burden.
That’s why they turned to the trusted national nonprofit Help Hope Live for trusted medical fundraising. Donations can be made online at: https://helphopelive.org/campaign/20854/
“This group is instrumental in supporting children like XC (and their families) to fund uninsured medical treatments or equipment expenses associated with their injuries and/or disabilities,” explained mom April. “Your generosity will help XC grow and develop.”
Community generosity has already raised $10,000 during the first six months of fundraising.
Unlike a GoFundMe campaign, donations to Help Hope Live are tax deductible to the extent allowed by law, and all funds raised will be managed by the nonprofit to cover verified medical and related expenses. Help Hope Live verifies medical and financial need for every patient.
Help Hope Live is a national nonprofit that specializes in engaging communities in secure, tax-deductible fundraising campaigns for people who need a transplant or are affected by a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised over $172 million to pay patient expenses. ###Written by Emily Progin