Faith LeGrande
“The medical case just feels like a full-time job.”
29-year-old Faith LeGrande is living with multiple dynamic disabilities. They experience chronic fatigue, nausea, pain, migraines, hypermobility, psychogenic seizures, and mental health challenges regularly.
Since age 12, Faith has been looking for answers and relief surrounding the burdens created by complex diagnoses.
Today, a specialized injection provides some relief for the impact of a genetic mutation that influences Faith’s health – but insurance won’t cover the $70-per-shot cost without a specialist’s diagnosis.
That’s why fundraising with Help Hope Live has become a critical lifeline.
While medication isn’t a cure, it provides a pathway for more consistent symptom relief alongside physical therapy, swim therapy, mental health support, rest, and careful health management.
Daily fluctuations in health and wellness are unpredictable – and as Faith explains, those fluctuations are confusing for themself and for the people around them.
“I look in the mirror and I’m like, I look fine. By society’s standards, I look like a health 29-year-old.”
Though many of Faith’s diagnoses are invisible to the eye, they often still create a significant barrier to community involvement and work. A 40-hour-per-week job is not within reach, and though Faith was able to establish a community-serving nonprofit, by 2024, a health crisis had made it impossible to maintain.
In July, they were able to get financial support for launching a business that will offer DEI coaching to businesses and event planners while helping to share community resources with other individuals who need them. However, the reality is that Faith’s future decisions for their health and wellness may make it impossible to keep the mission going.
“I want to be able to live while I’m pursuing the work.”
While spending endless hours on benefits applications and other sources of assistance, Faith leans on the support of the community to keep them moving forward.
“Community can get me through the seasons.”
