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Our nonprofit can find financial help for those struggling with muscular dystrophy through fundraising.
Muscular dystrophy is a group of diseases within the same family that cause the deterioration of muscle mass and muscle cells, severe physical weakness, and commonly, the loss of mobility.
Although there are different types of muscular dystrophy (categorized by the different muscle groups that they affect), they share a common cause: these types of illnesses are caused by “a mutation, or flaw, in a gene that interferes with the production of proteins needed to form and maintain healthy muscle.”
Such mutations may result in cells manufacturing a defective form of a particular protein, or insufficient (or completely absent) levels of protein.
While the range of treatments for muscular dystrophy varies, it typically includes physical therapy, medication management, assistive devices, and, in some cases, gene therapy or clinical trials for experimental treatments.
The treatment cost of muscular dystrophy can vary dramatically. In the early stages, the average annual cost to treat a muscular dystrophy patient starts at around $20,000 before insurance.
As the disease progresses, costs can reach more than $300,000, especially if respiratory function declines and a ventilator is required.
The level of coverage for your muscular dystrophy treatment can vary depending on your insurance plan and provider.
Navigating muscular dystrophy comes with a unique set of questions and challenges that vary from case to case. When you factor in additional treatments, rehabilitation, therapy, and the need for long-term care, the financial burden can escalate rapidly.
As your trusted community-based fundraising partner, we’re here to help.
for families living with muscular dystrophy and associated expenses. Our nonprofit organization is dedicated to helping those in need to raise money for medical treatment costs.
The fundraising process with our nonprofit starts with a few simple steps:
Help Hope Live differs from GoFundMe by:
We are a nonprofit with more than four decades of fundraising experience and a 4-star Charity Navigator rating.
The fundraising process with our nonprofit starts with a few simple steps:
Here are a few Help Hope Live fundraising success stories:
Danny Stern has been using a wheelchair since he was ten years old as he experiences the progressive symptoms of muscular dystrophy. He earned his doctorate, passed the Bar, and secured employment as an associate attorney. When his accessible van became unreliable, Danny turned to Help Hope Live to fund a new van. He surpassed his $35,000 fundraising goal.
Since 2009, the family of Scarlett Rose Landefeld has turned to Help Hope Live for secure, trusted, and experienced medical fundraising assistance to help with the costs associated with Scarlett’s spinal muscular atrophy (SMA) diagnosis. Scarlett has beat the odds since her second birthday, communicating with her eyes and engaging as fully as possible in the world around her. Fundraising ensures Scarlett’s community can rally to provide help, hope, and critical resources.
Musician and teacher Diane Ellis survived a stroke during a jazz performance. “Team Diane” emerged to provide hope at a time of overwhelming need through a Help Hope Live medical fundraising campaign. With over $20,000 raised so far, fundraising helps Diane cover expenses including medical costs, pain management expenses, and ongoing therapy.
If you choose to fundraise with our nonprofit, here’s how the process will look:
1. APPLY for assistance
2. YOU’LL BE PAIRED with a Client Services Coordinator
3. YOUR COORDINATOR will provide you with one-on-one fundraising help, including personalized fundraising materials and guidance on how to rally your community, share your story on social media, reach out to the press, plan in-person or virtual fundraising events, and more.
Need Other Financial Help Options?
For alternatives to fundraising, you can find information on a variety of cancer financial assistance options. Please view our Illness Resource Directory for insight into sources of direct financial aid, support groups, and other resources for cancer patients and their families.
We’ve upgraded the client Dashboard to make it easier than ever to manage your Help Hope Live campaign. Log in now to check out the new client experience!