Finding Transverse Myelitis Support

Managing the expenses associated with treating transverse myelitis treatments may seem daunting, but it is possible with the help of a fundraising strategy.

The first steps are knowing the expenses involved and researching the available financial assistance options with Help Hope Live. In this article, we discuss the costs associated with a diagnosis and how you can get financial assistance for transverse myelitis.

Associated Costs of Transverse Myelitis

When measuring the overall costs of transverse myelitis, many variables must be considered, including severity, length of time since diagnosis, and the potential for relapse.

According to a 2016 analysis published in Neurology, the “Mean total costs in the 1-year post-index period were $48,378 for all patients and $88,410 and $20,309 for those with and without a relapse, respectively. Mean outpatient costs were $26,585 for all patients and $40,969 and $16,500 for those with and without a relapse, respectively.”

Does Medicare Cover Transverse Myelitis Treatment?

While there is no specific listing for treating transverse myelitis under the US SSA’s Blue Book, you may be able to qualify for coverage under certain applicable listings, including section 11.09 – Multiple sclerosis and other neurological disorders.

How You Can Get Financial Assistance for Transverse Myelitis with Help Hope Live

Help Hope Live makes getting financial assistance for transverse myelitis symptoms easy. Through community-based fundraising, our nonprofit organization is dedicated to helping those in need to raise funds for costs associated with transverse myelitis treatment.

Which Costs Can a Transverse Myelitis Fundraiser Help with?

If you need financial assistance for transverse myelitis expenses, fundraising may be a helpful pathway. Community-based fundraising with Help Hope Live can help you cover expenses such as:

• Health insurance premiums, deductibles, and copayments
• Medications
• Travel expenses for rehabilitation and treatment
• Medical travel and temporary lodging for treatment
• Surgery and hospitalization
• Outpatient medical services
• Rehabilitation services (physical, vocational, educational)
• Caregiving
• Specialized wheelchairs and other durable medical equipment
• Equipment and accommodation considerations, including home modifications and an accessible van
• Experimental treatments

How Does Transverse Myelitis Fundraising Work?

The fundraising process with our nonprofit starts with a few simple steps:

1. Complete a short campaign request at helphopelive.org/get-started/apply
2. We will contact you if community-based fundraising is a possible option
3. You’ll be paired with a Client Services Coordinator
4. Your Coordinator will provide you with one-on-one fundraising help, including personalized materials and guidance on how to rally your community, share your story on social media, reach out to the press, plan in-person or virtual fundraising events, and much more

How Is Help Hope Live Different from GoFundMe?

Help Hope Live differs from GoFundMe by:

• Verifying your medical need for complete donor confidence
• Enabling donations that are tax-deductible
• Providing one-on-one fundraising help
• Managing all funds raised to protect your state-based benefits (funds raised are not considered personal income/assets to you)
• Paying bills directly, allowing you to focus on treatment and recovery

We are a nonprofit with more than four decades of fundraising experience and a 4-star Charity Navigator rating.

Does Community-Based Fundraising Work?

Here are a few Help Hope Live success stories:

"The TRUE meaning of a loving community"

Leo Patnode experienced a brain stem stroke during a business trip. His family engaged Help Hope Live for multiple out-of-pocket medical costs, including hospital care, physical therapy, and caregiving. Leo’s campaign has surpassed $90,000 raised so far with Help Hope Live.

"It is now our time to help them get through these difficult times."

Mom of three Carmel Longoria learned that her cancer was out of remission. Out of work due to the diagnosis and experiencing ongoing chemotherapy and travel for treatment, Carmel and her family turned to Help Hope Live for trusted medical fundraising. Within seven months, they raised over $12,800.