Financial Assistance for Transverse Myelitis

Associated Costs of Transverse Myelitis

When measuring the overall costs of transverse myelitis, many variables must be considered, including severity, length of time since diagnosis, and the potential for relapse.

According to a 2016 analysis published in Neurology, the “Mean total costs in the 1-year post-index period were $48,378 for all patients and $88,410 and $20,309 for those with and without a relapse, respectively. Mean outpatient costs were $26,585 for all patients and $40,969 and $16,500 for those with and without a relapse, respectively.”

Common Costs Associated with Transverse Mtelitis

If you need financial assistance for transverse myelitis expenses, fundraising may be a helpful pathway. Fundraising with Help Hope Live can help you cover expenses such as:

It can be shocking to learn just how much insurance won’t cover when you or a loved one experiences a disability or mobility-impacting diagnosis like TM. Here are some of the costs insurance may decline to cover or only partially cover:

• Health insurance premiums, deductibles, and co-payments
• Medications
• Travel expenses for rehabilitation and treatment
• Relocation or moving expenses related to the diagnosis (such as in the case of moving to be closer to a rehabilitation center or hospital for treatment)
• Temporary housing due to relocation
• Mileage, tolls, and parking fees for visits to rehabilitation center or hospital
• Specialized wheelchairs and other durable medical equipment
• Specially equipped vans and durable medical equipment
• Home modification related to the diagnosis
• Home health care services
• Physical therapy and vocational rehabilitation
• Experimental treatments

Fundraising Options for Transverse Myelitis Patients

If you are dealing with the symptoms of this diagnosis as an individual or family, get assistance from Help Hope Live. Through community-based fundraising, our nonprofit organization is dedicated to helping those in need to raise funds for medical treatment costs associated with transverse myelitis care.

Does Medicare Cover Transverse Myelitis Treatment?

While there is no specific listing for treating transverse myelitis under the US SSA’s Blue Book, you may be able to qualify for coverage under certain applicable listings, including section 11.09 – Multiple sclerosis and other neurological disorders.

How You Can Get Financial Assistance for Transverse Myelitis with Help Hope Live

Help Hope Live makes getting financial assistance for transverse myelitis symptoms easy. Through community-led fundraising, our nonprofit organization is dedicated to helping those in need to raise funds for costs associated with transverse myelitis treatment.

How Does Transverse Myelitis Fundraising Work?

The fundraising process with our nonprofit starts with a few simple steps:

1. Complete a short campaign request at helphopelive.org/get-started/apply
2. We will contact you if community-based fundraising is a possible option
3. You’ll be paired with a Client Services Coordinator
4. Your Coordinator will provide you with one-on-one fundraising help, including personalized materials and guidance on how to rally your community, share your story on social media, reach out to the press, plan in-person or virtual fundraising events, and much more