A Help Hope Live Client Case Study with Paul Mustol
Part of the South-Central Catastrophic Illness Fund
OVERVIEW
The family of Paul Mustol turned to Help Hope Live during the year when their beloved 6-year-old was diagnosed with Duchenne muscular dystrophy. Knowing that the diagnosis would lead to escalating health and mobility challenges, Paul’s family began fundraising as a way to prepare for a more accessible and mobile future for Paul.
THE PROBLEM
Families like Paul’s face an overwhelming financial burden, even with insurance. Certain health-critical expenses are not covered by insurance at all, including home modifications for a wheelchair and an accessible van. A van alone can cost $20,000 to $100,000 or more out of pocket.
THE SOLUTION/APPROACH
We partnered with Paul’s family to provide a trusted medical fundraising platform that enables tax-deductible giving for their community and one-on-one fundraising help whenever they need it.
THE OUTCOME
With overwhelming generosity from Paul’s community, Help Hope Live funded an accessible van through the fundraising campaign in Paul’s honor. Paul’s mother shared her gratitude with our team along with a glimpse into his life as a teen:
“Paul joined an esports team that formed at his school. It is providing him with a sense of belonging. This week, he earned his letter jacket – a letter for esports and a letter for academic achievement.”
The Help Hope Live Touch
Paul had a loving community surrounding him from the very start, but our team still wanted to ensure he and his family had what they needed beyond fundraising. We shared meaningful, hand-vetted resources with Paul’s family, fueling their hope for a bright future for their joyful gamer and student.
“We feel extremely grateful for the generosity people have shown to us and to Paul. It is a wonderful feeling knowing that we have the love and support of family and friends.”
