Finding Financial Assistance for Spinal Cord Injury

Learn how much a spinal cord injury costs, which expenses you may have to cover, and how to get financial help.

Fundraise for Spinal Cord Injury

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Topics Covered

Common SCI Expenses

  • Home health care
  • Activity-based therapy
  • Specially equipped vans
  • Specialized equipment
  • Assistive technology

A spinal cord injury is a devastating and overwhelming experience for any individual, their family, and often their entire community. On top of the medical, mental, and emotional challenges, an SCI often comes along with an extreme financial burden just to meet basic care needs.

If you are facing the daunting cost of a spinal cord injury, you are not alone, and help is available. Start by understanding the costs associated with SCI, which costs insurance may not cover, and how to start a medically verified fundraising campaign with a trusted nonprofit to create greater financial stability.

Costs Associated with a Spinal Cord Injury

As an NSCISC data sheet shows, spinal cord injury will cost between $460,000 and over $1.4 million during the first year after injury on average. Every subsequent year, the cost will typically average between $55,900 and over $244,000.

If you are injured at age 25, you can anticipate the lifetime cost of SCI to exceed $2 million and reach over $6 million for some levels of injury. If you’re injured at age 50, that lifetime cost will range between $1.4 million and over $3.4 million.

Keep in mind that these estimates do not include indirect costs such as losses in wages and employment changes. Those indirect costs averaged $95,309 per year in 2024.

Common Out-of-Pocket Spinal Cord Injury Costs

There are dozens of diverse expenses that play a role in everyday life for an SCI survivor, their caregiver, and their family. Here are some of the most common costs that individuals with SCI face – many of which are not fully covered by insurance:

  • Health insurance premiums, deductibles, and co-payments
  • Medications
  • Medical travel expenses for therapy or treatment
  • Relocation or moving expenses due to diagnosis (such as in the case of moving to be closer to a therapy center or hospital for treatment)
  • Temporary housing due to medical relocation
  • Mileage, tolls, and parking fees for visits to therapy center or hospital
  • Specially equipped vans, specialized wheelchairs, and durable medical equipment
  • Home modifications for accessibility
  • Home health care services and caregiving
  • Activity-based therapy and rehabilitation
  • Assistive technology 
  • Experimental treatments

Finding Financial Help for SCI

Fundraising offers hope to individuals living with a spinal cord injury. As a trusted national nonprofit, Help Hope Live is dedicated to helping individuals address the staggering costs associated with spinal cord injury through caring and compassionate community-based fundraising.

How Does Fundraising for Spinal Cord Injuries Work?

Fundraising with our nonprofit works as follows:

  1. Submit a campaign request for assistance at helphopelive.org/get-started/apply
  2. You’ll be paired with a Client Services Coordinator
  3. Your Coordinator will provide you with one-on-one fundraising help, including personalized fundraising materials and guidance on how to rally your community, share your story on social media, reach out to the press, plan in-person or virtual fundraising events, and much more
$9.5M

raised through fundraisers last year

$482,910

in rehab and physical therapy help last year

$1,082,271

for wheelchair vans last years

How Is Help Hope Live Different from GoFundMe?

Help Hope Live differs from GoFundMe by:

  • Verifying your medical need for complete donor confidence
  • Enabling tax-deductible donations
  • Providing one-on-one fundraising help
  • Managing all funds raised to protect your state-based benefits (funds raised are not considered personal income/assets to you)

We are a nonprofit with more than four decades of fundraising experience and a 4-star Charity Navigator rating.

Does Fundraising Work?

"We raised 114% of our goal. Our Help Hope Live Coordinator diligently guided us through the whole process."

Just before he planned to retire, Paul Buckman fell in his own bedroom and became a quadriplegic. Help Hope Live provided a tax-deductible, secure, and medically verified way for his community to provide financial assistance. In 2018, his family purchased an accessible van.

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Stairlift installed as a result of many donations. May God continue to bless Stephan and Help Hope Live.

Stephan A Golden was injured in an ATV accident in 2015. His family was left with countless out-of-pocket costs from daily caregiving to physical therapy and home medical supplies. With fundraisers including an online auction and a poker tournament, his campaign raised enough to cover multiple key expenses. As they continue to fundraise, Stephan’s wife, Katrina, is now a Help Hope Live Ambassador.

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"Thank you for your kindness, support, and generosity."

Eileen Reedy became paralyzed from the waist down when she fell down the stairs. She faced $200,000 in annual out-of-pocket medical costs to manage the care needs associated with her level of injury. Unique fundraising pathways from golf tournaments to online gaming events have brought critical care within reach for Eileen year after year.

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“Help when you don’t know where to turn to or what to do about a mountain of bills related to health care.”

A 2020 survey of the Help Hope Live community revealed that 94% of our clients would recommend our trusted medical fundraising to other families going through a similar medical crisis.

Partners In Hope

Our success as a fundraising site for medical bills wouldn’t be possible if it weren’t for our outstanding partners.

Permobil logo

Permobil

The Do Gooders logo

The Do Gooders

Rosenblatt Foundation logo

The Esther & Pedro Rosenblatt Foundation 

Lindo Foundation logo

Lindo Foundation

Costco logo

Costco

Foxwynd logo

Foxwynd Foundation

SureHands Lift & Care logo

SureHands Lift & Care

Stout logo

Stout

Kennedy Krieger International Center for Spinal Cord Injury logo

Kennedy Krieger International Center for Spinal Cord Injury

Jefferson Health logo

Jefferson Health

Independence Blue Cross logo

Independence Blue Cross

DigiStream logo

DigiStream

Glenmede logo

Glenmede

Brandwine Realty Trust logo

Brandywine Realty Trust

United Access logo

United Access

Gift of Life Howie's House logo

Gift of Life Howie’s House

Transplant Alliance Foundation logo

Transplant Alliance Foundation

Bridge to Mobility logo

Bridge to Mobility

Christopher & Dana Reeve Foundation logo

Reeve Foundation

ADT Medical Alert logo

ADT Medical Alert

Feeldom logo

Feeldom

Smart Adaptive Clothing logo

Smart Adaptive Clothing

Patti + Ricky logo

Patti + Ricky

Reboundwear logo

Reboundwear

Billy Logo

BILLY Footwear

Ex N Flex logo

Ex N’ Flex

WheelEEZ

Active Hands logo

Active Hands

Ultimate Workout and Recovery logo

Ultimate Workout and Recovery

VitaGlide

Cherry Wheels logo

Cherry Wheels

inclu design logo

The LapSnap

Spinergy logo

Spinergy

Vapor Wheels logo

Vapor Wheels

Wheelie Cool Stuff logo

Wheelie Cool Stuff

Frog Legs logo

Frog Legs

Rollx Vans logo

Rollx Vans

global

Global Genes Alliance

First Trust Bank Logo

Firstrust Bank

abilities

Abilities Expo

comms

Prelude Solutions

KYW Newsradio 1060

Walgreens Specialty Pharmacy

ams vans

AMS VANS

VMI logo and tagline

Vantage Mobility International

MobilityWorks Logo - be there

MobilityWorks