Emily Progin, Content Manager
[email protected] / 800.642.8399
Release: Immediate
COMMUNITY RALLYING TO HELP 2-YEAR-OLD MYLES GET A VAN
Saved by Taco Bell Manager at 11 Weeks – Now Ready to Keep Moving
HOLLAND, Pa.—At 2 years old, Myles Oslo Ramirez has already been through more medical challenges than some people experience over a lifetime, including experiencing a life-threatening emergency in the Richboro Taco Bell drive-thru lane in 2024. Today, he is a joyful kid who is thriving in spite of his challenges.
His family has a critical need for a wheelchair accessible van to keep supporting Myles’s medical care. That’s why they started fundraising with the trusted national nonprofit Help Hope Live at: https://helphopelive.org/campaign/27317/
Myles was born with a rare genetic illness called acampomelic campomelic dysplasia (ACD). ACD is a form of dwarfism that impacts his physical development, muscles, and breathing. He spent the first 7 months of his life in intensive care. Today, he resides in Pedia Manor, a facility that provides the around-the-clock skilled nursing care he needs.
One day soon, his family hopes he can continue his recovery from home.
In April 2024, when he was 11 weeks old, Myles and his family faced a completely unexpected and life-threatening moment when he stopped breathing in the Richboro Taco Bell drive-thru lane. A manager performed the chest compressions that saved his life: https://www.youtube.com/watch?v=jlCw-P_fUsc
Myles has lived in Bucks County for his entire life with mom Natasha Long and dad Fernando Ramirez. Natasha shared that Explorations Community Preschool and Discovery Kids of Morrisville have offered love, encouragement, and support to Myles and their family.
He has a 6-year-old older sister, Valerie, and an 8-year-old older brother, Mason. 1,500 miles away, his grandparents in Texas cheer him on and advocate for him from afar. “His medical teams, family, friends, and online community carry us through the most difficult days,” said Natasha.
Mom draws support and encouragement from an international online network through her TikTok: https://www.tiktok.com/@nattie501
Today, Myles is joyful and full of smiles. He is now able to spend extended periods off his ventilator, and he can pull himself up to stand.
The one missing ingredient to give Myles the safe, active future he deserves is now a wheelchair accessible van. Insurance will not cover the cost.
That’s why the family turned to the trusted national nonprofit Help Hope Live. Their community has already raised over $1,000 in Myles’s honor in just a few months.
Donations are tax deductible at: https://helphopelive.org/campaign/27317/
Unlike a GoFundMe campaign, donations to Help Hope Live are tax deductible to the extent allowed by law, and all funds raised will be administered by the nonprofit to cover verified medical and related expenses. Help Hope Live verifies medical and financial need for every patient.
Help Hope Live is a national nonprofit that specializes in engaging communities in secure, tax-deductible fundraising campaigns for people who need a transplant or are affected by a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised over $194 million to pay patient expenses, assisting more than 25,000 patient families. ###
