In 2013 Help Hope Live expanded its mission to serve individuals living with catastrophic illnesses.
For patients who are living with a catastrophic illness, including multiple sclerosis, cerebral palsy, muscular dystrophy, transverse myelitis or Lou Gehrig's disease, challenges associated with uncovered medical expenses can last for a lifetime. Help Hope Live is often able to help patients and their families over many months or years as they face long-term challenges with uncovered medical expenses.
Working with Help Hope Live's expert Fundraising Coordinators, patients and their families can build a network of support that can have a significant impact on their ability to pay medical bills and access treatment.
In addition to personal guidance, we provide tools and resources fundraisers need to be successful including:
fundraising how-tos and event instructions
customized solicitation materials and sample appeal letters
a Campaign Page on our website to collect donations, manage event registrations and connect to popular social networking platforms
“While some choose to hole up while they heal, Aaron is out being Aaron,” said the Loy family.
Aaron Loy was a freshman playing lacrosse at the University of California Santa Barbara when he contracted an extremely aggressive strain of bacterial meningitis. The meningitis led to complications that required doctors to amputate both his lower legs. Even with insurance, Aaron’s family was facing the high out-of-pocket costs of co-pays and deductibles, prosthetics and rehab. To help finance this long and challenging road to recovery, their rehabilitation center referred the Loy family to Help Hope Live.
Desperate to help, Aaron’s community at home and at UCSB planned dozens of fundraisers in his honor from percentage of sales nights, to car washes, to bake sales. In December 2013 Aaron’s Southern California lacrosse family came together to organize the Aaron Loy Lacrosse Shootout. The event was an all-ages lacrosse festival that featured more than 300 players and raised more than $18,000 toward Aaron’s medical expenses.
More than 60 doctors and a dozen surgeries later, Aaron is at home in California and continues outpatient care. Although he still has a long road ahead, he has already made huge strides in his recovery. In March Aaron took his first steps in his prosthetics. He goes to a prosthetic clinic 3-5 times a week; his legs are getting stronger and his skin/tissue is getting tougher. His goal is to be able to return to UCSB and life as a college student in Fall 2014.
Since joining Help Hope Live in November 2013, the Loy Family has raised more than $200,000 towards Aaron’s recovery.